Views : 502,800
Genre: People & Blogs
Date of upload: Sep 21, 2023 ^^
Rating : 4.932 (131/7,574 LTDR)
RYD date created : 2024-05-12T06:44:26.310354Z
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Top Comments of this video!! :3
I appreciate their honestly about their chronic stress/PTSD regarding Aiden's aggressive meltdowns. It's important to be transparent about both the joyful, sunny parts parenting a child with special needs, but also about they more difficult/draining parts. All of those experiences are real and valid.
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when i saw that room they had for him and how he was able to go downstairs and interact with it entirely on his own accord and his parents could watch him while maintaining space, i was just so moved. because sometimes being disabled means you can’t be alone, but all humans need to have space once in a while. so i love how they had the access and innovation to allow him freedom and space and autonomy while still keeping an eye on him.
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This couple deserves respite care. They should be able to see friends or go to gatherings together without Aidan. Aidan also deserves the dignity of being trained not to assault his parents. He will get bigger and his parents will get older and weaker-one day they will not be around. The time will inevitably come when any periods of violence toward caregivers can’t or won’t be tolerated. There has to be some form of behavioral therapy that can assist with this.
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Ok so my almost 6 year old has dup15q (well, he has a tetrasomy of ch15q11.2-13.1) and congenital fibre type disproportion. Watching Aiden in this video is a lot like what I imagine our future. Ezra is less coordinated than your typical duper because he has almost none of the fibres in his muscles responsible for fast explosive movement. He’s still ridiculously strong and after reeeaally struggling with mobility, once he took off 😅 we call him Ezra Knievel for a reason 😂 I showed this video to Ezra’s older sister and she was like “oh that’s an Ezra move.” Lol we both got teary eyed when we saw Aiden choose the turkey for Old Macdonald ❤ this is not something Ezra is capable of yet and he’s suuuuuch a music lover (Little Baby Bum is his jam)
As for the violence, I whole heartedly send you all love and peace and strength. Ezra has no teeth on top yet but his go-to move in frustration is to bite his hand and he actually has like a callous on his right hand from it :( bracelets and chewies try their best to distract but he’ll take the chewie out of his mouth to bite me in moments of terror or anxiety or impatience or whenever there’s too much talky talk in the room and we’re muffling his LBBs. We got him earmuffs but of course if it’s going to help, he’s going to yeet it 🙄😂 just like them 350$ glasses for his -4.0 pretty freaking nearsighted little self that he once tolerated for a whole minute.
Btw for the crowds: “training” him out of biting us is what lead him to discover he could bite himself and tbh, I’d rather go back to him biting me because I could dodge him and he does not dodge himself.
Also also, these parents don’t need to be told they’re doing things wrong or not allowing their son to have “dignity”. Chances are, they’ve tried it all. Dupers are not your typical ASD children. There is so much going on in their little brains and bodies, like beyond the usual sensory stuff they also deal with a ton of physical issues as well. There’s a bunch of stuff that can go wrong with the house if the foundation has a big pile of extra cement in the middle. They’re trying their hardest to enjoy their life with their son before they can no longer handle him and yes, they also have thought of that since the moment he was diagnosed. And then they’ll worry for the rest of their lives about everything, if he’s happy, if he’s well taken care of, if he even realizes we’re not there anymore…trust me, there are no stones unturned in the minds of parents of babies who will always be babies.
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This is heartbreaking. I am exhausted and sad for these parents. The fact that they have given up seemingly everything in life, including conversations with each other, to keep him from freaking out is just so sad. This isn’t sustainable. I hope they can find a long term solution so that he doesn’t end up killing them.
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I take my hat off to both these parents! I think I couldn't take the intensity and would worry about Aidan's future. Glad to hear Aidan goes to school and gives his parents a break. I suppose one of the parents works outside the home. So sorry Aidan and his parents are so cut off from social interaction. Their intense bond is very special, very admirable.
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Wow --- oftentimes I watch these SBSK videos and think how the families have to make concessions and learn how to accommodate ... but this one is really rough. Aidan is so physical and the parents have to really deal with a lot of intense physicality. It must be exhausting both physically and mentally. Hats off to them, but I do wish they had more help in the home and had some respite. I imagine at school he has dedicated 1:1 aides.
The physical attacks are awful and Aidan just keeps getting stronger. He has a lot of "young man strength" with no way really of regulating it. They are going to have to seek assistance - especially as they get older.
This video is interesting because unlike virtually all of Chris's other videos, he talks mostly to the family and not to the person the video is about. Of course it appears Aiden is hard to establish connection with, so it would probably take more than one visit for Chris to have any kind of rapport. Was it difficult, Chris, to try and conduct the interview without being able to talk directly to Aiden much?
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@christinak2487
7 months ago
I really loved how open the parents are about their PTSD & what they go through. It needs to be discussed more.
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