The video discusses the challenges caregivers face and emphasizes the importance of self-care for their well-being.

Service changes over time as the person changes, the person's disease changes and their caregiver needs change.

One of the really crucial things here is about coaching the families, the caregivers of people with early onset, on self-care, Because if they don't take care of themselves, they will not be able to take care of this person and their family may fall apart. in other relationships, problems occur.

So it's about pacing and making sure that we give that family caregiver or caregivers permission to take care of themselves. Meet with friends, Don't completely isolate and negate your own needs, because what happens is that caregiver, when they isolate their whole world, becomes this caregiving paradigm, along with all the other responsibilities that they have.

They get depressed, And when they get depressed, their self-esteem plummets. And when that happens now, it's this vicious cycle, because they get more depressed and hence the more their self-esteem is plummeted. So isolation needs to be broken.

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