09:37
Unlock Instant Migraine Relief With CEFALY // Easy Step-by-step Instructions (*company Verified*)
14:20
Debunking Migraine Myths For Moms // A Must-watch OPEN LETTER On Parenting With Migraines #MHAM
08:13
Top 3 Reasons to Treat MIGRAINE WITHOUT MEDS // Why I Tried Neuromodulation
21:03
Gentle Nighttime Routine for MIGRAINE Relief with CEFALY // FLEXIBLE for Moms with Chronic Migraine
10:50
My Changing Self-Perception in MOTHERHOOD // Big Personal TRANSFORMATION & Lessons from Therapy
21:56
HOW WE MET // the Brain Leak Doctor who CHANGED MY LIFE with Patching
18:12
Babies 1 YEAR APART // The PROS and CONS of a Close Age Gap
13:05
UPDATED Service Dog TASK LIST for POTS (or Orthostatic Hypotension, Neurocardiogenic Syncope, etc)
16:14
The MAGIC WAND Question: Chronic MIGRAINE Edition // Migraine is MORE THAN PAIN
16:42
Walker vs Service Dog for POTS ā What Really Works? // Which Mobility Aid is Right for You?
15:43
Medical PROCEDURE BURNOUT // The BRUTAL TRUTH about dealing w/ Chronic Illness & Multiple Surgeries
12:34
Plan for Patch Procedures 4 and 5 // My Journey with a CSF Leak
09:13
Blood Test RESULTS // Service Dog Buddy's PRE-OP BLOODWORK before Dog Tumor Surgery
07:35
BUDDY is SICK // Is it the big "C" word???
09:15
Linking STRESS and MIGRAINE // The Biochemical CONNECTIONS to the Most Common Trigger!
20:12
From Migraine Jen to CLARITY // It's HARD Rediscovering Life During Recovery!
23:34
I Flew ALONE with a TODDLER (who I could not pick up) // We got lowkey STRANDED!!!
11:16
UPDATE: 1 week AFTER the TARGETED PATCH // How's the RECOVERY going???
13:00
DATE DAY: Treetop Adventure with a Vestibular Disorder // BEFORE the BLOOD PATCH Procedures
13:37
EPIDURAL BLOOD PATCH vs FIBRIN GLUE // What Are the ADVANTAGES and DISADVANTAGES???
13:27
My CT Myelograms were FAR from 'NORMAL' // Another Fibrin Blood Patch NEXT WEEK!
12:13
Post CT Myelogram // The RECOVERY Period (How long did it take?)
19:26
ALL ABOUT the CT Myelogram Procedure // My Experience, What to Expect, and How to Manage Pain
13:26
Day of CT Myelogram // Procedure VLOG
12:05
CT MYELOGRAMS + PATCH GAME PLAN // Flying Out Tomorrow for my Next 3 Procedures!
17:04
MIGRAINE MAMA vs. TODDLERS // How I use TODDLER COMMUNICATION SKILLS to Take Care of my Kids
08:52
BABY GIRL NAMES we LOVE but didnāt use // Angel Baby's REAL name + earthside Babiesā ALMOST NAMES
18:24
Migraine Mom TIPS // Managing MIGRAINE TRIGGERS with TODDLERS
10:18
POTS TIPS // Advice for New POTS Patients
19:55
Q&A // Blood Patch Update, Service Dog Insights, Baby #3 Musings, and More!
