I made my channel to help spread awareness for Ehlers Danlos Syndrome and other rare disorders. It takes an average of 10-12 years to get a diagnosis of Ehlers Danlos Syndrome! I am still new to YouTube and figuring things out, but I will be discussing things like feeding tube cares, port cares, IV fluids, and day to day activities with chronic illness. I will discuss each of my illnesses separately and highlight the cares for those illnesses.
I want to connect to my viewers on a personal level as well. There is not only the physical side of illness but the emotional side as well. If I can ease anyone's fear of the unknown than I take that as a win! Alongside of my illnesses I also have a job as a nurse, and I own my own photography studio. I also love how doing projects around the house when I am able. I would love to make some fun videos on that as well to show that we can still do the things we love, we may just have to modify it a bit. I hope you join me!