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Invisible Diversity: A Story Of Undiagnosed Autism | Carrie Beckwith-Fellows | TEDxVilnius
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1,263,308 Views • Jul 6, 2017 • Click to toggle off description
What is autism and why is it difficult to get it diagnosed? In her talk Carrie shares her own personal journey towards diagnosis of autism: why it took 35 years, and what are the root causes for such invisible diversity?

Carrie Beckwith-Fellows is a freelance writer and vlogger from England. She has written for various online publications, including The Huffington Post, Autistica, the National Eating Disorders Association USA and her own blog, where she shares the reality of living with autism and Ehlers Danlos Syndrome, a complex and life-limiting illness. Diagnosed as autistic at the age of 35 has allowed Carrie to explore the world again from a new perspective. Aware that a late diagnosis can cause issues with identity, relationships and perception, she launched a website that explores the unique post-diagnosis experience to raise awareness and to support other autists diagnosed as adults.

This talk was given at a TEDx event using the TED conference format but independently organized by a local community. Learn more at www.ted.com/tedx
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Views : 1,263,308
Genre: Nonprofits & Activism
Date of upload: Jul 6, 2017 ^^


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YouTube Comments - 2,610 Comments

Top Comments of this video!! :3

@watersfan

5 years ago

It's interesting how we all have that instinctual feeling of "something is not right" until we get an official diagnoses. I found out when I was 34, and I also strongly detest the high functioning and low functioning labels. The amount of times I've heard "well you've made it this far" makes me want to scream and shake in a corner. My self destructive behaviors started at age 11, and also included an eating disorder. It's masking, and should not be confused with thriving.

4.5K |

@MCP53

5 years ago

And I was 66 before I realised I was autistic. What a relief! A long life of feeling guilt, but now I am just me :-)

2.5K |

@naomistarlight6178

2 years ago

"I am high functioning but my autism is NOT mild" so true! Thanks for saying this! And that we feel emotions INTENSELY.

1.3K |

@kelo7625

3 years ago

"There are some days where I dont get dressed and i dont get washed because those tasks are overwhelming" I have never related to anything so much.

916 |

@Cosmic-Crow

5 years ago

I want to cry. My mother won't recognize that I'm autistic and hearing and watching this is incredibly validating.

2.3K |

@Aluithil

5 years ago

I'm 24. I've been asking myself "what's wrong with me?" for the past two years. I can't describe how relieved I am right now.

1.8K |

@vickielawson3114

3 years ago

I wasn't diagnosed with Asperger Autism until I was 28. I'm 42 and my family STILL doesn't understand it and they still treat me like I'm a defective, shameful, broken person who chooses to be like this. It's heartbreaking and miserable.

1.3K |

@beccavstheinternet8389

3 years ago

As a child in therapy I would say things like "I don't think I'm human". So much of what she just said feels like excerpts from my tortured childhood journals.

898 |

@newfieknees

5 years ago

I was given ECT, too. Your story is heartbreaking.... but so familiar. The "Male" autism criteria is killing women.

1.5K |

@gordonsullivan5031

5 years ago

My son is 12 and autistic and i always try to stop him when he flaps his arms or slaps his chest which was usually when he was excited or happy and he immediately becomes upset,i now know why he does this and I feel like an absolute piece of sh**.I thought i was helping and somehow knew i wasn't if that makes sense, i greatly appreciate this very informative video and will do my best

1.6K |

@robynperrycoe7659

1 year ago

Parents are teaching their children to mask their autism, and it’s dangerous. Thank you, this is fantastic, so clearly articulated.

104 |

@denebvegaaltair1146

1 year ago

I just read a paper written by an autistic woman. When I read the line "tell us that we deserve to be alive", I cried. For the last twenty years of my life, I considered myself and my autistic family worthless. Somehow, just by knowing that I'm not the only one, I feel more brave.

100 |

@kaylasherrard3076

4 years ago

I’ll never forget telling my high school boyfriend, “I have something they haven’t come up with yet.” Truth is they had come up with it, but my mother was also autistic and never knew. My son has his diagnosis, it is now my goal to receive mine & better understand myself for the success of our family. One day at a time.

1.5K |

@lisasherman43

5 years ago

My (female) psychologist who I was seeing to treat depression almost immediately diagnosed me with ASD, which I didn't know I had but it didn't surprise me - in fact I was relieved to finally know what was "wrong" with me. But when I went to get a formal diagnosis for work purposes from a psychiatrist (male, only testing facility anywhere near me), they said that I'm not on the spectrum, because - get this - I drove myself to the testing, made eye contact, and scored high on the intelligence tests they did on me. The psychiatrist talked to me for only 5 minutes and asked no pertinent questions. I know I'm on the spectrum even though the psychiatrist is living in the dark ages.

914 |

@glitterygecko594

3 years ago

I have a social expectations rule book in my mind that I have been subconsciously building on my entire life. The thing I will always find most confusing is when neurotypicals break their own rules that they created and I can never figure out what the exception was.

607 |

@ananananabop

5 months ago

It's incredible how closely the experiences are mirrored of people diagnosed as autistic when they are adults. The shame, the misdiagnoses and wrongful medicating by professionals, the eating d.isorders, the self h.arm, the burnout. It so much unnecessary pain. Sending out lots of love and strength for my fellow autistic siblings. If you're reading this and are hurting, know that I love you very much. Even if I don't know you.

7 |

@TheAmma007

6 years ago

masking is exhausting yes. and after a while.. i forgot who I am

1.1K |

@ellygreen244

5 years ago

I needed this today. My parents won't let me go after a diagnosis, but you know that the day after I turn 18, I'm making an appointment with a specialist.

804 |

@natalie5976

3 years ago

i've never seen a video that encapsulates my experience more, especially with stimming. i vividly remember my dad telling me "stop flapping your hands, people are going to think you're special" and that was the last time i allowed myself to do it. my parents made fun of my meltdowns for YEARS like they were just some funny memory and not traumatic

183 |

@2cents996

3 years ago

My daughter is Autistic. This gave me chills. She's "on the spectrum" they say. She's "High-functioning" they say. Yet, to see your speech confirms my own subconscious truth.... That does not mean the symptoms are any less. She suffers greatly some days. Today is one of those days as she gets off the bus from school. Social anxieties and the inability to keep up with grades and pay attention leaves her mentally and physically exhausted and meltdown ready. She is tired. I am tired. 😪

146 |

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