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Living with 4,000 Seizures Every Day (And Still Finding Joy)
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468,518 Views ā€¢ Oct 5, 2023 ā€¢ Click to toggle off description
Chase has around 4,000 seizures every day due to a mutation of the PGAP3 gene. Chase's family wants others to know that although his life may be different, he is still a happy person. Chase is also diagnosed with Mabry syndrome.

Support SBSK at www.patreon.com/SBSK

Learn more about PGAP3 at www.moonshotsforunicorns.org/
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Views : 468,518
Genre: People & Blogs
Date of upload: Oct 5, 2023 ^^


Rating : 4.975 (67/10,710 LTDR)
RYD date created : 2024-05-11T04:41:28.763667Z
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YouTube Comments - 657 Comments

Top Comments of this video!! :3

@SpecialBooksbySpecialKids

7 months ago

I just thought of something I wanted to point out! In this interview I asked Chase "what should somebody do if they want to be your friend?" and he responded "Lightbulb!" At first I thought he was perseverating on the lightbulbs, but after a few seconds I realized he was answering my question. This reminded me it's always important to be fully in the moment and listen to those around me.

887 |

@pinlight97

7 months ago

The fact that this family had to move a bunch of states over to get him to have 7,000+ fewer seizures a day with medical cannabis is mind boggling to me as a Canadian. Itā€™s not ā€œcriminalā€ to take something that works.

2.2K |

@OKBoomer2k

7 months ago

Allowing him to explore your expensive equipment proves to me that you're in this for the people, not the "likes".ā¤

884 |

@Amber24426

7 months ago

His brother seems so kind šŸ„¹

850 |

@karenfitzpatrick6256

7 months ago

There is a great saying I always remember about being a parent. "You bring them into this World, you should let them show it to you." That's the joy of all children I think.

485 |

@EilidhGill96

7 months ago

Wow! So crazy to open the Youtube App to a channel I followed back in collegeā€¦. and see one of my favorite students! Chase is taking Digital Photography 2 next semester, and I canā€™t wait to see how excited he gets about our new camera equipment. Such a joyous student to be around- Iā€™m so excited that you were able to interview him ā¤

209 |

@mcfluffynips

7 months ago

I couldnā€™t imagine how difficult it must be to live with this condition, inspiring to see how strong this boy continues to be. I need to be more like Chase.

348 |

@elsiebee2888

7 months ago

Chris, everyone who works with people with additional needs should watch your videos to learn exactly how it should be done. You were born for this role. Best channel on the internet, bar none.

273 |

@dawnburtrem-katz8758

7 months ago

This is one of my favorite vidoes of yours. The way you treated Chase with patience and kindness when he was playing with your camera - was so genuine. Most people would have never let him play with their camera, worrying they would break it. You are a good person.

162 |

@shomerul64

7 months ago

The excitement of Zack after hearing the question ā€œhow would you describe your brotherā€ made me smile .ā¤

74 |

@tropicaltanktv

7 months ago

Chase seems like such a delightful person to be around. And what a great family he has supporting him!

136 |

@franciscaromeroblanco3422

7 months ago

I genuinely enjoyed watching Chase get up and asked Chris to bring back the lights! I imagine they were hidden to lessen distactions

87 |

@jojoeljefe

7 months ago

i love how interested in the camera he is!! you can feel his excitement!!

40 |

@kayotheepotato

7 months ago

It was so cool watching Chase be in his own world and just be so into tinkering with the equipment lol

107 |

@lauratheexplora5020

7 months ago

Can we talk about how the moms face lights up after she realizes Chris is going to let him fidget with his gear. šŸ„° She must be so used to people saying ā€œ no no donā€™t touch thatā€ Chris. Thank you for what you do. šŸ’™ā¤ļøšŸ’™ā¤ļø

41 |

@ascs4944

6 months ago

Chris, the patience you have with everyone, especially when handling expensive equipment, is such a gift. Something I certainly strive toward. Youā€™re a wonderful example and a great human.

48 |

@js8303

7 months ago

Hi Chase! Iā€™m so sorry you have to go through all these seizures, but Iā€™m so glad you still find happiness ā¤

78 |

@emasa97

7 months ago

12:12 this happiness is the most real thing I've ever seen. Couldn't keep but thinking that he would be an amazing engineer. All the happiness should come and find you dear Chase :) lot's of love from Turkey ā¤

35 |

@_NewtonMeter

7 months ago

Medicinal cannibas is amazing! And I'll always be forever angry that cannibas became stigmatized due to the war on drugs etc; instead of scientists studying it for its medicinal uses. The time lost and the lives not bettered. Chase is a joy. Bless your sweet family and your amazing, empathetic, and inquisitive son!

25 |

@lovingmayberry307

7 months ago

What a sweet family, and Chase is such a kind, happy boy. And Chris, you were an angel letting him play with your equipment like that. You could tell he enjoyed it!

29 |

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