07:32

Patient Story: Bonnie & John speak at 2024 PFG Meeting in Seattle

18:43

Unpacking the Pathology Report with Aishwary Ravindan, MD

17:36

Movement & ECD: How Physical Activity Builds Resilience with Hanna Hunter, MD

55:58

Questions & Answers: Insights from ECD Medical Experts

20:50

Why Research Matters with Gaurav Goyal, MD

17:40

How Far We Have Come: An Evolving Research Landscape with Juvianee Estrada Veras, MD

19:01

Understanding Integrative Medicine in Cancer Care with Blake Langley, ND, LAc

24:20

Tackling Pain and Fatigue in Erdheim-Chester Disease with Kevin O'Brien, RN, MS-CRNP

22:05

How ECD Impacts the Body's Organs with Eli Diamond, MD and Francesco Pegararo, MD

19:58

Treatment Spotlight: CAR-T and Transplant Therapy with Jacob Appelbaum, MD, PhD

16:32

Treating Erdheim-Chester Disease with Dr. Ronald S. Go, MD.

15:46

Overview of ECD Basic Biology with Ken McClain, MD, PhD

01:00:21

Disease, Anxiety, & Depression: Coping Strategies for Caregivers of Adults - Part 1

49:10

UNDERSTANDING MONOCYTE-RELATED DISORDERS INCLUDING EPIGENETICS AND GENOMICS

18:57

Abnormalities of Pituitary Imaging and Associated Endocrine Disorders in Erdheim-Chester Disease

16:15

LONGITUDINAL ASSESSMENT OF CARDIAC INVOLVEMENT IN ECD USING CARDIAC MAGNETIC RESONANCE IMAGING

10:11

Early Changes in intermediate monocyte distribution correlate with relapse free survival...

16:23

Geographic Clustering of Erdheim Chester Disease in Italy and France

05:30

Medical Symposium: Welcome and Meeting overview

16:31

A Pilot Study of Patient Reported Outcome Measures among Individuals with Histiocytic Neoplasm

15:16

Medical Symposium 2023: History OF ECDGA & Focus on the Future

39:26

Radiology Workshop

39:53

Pathology Mimics Workshop

15:56

Neoplasms harboring class 3 MAP2K1 mutations including treatment with the ERK inhibitor ulixertinib

08:59

EFFICACY OF MEK INHIBITORS OF ERDHEIM CHESTER DISEASE

15:42

RAF-independent MEK mutations drive histiocytic neoplasms in vivo and are sensitive to single agent

18:39

Multi National Series of 26 Patients

14:30

Cluster Analysis Unveils the Clinical Spectrum of Erdheim Chester Disease

04:57

ECD Global Alliance Mission Forward

50:07

Meet the Experts

21:01

Hormonal Woes Finding the Right Balance 2023 Patient Family Gathering

24:32

Integrative Oncology 2023 Patient Family Gathering

14:17

Barry Atnip - A Patient Story

33:29

Depression and Anxiety in Serious Chronic Illness: Diagnosis and Management

03:19

Patient Story Alice Nielsen

46:54

Questions and Answers with the Experts

24:27

It's not all in the head ECD and the Brain 2023 Patient Family Gathering

24:05

Treating the Disease and the Side Effects A Balancing Act

05:24

Welcome to Patient Family Gathering 2023

11:58

Focus on the Future Patient Family Gathering 2023

30:07

Cancer Patient Navigator, Social Worker, and Financial Counselor Planner

23:18

Prescriptions for a Rare Disease Is There a Cure 2023 Patient Family Gathering Jithma Abeykoon, MD M

24:46

Erdheim Chester Disease What do we know a Century Later 2023 Patient Family Gathering

05:12

ECDGA Successes Patient Family Gathering 2023

02:45

Joining Together to End ECD

45:44

Dr. Aaron Goodman, Erdheim-Chester Disease: Demystified

32:36

Ila Saunders, Pharm.D., BCOP - Treatment of Erdheim-Chester Disease: A Focus on Targeted Therapies

14:59

Erdheim-Chester Disease: Have We Figured It All Out? - Dr. Gaurav Goyal

30:40

Dr. Robert Franklin - Erdheim-Chester Disease: Managing MFK Targeted Therapies

23:35

Dr. Ashish Kumar - Erdheim-Chester Disease: How Do Inhibitors Work?

54:02

Beyond the Office Visit: Navigating Clinical Trials for Histiocytosis

15:45

Facing the Future With Hope by Barry Atnip

00:47

The Importance of Early Detection - Dr. Gaurav Goyal, University of Alabama, Birmingham

38:09

Erdheim-Chester Disease Targeted Therapies: The good and the bad

49:53

Erdheim-Chester disease: What do we know a century later?

01:18:04

Beyond the Office Visit: Moving Through Rare Disease

52:44

Beyond the Office Visit - Part Two: Functional Nutrition & Wellness

51:32

Beyond the Office Visit: Managing Cost of Histio Care

04:26:45

2021 ECD Virtual Medical Symposium

53:45

Erdheim-Chester Disease: A review of updated guidelines in the molecular era