01:00:46

Understanding the NCCN Clinical Practice Guidelines for Histiocytic Neoplasms

58:53

Endocrine Conditions in Erdheim-Chester Disease & Histiocytic Disorders

45:37

Histio Patient Needs: A Focus on Eyes and Vision

03:01

Why I Give to the ECD Global Alliance

01:01:51

2020 ECD Consensus Webinar Recording

11:11

Endocrine Manifestations - Carine Courtillot, MD

34:17

Skin Involvement - Stéphane Barete, MD, PhD

01:02:02

Ask the Experts! 2019 Patient and Family Gathering

28:12

Overview of ECD and Drug Management - Lorenzo Dagna, MD, FACP

13:24

ECD and the Brain - Eli L. Diamond, MD

31:29

The Drug Trial Process - Filip Janku, MD, PhD

13:21

7th Annual ECDGA Patient and Family Gathering Welcome and Overview

31:49

Organ Involvement in ECD - Julien Haroche, MD, PhD

20:21

Mutations in ECD - Mark Heaney, MD, PhD

23:56

Renal & Ureteral Involvement - Augusto Vaglio, MD, PhD

21:44

Daily Care - Roei Mazor MD

12:50

7th Annual Patient and Family Gathering Close - The ECD Global Alliance Team

13:03

2019 PFG - ECD Patient Registry Update - Dr. Diamond

30:09

Nutrition for ECD Patients with Rebecca Donnenberg at the 6th Annual PFG.

22:44

Physical Therapy with Colleen Scordato, DPT, Cert. MDTat the 2018 ECDGA Patient and Family Gathering

28:14

Endocrine Dysfunction with Dr. Hannah-Shmouni at the 2018 ECDGA Patient and Family Gathering

23:49

ECD Patient Registry with Dr. Eli L. Diamond

29:26

Drug Management with Dr. Cassie Nguyen's presentation at the 2018 ECDGA Patient and Family Gathering

18:54

Treatment Options with Dr. Ronald Go at the 2018 ECDGA Patient and Family Gathering

30:13

The Drug Trial Process with Dr. Eric Jacobsen in 2018

15:19

Anaïs Roeser's Presentation at the 2018 ECDGA Medical Symposium: Orlando Fl.

20:59

Julien Haroche at the 2018 ECDGA Medical Symposium

18:11

Gordon Ruan Presentation at the 2018 ECDGA Medical Symposium Orlando

21:01

Dr. Gaurav Goyal at the 2018 ECD Global Alliance Medical Symposium

01:59

Erdheim-Chester Disease Patient on Rare Disease Day 2017

14:45

2 Insights into the Cell of Origin for the Histiocytoses Using Patient Derived Xenograft Murine Mo

14:58

6 Tailoring Treatment for Erdheim Chester Disease Focus on ECD Marina Ferrarini

19:30

9 Clinical Molecular Profiling to Detect Targetable Alterations in Archival Tumor Tissue and Cell fr

12:51

12 Efficacy of Cladribine 2 CdA in the Treatment of Erdheim Chester Disease ECD Ronald S Go

17:33

10 Elevated CSF Osteopontin and Circulating Cells with BRAF Mutations in Patients with Langerhans Ce

11:25

11 Management of ECD Symptoms and Side Effects of Treatments Corrado Campochiaro

09:36

14 Superior Efficacy and Equivalent Safety of Double dose Anakinra in Erdheim Chester Disease Ach

11:49

18 Encouraging activity of MEK inhibitor trametinib in patients with Erdheim Chester disease irrespe

10:48

22 Adult Onset Infratentorial Leukoencephalopathy as Presenting Manifestation of Erdheim Chester Dis

14:01

23 MRI evidence of cardiac involvement in Erdheim Chester Disease Augusto Vaglio

41:08

26 Proposed ECD GWAS Study

20:33

25 ECD Patient Registry: Community Tool for Retrospective Multi Center Outcome Analyses

17:16

24 Endocrine manifestations in Erdheim Chester disease Carine Courtillot

05:58

1 Medical Symposium Welcome Julien Haroche

01:16:14

ECD Studies & Trials Panel - 2016 Erdheim-Chester Disease Patient & Family Gathering

48:07

Doctor Question & Answer Panel - 2016 Erdheim-Chester Disease Patient & Family Gathering

04:12

Welcome - 2016 Erdheim-Chester Disease Patient & Family Gathering

21:34

ECD Skin Issues - 2016 Erdheim-Chester Disease Patient & Family Gathering

22:09

ECD Scan & Radiology Panel - 2016 Erdheim-Chester Disease Patient & Family Gathering

16:02

ECD Lung & Heart Issues - 2016 Erdheim-Chester Disease Patient & Family Gathering

24:11

ECD Neurological Issues - 2016 Erdheim-Chester Disease Patient & Family Gathering

22:51

Renal & Ureteral Involvement in ECD - 2016 Erdheim-Chester Disease Patient & Family Gathering

10:48

Endocrinological Consequences of ECD - 2016 Erdheim-Chester Disease Patient & Family Gathering

03:05

INTEC | Juvianee Estrada Veras Egresado Destacado 2016

31:31

ECD Volunteer Stories - 2015 Erdheim-Chester Disease Patient & Family Gathering

28:17

The Power of Patient Groups - 2015 Erdheim-Chester Disease Patient & Family Gathering

27:08

Facing Key Spiritual Issues - 2015 Erdheim-Chester Disease Patient & Family Gathering

30:19

ECD and the Heart - 2015 Erdheim-Chester Disease Patient & Family Gathering

21:32

ECD and Social Security Applications - 2015 Erdheim-Chester Disease Patient & Family Gathering

14:01

ECD and Insurance Approval Issues - 2015 Erdheim-Chester Disease Patient & Family Gathering