03:42
International Pompe Day 2024: Every Move Counts
04:22
Happy International Pompe Day from the Italian Pompe Community
01:44
Pim Pijnappel in conversation with Tiffany House
00:44
Ryan and friends say HI Pompe Day
07:15
Priya Kishnani talks with Tiffany House
05:56
Nina Raben in conversation with Tiffany House
09:32
Pompe Voices from France
04:00
Tiffany in conversation with her sister and family
05:09
New Zealand Pompe Network
03:54
Pompe Journeys: Danish family
13:18
Experiences from Pompe Association in Japan
05:11
IPD 2022 AMDA
12:19
Father and Son discuss PompAbility
00:51
Talent of Pompe Contest 2018: Natasja Keckhoven-Tesselaar
02:09
Talent of Pompe Contest 2018: Samuel Merrill
16:04
Talent of Pompe Contest 2018: Archie Whitby
03:28
Talent of Pompe Contest 2018: Yuki Arakawa
01:29
2015 "Pause for Pompe" - Tiffany House - Pause for Pompe at the Alamo
01:10
2015 "Pause for Pompe" - Brandon K Mancine
00:58
2015 "Pause for Pompe" - Marsha Reller Zimmerman
01:17
2015 "Pause for Pompe" - Wilma Treur
01:27
2015 "Pause for Pompe" - Mikayla B
00:47
2015 "Pause for Pompe" - Genzyme Corp.
00:54
2015 "Pause for Pompe" - Andrea House Faris
01:57
2015 "Pause for Pompe" - Tiffany House
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About
The International Pompe Association (IPA) is a federation of Pompe disease patient's groups world-wide. It seeks to coordinate activities and share experience and knowledge between different groups.
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