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~BIBLIOGRAPHY~
Garb, H. N. (2021). Race bias and gender bias in the diagnosis of psychological disorders. Clinical Psychology Review, 90, 102087
McClure, T. (2022, April 26). New Zealand denies entry to autistic daughter of immigrant couple. The Guardian. www.theguardian.com/world/2022/apr/26/new-zealand-âŚ
ASAN. (2023, March 22). Asan condemns restrictions on gender-affirming care. Autistic Self Advocacy Network. autisticadvocacy.org/2023/03/asan-condemns-restricâŚ
Berger, P. L., & Luckmann, T. (1966). The social construction of reality. Penguin Books.
Foucault, M. (1961). Madness and Civilization: A History of Insanity in the Age of Reason.
Crane, S. E. R. (2017). Foucault, disability studies, and mental health diagnoses; a literature review. Journal of Disability Studies, 3(1), 23-28.
Geschwind, D. H. (2008). Autism: many genes, common pathways?. Cell, 135(3), 391-395.
Arnold, L. (2022), âFirst there is a mountain, then there is no mountain, then there is: whither identity?â in The Routledge International Handbook of Critical Autism Studies. Taylor & Francis.
Baron-Cohen S, Leslie AM, Frith U. Does the autistic child have a "theory of mind"? Cognition. 1985 Oct;21(1):37-46. doi: 10.1016/0010-0277(85)90022-8. PMID: 2934210.
Baron-Cohen, S. (1997). Mindblindness: An essay on autism and theory of mind. MIT press.
Botha, M. (2022), âCommunity Psychology as Reparations for Violence in the Construction of Autism Knowledgeâ in The Routledge International Handbook of Critical Autism Studies. Taylor & Francis.
Gernsbacher, M. A., & Yergeau, M. (2019). Empirical failures of the claim that autistic people lack a theory of mind. Archives of scientific psychology, 7(1), 102.
Descartes (1641), Meditations on First Philosophy,
Yergeau, M.R. Yergeau (2018), Authoring Autism: ââOn Rhetoric and Neurological Queerness, p. 10
Butler, J. (1997), The Psychic Life of Power: Theories in Subjection
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YouTube Comments - 6,061 Comments
Top Comments of this video!! :3
I waited two or three years for my "professional" assessment. The report they sent back after our six hours together was multiple pages long, but the first two things they mentioned is I'm not autistic because I demonstrated imagination and empathy. I'm convinced by that alone that I'm better qualified to diagnose me than they are. Autistics lacking imagination and empathy, while displayed in some, is such an outdated stereotype to apply to everyone to the point of dismissing the possibility of autism if it doesn't apply :P
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Correction regarding 9:46 - This seems to be a common misconception on the Internet. New Zealand does not in fact ban people on the Autism spectrum from immigrating as you suggest. The truth is more complex but the short of it is that most people classified as Autistic would not be barred from citizenship. The actual law on the books is that any individual with a disability that requires medical costs of $NZD81,000 per 5 years (they raised it from 40,000 last year) may be denied, and there have been a few cases over the years where children and adults on the Autism spectrum who require a high degree of care (i.e. nonverbal or extreme sensory processing difficulty) have been denied citizenship due to the cost of their care. I consider those rulings and the ableist policy backward and stupid all the same, but saying that literally anyone with an Autism diagnosis is banned from New Zealand is just plain wrong. I have not been denied on that basis, for example, and I have been living with an ASD diagnosis for a while.
Your heart is clearly in the right place here, but any misinformation, even if unintentional, really harms the point you are trying to make. I hope you can correct this mistake. Have a wonderful day.
3.6K |
"To be declared mentally ill is to be declared non-human" Thank you for saying this. I feel so alienated from my own humanity, having trouble to think of myself as human or even a person, because I am autistic, but my neurotypical family just does not understand how I could possibly think something so dark.
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One of the things that frustrates me is how hard it is to explain that "I don't come across as autistic because I've become very good at learning how to fit in even though it makes no intuitive sense to me". Like, just because I'm very good at coping and masking doesn't mean I'm "normal".