26:38
Symptoms of HIGH vs LOW Cranial Pressure // How I can FINALLY tell the difference
13:23
FOUR STAGES of a MIGRAINE ATTACK // The SYMPTOMS I get in each Migraine Phase
18:06
Does AI Understand the REALITY of Living with CHRONIC MIGRAINE? (by a Migraine Patient of a decade)
14:52
Procedure 2 BOOKED // 2 CT MYELOGRAMS & a Blood Patch as my NEXT STEPS! (Spinal CSF Leak Diagnosis)
16:15
RECOVERY PART 2 // The Symptoms that my First Blood Patch FAILED
16:50
Blind BLOOD PATCH RECOVERY // Part 1: Procedure Day through 2 weeks Post-Op! (*see pinned comment)
09:21
How I PLAY TAG with Service Dog BUDDY! // Dog training & enrichment idea
21:59
*SHOWING* How I Get Myself OUT OF A SLUMP // A rough day 2 weeks post-blood patch
10:00
BREAKING FASHION BOUNDARIES // 5 ReasonsĀ BackwardĀ PantsĀ DOMINATE Style! (chronic migraine awareness)
19:16
My First BLOOD PATCH PROCEDURE // What a Blood Patch is REALLY Like! (non-targeted epidural patch)
16:54
PAPERWORK to FLY with a SERVICE DOG // Filling out my USA DOT Airline Forms
14:41
Medication Side Effect HORROR STORIES
09:38
"MEMORY LOOPS" // An Undeniable EXAMPLE from YouTube Behind the Scenes!
18:48
What is a BLOOD PATCH? // Showing Why I'm Getting 3 of Them (pre-patch symptoms caught on camera!)
18:11
How to STAY POSITIVE with MIGRAINE // Focus your LIMITED ENERGY on these ***3 things***
10:48
NO PETS ALLOWED // These "Service Dogs" were BARKING and JUMPING on the Employee at Kohl's
11:55
My FIRST Whole Body CRYOTHERAPY // Is Cold Therapy good for POTS?
11:42
"I think I was wrong" // WAVERING on Blood Patch vs CT Myelogram Debate (during CSF LEAK LIMBO)
17:40
My Spinal CSF Leak- BIGGEST NEWS YET!! // Choosing between CT MYELOGRAM vs. Non-Targeted BLOOD PATCH
13:05
How EXERCISE to REDUCE MIGRAINE Frequency // Science-Backed Strategy
15:31
How to RELIEVE THE OVERWHELM // Chronic Migraine & POTS with two TODDLERS
11:20
CONFIRMED: A BLOOD PATCH is in my Future!?! // the BEST Spinal CSF Leak Diagnosis Update *emotional*
10:15
The VIRAL Gentle Mouth EGG CHALLENGE // Service Dog Buddy goes rogue LOL
13:46
Fly with a SERVICE DOG // How To Do AIRPORT SECURITY SCREENING with a Service Dog
16:20
FASCIAL COUNTERSTRAIN for IIH // A Therapy that LOWERS my Brain Pressure??!
13:27
STORY: Service Dog Makes SMART MISTAKE (with real TASKING caught on camera!!)
17:44
Adult TONGUE TIE RELEASE Update // What happened??
09:34
How I Take MAGNESIUM for MIGRAINE & POTS // All about Magnesium & my fave Magnesium Drinks!
19:34
Infant POTTY POSITIONS // Elimination Communication techniques with your baby
21:10
Misdiagnosis and LOSS OF SELF with Chronic Illness // Good news gone bad
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About
Hey guys, welcome! I'm Jen, happily married mama to two little girls and service dog Buddy. I am a suspected CSF leaker with diagnosed hypermobility and high cranial pressure (IIH), chronic complex migraine with multiple aura, POTS/dysautonomia, orthostatic hypotension, and Raynaud's. I am disabled daily by these conditions, but IĀ don't always "look" nor "act" sick.
On this channel, I'm spreading awareness about DIFFERENT types of disability... they don't all look the same! I'm also dropping info, sharing my tips, and generally going about normal life... proving by example that you can live happily with chronic illness. I hope you enjoy learning a bit about what it's like to live in my strange shoes.
BTW, nothing here is medical advice. I have a degree in biochemistry but not in medicine! My channel is anecdotal and meant to help you find areas to do more of your OWN research. Always talk to your doctor.
And of course, I hope you enjoy watching!
Love and hugs,
Jen & Buddy
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