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69,156 Views ⢠Jan 18, 2023 ⢠Click to toggle off description
The "normal" things in life, like seeing a movie, play, concert, sitting on the bus, train, plane, or at the hairdresser become excruciating tasks that I often fear due to the pain that will follow. I wanted to share this tip for the hairdresser because it really lowered my pain level so I hope it can help some of you as well. PS- HOW CUTE IS MY ANIMAL CROSSING t-SHIRT!!!!
#ehlersdanlos #ehlersdanlossyndrome #chronicillness #shorts
Views : 69,156
Genre: People & Blogs
Date of upload: Jan 18, 2023 ^^
Rating : 4.929 (120/6,600 LTDR)
RYD date created : 2024-01-21T05:45:43.845724Z
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YouTube Comments - 143 Comments
Top Comments of this video!! :3
I recently had a colleague with EDS who unfortunately was let go because she could no longer keep up with the tasks because of her illness. That really opened my eyes as to how serious EDS is
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Any other tips you have, please share with the community!
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i just recently found out i have eds, and just realized its not normal to always be in pain. thanks for talking abt it and normalizing it
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âJust holding myself togetherâ
Mood.
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I was diagnosed with Rheumatoid Arthritis at age 11 and Multiple Sclerosis about 5-6 years ago, I'm also oddly hypermobile.
Letting as many people in your life as possible KNOW what is going on, even your hairdresser, benefits us ALL in the long run.
Don't be shy if you need to move, if you need a cane, or even if you have to repeat yourself, "This HURTS. I need to move/adjust.". Speak up. Speak your truth.
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Martina was the reason I started my journey to get my hEDS diagnosed and is still my EDS mother.đ
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Martina, youâve showed immense resilience throughout everythingâand despite all that has happenedâyou still show us incredible content. When I was in Tokyo, Japan about 2 weeks ago, I wanted to check out Kichijoji just because youâve mentioned it before. Iâm not going to lie, I had hoped to run into you and give you the biggest hug because I adore you and what you show us on your YouTube channel!
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I donât have EDS but I have other autoimmune disorders that cause me excruciating pain, tips like this are very helpful. Thank you so much, Martina~
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I love your mindset, Martina. Youâre seriously awesome and I love youuuu đâşď¸
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I love the Animal Crossing shirt! Good to see you've found additional health and mobility aids to help you in your daily life! I do not have a disability myself, but I've been noticing as I get older, my body does not tolerate being seated in harder seats for a long time, and the little bit of cushion on office chairs isn't enough. Perhaps I need to invest in a keester-cushion myself!
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It was watching you and having you talk about hEDS that actually made me realise that what i was going through wasn't just normal, and not everyone had this kind of pain. And it's thanks to that that i got an actual diagnosis along with arthritis in my knees and fibro. You will always be someone i really look up to! So thank you for that Martina â¤ď¸ And anyone questioning the pelvis belts get one they are bloody amazing. I have trouble walking without severe pain in my hips, and one of those belts just seem to keep my hip joints where they should be and minimise the pain so i can walk up the street. Seriously, life changing đ
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I have different conditions but I love seeing this because it makes me feel like it's okay to need help with certain things and not to be embarrassed to have mobility or chronic illness aids despite our young age. I can't tell you how many times I should have worn a brace or something and chose not to and ended up in horrible pain all day!
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I've had some struggles with health since 2020. One of my clients pointed out I would have EDS. Turns out I do! I'm glad to have some sort of "reason" for my health issues and pain.
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Your animal crossing top is fucking amazing
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I love your Animal Crossing shirt so much!
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My mum is in the process of getting a diagnosis for her hyper mobility. Recently had a partial knee replacement, since her knee cap slipping around in her joint caused alot of damage. Please share more tips so I can share with her. You are such a positive person, and I hope she can stay positive like you â¤ď¸
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"just holding myself together" the hefty cackle I released afterwards đđ that's amazing. I think it's amazing you have so many great ways to keep a handle on your condition! I hope your condition can become less serious/get a cure one day in your lifetime!
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Thank you! Canât wait to see the updated hair. And I love seeing all these every day tips and tricks. Have you gotten any cute new charms or stickers for your mobility aids? A little update/tour of them would be neat if youâre open to sharing! đ
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That animal crossing shirt is awesome!!
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@amulyar
1 year ago
Martina, You are showing everyone that no matter what we go through in life, being happy, living our best, and doing our best is a choice. I want you to be healthy and happy and get to do everything you ever want đť
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