Spent post op day 1 with these two! Getting cat trapped by them probably kept me from over doing it!
I ended up having red man syndrome! What the heck!
Yet another surgery, and I’m not feeling great about it.
I’m a double whammy when it comes to morbid sense of humor!
Please tell me that there is some hope!
The struggles of brain fog!
I am an open book, but some things people say catch me off guard
I will always have something to be grateful for!
What kind of health care provider do you go to for diagnosis and treatment of POTS?
Doing to much has major consequences!!
Day of IV Port Removal Surgery
I totally jinxed myself!
Another surgery tomorrow
Guilt in Chronic illness
Iv port infection.
Medications used to treat POTS
Fears with chronic illness
Diet and hydration are a great first step to treating POTS symptoms. #pots #spoonie #chronicillness
Really a lose-lose situation
POV- Living Roth multiple chronic illnesses
Symptoms with POTS #spoonie #pots #chronicillness #eds #invisibleillness
Chronic illness life #chronicillness #spoonie #pots #gastroparesis #eds
Pathophysiology of POTS
Mindset and chronic illness
I’m a genetic mutant
Testing for POTS
Happy New Year everyone! Wishing you a happy and healthy New Year
Well another year is in the books! Happy New Year everyone! #anotheryear
New year, new medical deductibles
What is pots? #pots #posturalorthostatictachycardiasyndrome #eds #spoonie #invisibleillness
Understanding “the behind the why” of a diagnosis and treatment
When you are a Spoonie there is just one gift that Santa cant go wrong with!
When you are a Spoonie there is just one gift that Santa cant go wrong with!
Christmas can look very different for a Spoonie!
With Chronic Pain and Chronic illness, sometimes ignorance is really bliss
It really is a vicious cycle #spoonie #chronicillness #eds #pots #potssyndrome #gastroparesis
Channel name change
Life update December 2024
Steps to access an iv port
You are your own best advocate!
Maybe I’m being salty 🤔
Traveling with chronic illness doesn’t have to be scary
Ways to support a spoonie
We are more that just a patient!
Does chronic illness become your identity?
Does chronic illness define you?
It’s the October slide baby!
You’re putting that needle where?
I made my channel to help spread awareness for Ehlers Danlos Syndrome and other rare disorders. It takes an average of 10-12 years to get a diagnosis of Ehlers Danlos Syndrome! I am still new to YouTube and figuring things out, but I will be discussing things like feeding tube cares, port cares, IV fluids, and day to day activities with chronic illness. I will discuss each of my illnesses separately and highlight the cares for those illnesses.
I want to connect to my viewers on a personal level as well. There is not only the physical side of illness but the emotional side as well. If I can ease anyone's fear of the unknown than I take that as a win! Alongside of my illnesses I also have a job as a nurse, and I own my own photography studio. I also love how doing projects around the house when I am able. I would love to make some fun videos on that as well to show that we can still do the things we love, we may just have to modify it a bit. I hope you join me!