3.7K |
I think this conversation would be massively improved by the inclusion of a number of people who are profoundly disabled by their autism. The reality is that a lot of self-diagnosed people tend to be around the more able end of the spectrum who, quite bluntly, live in a very different world to people who are nonverbal, have an intellectual disability, or other common symptoms we consider in the high support needs range of autism spectrum disorder, as a broader part of the ongoing modern segregation the disabled experience. Unsurprisingly, a lot of these folks aren't on YouTube and TikTok, and the few who are don't end up with hundreds of thousands of followers in social / political commentary bubbles like this. We often talk about platforming the marginalized in leftist social media-based communities, and like, this is really one of those times where it's probably very necessary to do so, because for a lot of people, people who are almost indistinguishable from able-bodied / neurotypical folks have become the representative model of autism, despite the fact that (according to autism research sites like Spectrum) 20 - 35% of people with autism are nonverbal and 25 - 30% have an intellectual disability. While not the majority, those are some heavy numbers, and they never seem represented when it's time to discuss online autism community drama.
2.5K |
My neuropsych saw the binder of printed research I brought to my adult autism assessment. Im 40 and female. and one of her comments was "this is something a lot of my adult autistic patients do, but let's go ahead with the formal assessment." Most validating thing ever <3 studying for the autism test
851 |
my therapist never formally diagnosed me, she told me I have BPD, but she never "put it in the books" so to speak, because with all her experience treating pwBPD she was convinced that through the stigma that comes with that particular diagnosis there was much more to lose with diagnosing it officially, and almost nothing to gain
And she was absolutely right, years later I wanted to transition and a recorded bpd diagnosis could have very well nipped that in the bud, not to mention my drivers license and my ability to hold the kinds of jobs I work in.
860 |
I think what people don't understand is that having the diagnosis doesn't make people start taking you seriously. I got diagnosed with autism earlier this year, at the age of 23, and every time I bring it up to a medical professional, their first words are STILL 'Are you sure? You seem too independent to have autism.' I have the paperwork. It's on my file. I spent the money and did the testing and waited months and months for the results. Now the question has gone from 'Are you sure you think you're on the spectrum?' to 'Are you sure you agree with the test results?'
3.8K |
Oh so thats why ive always related so deeply to your videos. It was the transgender autistic to transgender autistic communication
14K |
Shit, Foucault hits different after you have sat at the psychiatrist's office and known that the person across the desk has the power to decide whether the rest of your life will be a never-ending struggle or not.
I got the ADHD diagnosis and the meds and now I am almost a functional adult. But I will never forget how powerless I felt in that office while a stranger with the right degree decided my fate.
927 |
It's interesting just how much power plays into the doctor-patient relationship. When I was around 23 I had this weird feeling in my stomach one day and was constipated. This was very unusual and I pretty quickly came to the conclusion that I had appendicitis. I figured I would wait until the morning to see if the feeling went away before I went to the ER for no reason. Well, the next morning, I was in more pain, so I went to the ER. I explained what was happening and said that I was worried I may have appendicitis or something. After multiple routine checks, the doctor was pretty convinced that I was fine and they told me to stay off the internet. But I wasn't having it. They decided to do a CT scan and once the results came back, wouldn't you believe, I had appendicitis! I was immediately rushed to surgery after almost being sent home.
The lesson I learned is, doctors don't really like when you diagnose yourself and are far less likely to take you seriously if you combat their ego. (even if its wrong!)
(also, thanks to hbomberguy for the suggestion. Keep up the great work!)
966 |
one gripe i've always had with the demedicalization approach in regards to neurodiversity is that people often use it to discount the suffering present in many neurodivergent people's lives that stem from our interactions with the outside world.
It almost feels more dehumanizing to hear people say "oh you're not any less capable than anyone else, you're just a little different" when i can't even go to target without noise cancelling headphones because if they play the wrong song on the store radio, i'll have a meltdown. Like please just acknowledge my struggles and need for support. I do really feel like i am being thrown under the bus for the sake of being progressive sometimes- I also wanna say that there seem to be a lot of people who hold the view that being seen as disabled is somehow inherently dehumanizing, which is extremely extremely ableist
1.4K |
What Iâve noticed more as Iâve got older is how scared parents are if an autism diagnosis. I learned recently that, although recommended several times, my mom always refused to get my diagnosed.
My partners mom refuses to believe that they have autism, even after being diagnosed.
