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Spinal Muscular Atrophy UK @UCveCR1T5w10tguXIl9fSILg@youtube.com

374 subscribers - no pronouns :c

SMA UK support and empower those affected by Spinal Muscular


02:58
Resonate 2024!
02:03
Picnic in the Parks 2024
07:57
SMArt Moves
39:07
Ep 40: Celebrating Pride
42:54
EP39: Festivals and Gigs
34:57
Ep 38: #KnowNoBounds making the outdoors more accessible
01:28
Marathon in May 2024
45:08
Ep: 37 Transport for All in 2024
03:11
International Wheelchair Day
42:52
Spinraza and Risdiplam MTA webinar : Together we are Stronger
31:04
Update on Zolgensma in the UK
29:48
Ep 36: Resonate 2023 Lookback
03:22
January 2024 update: Looking back, looking forward
47:45
Ep: 35 Festivities & Highlights of 2023
45:57
Ep34: Positive Mindset & Career Aspirations
44:50
Exercise and SMA – getting it right for you
01:56
The 2023 Big Give Christmas Challenge for SMA UK
49:15
Ep 33: SMA Advocacy & Social Media
36:21
An Update on Treatment for Adults who have SMA
58:16
The Development of Cognition and Communication Skills in SMA Type 1
39:57
Ep 32 Keep your goals away from the trolls
45:02
Ep 31: Summer Holidays with SMA
01:05:16
UK SMA Newborn Screening Alliance Webinar
58:40
Update on treatments for children webinar
49:15
Diet Webinar
46:35
Ep 30: living with a long term condition and Mental health Part 2
45:28
Ep 29: Mental Health and living with a long term condition
36:25
Newborn Screening | March 2023
29:49
Ep28:Transitioning into School Part 2 (Secondary school)
15:40
Portia in Prague | SMA Europe Annual Meeting
43:30
Transitioning into School Part 1 (Nursery to Primary) #Ep27
01:37
Mighty May for SMA UK...✨
03:00
The UK SMA Patient Registry are collecting PROMs...
01:01
Tea time with Ollie 🍅✨
44:21
The State of Care - One Year On - Living With SMA Podcast #Ep26
50:10
Unleashing the Potential of Sport - Living with SMA Podcast #Ep25
26:31
Blood sugar control during illness: nutritional management for children with SMA.
03:36
January 2023 Update: 'Looking Back, Looking Forward’
37:29
How to surprise your family at Christmas - Living with SMA PODCAST #24
27:43
New Research Findings - The Amino Acid Diet
28:56
Update on Zolgensma in the UK November 2022
51:24
Social Media - Living with SMA PODCAST #23
52:08
The Right Mindset - Living with SMA PODCAST #22
01:56
SMA UK’s Big Give Christmas Challenge 2022
00:41
SMA UK ON BUCKS RADIO!
22:21
(PART 2) Higher Education, University and the transition into employment
26:32
(PART 1) Higher Education, University and the transition into employment
45:18
Impact: SMA UK – Milestones, projects and future plans for SMA UK
18:37
(PART 3) Disability & Education - Living With SMA PODCAST #20
10:59
(PART 2) Disability & Education - Disability & Education - Living With SMA PODCAST #20
15:02
(PART 1) - Disability & Education - Living With SMA PODCAST #20
15:15
(PART 4) SMA Life Through the Ages - Living With SMA PODCAST #19
11:34
(PART 3) SMA Life Through the Ages - Living With SMA PODCAST #19
18:06
(PART 2) SMA Life Through the Ages - Living With SMA PODCAST #19
15:08
(PART 1) SMA Life Through the Ages - Living With SMA PODCAST #19
09:47
(Part 3) You've Got a Friend in Me - Living with SMA PODCAST #18
16:40
(Part 2) "RELATIONSHIPS ARE NEVER A ONE WAY STREET'' - Living with SMA PODCAST #18
18:51
(Part 1) You've Got a Friend in Me - Living with SMA PODCAST #18
19:06
(Part 3) About Toilets - Living with SMA PODCAST #17
15:49
(PART 2) About Toilets - Living with SMA PODCAST #17