7 Videos
ECD Survivorship Concerns - Pain, Fatigue, Mental Health
17 Videos
ECD Global Alliance
12 Videos
ECD Patient Stories
12 Videos
2024 Patient & Family Gathering - Seattle
17 Videos
Organ Involvement with ECD
3 Videos
Social & Financial Information for ECD Families
4 Videos
Exercising with ECD
5 Videos
Questions & Answers with ECD Experts
9 Videos
ECD Research
5 Videos
Endocrinology and ECD
36 Videos
Medical Professional Resources
14 Videos
Mutations & Treatments
4 Videos
Nutrition and ECD
4 Videos
ECD Overview
16 Videos
2023 Medical Symposium - Mayo Clinic (Rochester)
14 Videos
2023 Patient Family Gathering - Mayo Clinic (Rochester)
3 Videos
2020 ECD Awareness Week
20 Videos
General ECD Information
3 Videos
Fundraising
7 Videos
Regional Gatherings
11 Videos
Webinars
10 Videos
2018 ECDGA Patient and Family Gathering: Orlando, Florida
13 Videos
2019 ECDGA Patient and Family Gathering - Milan
4 Videos
2018 ECD Medical Symposium: Orlando FL.
14 Videos
2016 ECD Medical Symposium - Paris
9 Videos
2016 ECD Patient & Family Gathering - Paris
16 Videos
2015 ECD Patient & Family Gathering - Houston
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About
The Erdheim-Chester Disease Global Alliance is an ultra-rare disease patient advocacy group dedicated to raising awareness, providing support to those affected by the disease, educating the medical community with material, facilitating information sharing among interested parties regarding ECD, and advocating for and financially supporting research programs related to Erdheim-Chester Disease. Please contact us for more information.
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