Itâs sad because both are truly good people but are very stubborn in this one particular area
1.7K |
Unironically those damn "ADHD trait" TikToks got me to seek professional help. Got diagnosed with ADHD at age 18 after YEARS of struggle. Finally I am medicated and oh my god, I quite literally owe my sanity to TikTok. Turns out being a meth baby can cause ADHD, and turns out I can get HELP for it! My grades are better than ever, I can actually fucking function in day-to-day life, I can KEEP A JOB!!!!! I can not believe a stupid clock app literally saved my school life, work life, social life, and probably other aspects of life that idek about! Oh and I guess Vyvanse plays a part in it too...
304 |
My mother has been using her status as a special ed teacher to prove to me I am not autistic, telling me that autistic people are incapable of change or of controlling themselves, and the fact that I do this is an indication that I cannot be autistic. She tells me that she used to think I was when I was a toddler, but upon researching âgifted childrenâ, decided that that was a much more preferrable thing for me to be. I have also heard her use the r slur a couple times. Her attitude conveys an utter lack of respect for autistic people, and, regardless of how she has impacted me in this way (which I am incredibly wounded by her actions and attitudes], I am beyond concerned to have someone like this working with autistic people. I know there are worse people out there who have done worse things, but we could be doing way better by autistic and other neurodivergent and disabled people by hiring candidates who do not have such a backwards way of thinking. Also having actually autistic people (who tend to have a more personal and compassionate understanding of neurodivergence than neurotypical people do] dominating the field would be ideal.
436 |
8:52 this is true to a literal painful degree. I'm a white guy, and the a few months after transitioning to male my teachers started to recommend that I get tested for autism. Traits I have expressed all my life, leg tapping, shirt chewing, trouble with processing numbers vocally, overly active pattern recognition, social issues, trouble finding friends, etc, that were normal for a "girl" are now things that are "obvious" as autism in a guy. medical system is fucked.
3.6K |
I was such an enigma to my doctor as a third grader, they wrote multiple pages of analysis that basically said âidk this looks a lot like autism but Iâm gonna go with dysgraphia bc she held her pencil weirdâ đ
2.4K |
when i was a teenager, my primary care doc i had at the time suspected i had adhd, so he gave me an adderall prescription and sent me on my way. i only took it for a few days because the side effects made me feel awful (but i was able to focus for the first time in a life time the few times i took it)
after seeing a psychiatrist to find a medication to treat adhd that would work better for me, and she just said âif you really had adhd, the adderall wouldnât have affected you that wayâ
so, i spent years thinking that i was just lazy and stupid because a psychiatrist would know what theyâre talking about right?
here i am, over a decade later, on a medication for adhd that works better for me and a psychiatrist who actually listens to me. i donât technically have an âofficial diagnosisâ but he told me once âif you have the symptoms and the medication helps, then whatâs the difference?â
i have no point to this story other than: psychiatrists are wrong sometimes
204 |
âNo using your identity to deflect responsibility,â that right there is one of the most important things for self diagnosing. It only bothers me when people use it as an excuse.
I hate wasting food and a terrible habit I had when living with my parents was that I would put food in the fridge and a family member would move it to the back. Then 2 weeks to 2 years later someone asks me why I even bought it if I wasnât going to eat it. I forgot it was there. It wasnât in front of me so I forgot.
Finally moved out and lived alone. I started forming this habit of putting things only in the front of the shelves. I was one person so I didnât need to use the whole fridge. Surprise, way less food waste. It still happens sometimes when the strawberries fall behind the sour cream but rarely. And then I learned that people with ADHD are taught to do this. To keep things within sight so you remember them when you see them. Clear containers or choosing not to put something behind something else. So maybe I have ADHD or maybe I donât but using some tactics in life that play in favor of people with ADHD has done me some good. Self diagnosing for me was to seek solutions, not seek excuses. Not to tell everyone I have ADHD either
404 |
@thatcher6923
9 months ago
So, I have a sister. She was diagnosed with depression, and only depression when she was around 15. Years later, my parents, her, and me are saying to doctors âIâm pretty sure she has something else guys, can you please help?â And they kept saying âitâs just depressionâ. She had bad impulse control, had a hard time learning and focusing, had anger issues, etc. At this point she had turned to heavy drugs because none of her medication was helping her. And, like, she died a year ago. When my parents were talking to a therapist, the therapist said âyeah, it sounds like she had adhdâ. It was too little, too late. A personal anecdote to prove that sometimes psychiatrists donât do their fucking jobs.
6.2K |