01:27:51

Lymphoedema Awareness Event in conversation with Dame Judi Dench CH DBE FRSA

01:30

🧫 L'Histoire des cellules HeLa - partie 3

01:28

🧫 L'Histoire des cellules HeLa - partie 2

01:19

🧫 L'Histoire des cellules HeLa - partie 1

10:24

A Conversation with Dr. Rusty Kelley on Venture Philanthropy I The Retinal Degeneration Fund

05:57

A Conversation with John Higgings on Venture Philanthropy I The Brain Tumor Investment Fund

32:36

UCSF Rare Disease Symposium 2024: a conversation with Dr. David Fajgenbaum

09:43

A Conversation with Dr. Enrique Lin Shiao on Venture Philanthropy I The Cystic Fibrosis Foundation

06:15

A Conversation on Venture Philanthropy with Dr. Stephanie Oestreich I Myeloma Investment Fund

29:54

Increasing access to Rare Disease, by B. Frank Gupton, Ph.D.

29:37

“National Financial Impact of Rare Diseases”, by Stuart Portman, MPH

27:18

Patient-Driven Science & Multi-Stakeholder Collaboration, by Ronald J. Bartek

04:02

Rare DIseasae Conversations (September series) - TEASER

05:20

Webinar – Advocacy in rare disease: Closing the funding gap (teaser)

16:18

Rare Disease Workforce: Planning for today and 100 years from now - Debra S. Regier, MD PhD

17:07

Rare Disease as a Unique Field of Medicine - Pr. Marshall Summar

03:21

Rare Disease Conversations - Teaser

05:12

Advocacy in rare disease: Crafting the public narrative - Webinar (teaser)

05:38

Advocacy in rare disease: Surveying the landscape (TEASER - Free Webinar)

43:39

Understanding and Addressing Health Disparities in Sickle Cell Disease

19:02

Curative Therapies for Sickle Cell Diease

04:39

Rare Disease : Innovations in Diagnostics and Therapeutics (part 3) : Sickle Cell Disease - TEASER

05:07

Webinar – Humanizing the support of patients living with a Rare Disease (TEASER)

04:40

The urgent need to internationalize databases for rare disease patients - FREE WEBINAR (TEASER)

20:58

LECTURE - Defining a New Future for People with Rare Diseases

31:54

LECTURE - n-Lorem: Meeting the Needs of n-1 Patients One Patient at a Time (Ultra-rare disease)

32:24

Negotiating the Challenges of Therapeutics Discovery for Rare Diseases - FREE CONFERENCE

04:28

Rare Disease : Innovations in Diagnostics and Therapeutics (Cycle #2) - TEASER

04:40

Webinar – Bringing Rare Disease care to underserved populations (TEASER)

04:11

Webinar - Personalized therapies in rare disease (Teaser)

30:46

Rare Disease: State of the Art Diagnostics by Dr. Stephen Kingsmore

14:03

Patient Story: Living with SPLIS by Ehtesham Khalid, MD

37:39

Sphingosine Phosphate Lyase Insufficiency Syndrome (SPLIS): From Gene Discovery to Gene Therapy

34:22

Rare Disease Therapeutics - Soup to Nuts - Conference by Tina Urv

04:18

Rare Disease : Innovations in Diagnostics and Therapeutics (TEASER)

04:22

Webinar - Innovation hubs to address rare diseases - TEASER

13:25

Episode 5 : Jonas et les Enfants de la Lune (Partie 1)

05:07

Reimagining rare disease detection: Who needs to be at the table?

04:15

Uniquely singular: Exploring what it means to be rare (Webinar) - TEASER

04:41

What’s the plan? From detection to diagnosis to treatment of rare diseases - Teaser

04:53

Finding rare diseases in common places

04:32

Webinar - Intelligent detection and diagnosis of rare diseases (teaser)

04:40

Webinar: Neonatal testing for rare diseases

03:53

Webinar: Detecting rare disease: Revealing the methods, motivations, and implications

03:23

The poor diagnosis of rare diseases (webinar)

03:55

Webinar: 7,000 challenges: the basis and burden of rare diseases

11:43

La Pénicilline, Quelle(s) Histoire(s) ! - Partie 1

11:41

L'Acromégalie, Quelle(s) Histoire(s) !

08:38

Les plaquettes font barrage

02:41

Webinar "Mistakes, missteps, and lessons learned: How we stop the coronavirus"

13:28

La Peste d'Athènes, Quelle(s) Histoire(s) !

15:52

Le Racisme Scientifique, Quelle(s) Histoire(s) ! - partie 2

16:21

Le Racisme scientifique, Quelle(s) Histoire(s) ! - partie 1

02:23

Webinar "Vaccine matters : can we cure coronavirus ?

09:13

La Peste, Quelle(s) Histoire(s) ! - dernière partie

08:03

La Peste, Quelle(s) Histoire(s) - partie 2

10:35

La Peste, Quelle(s) Histoire(s) !

12:47

Le Coronavirus expliqué aux enfants

14:33

Le Cancer, Quelle(s) Histoire(s) ! - Dernière partie

10:06

Le Cancer, quelle(s) Histoire(s) ! - partie 3