45:32
RARE-X Information Session April 2023
01:06:33
RARE-X General Information Session - Recorded March 2023
00:56
How to upload Genetic Reports on RARE-X (One Minute)
06:08
How to upload Genetic Reports on RARE-X
28:22
RARE-X Lunch & Learn - "How To Tell Your Story Through Data"
01:02
Dr. Wendy Chung explains the importance of uploading genetic reports on RARE-X
09:26
What is the Xcelerate RARE Open Science Data Challenge
23:03
RARE-X General Information Session - Recorded 11-15-22
03:29
RARE X GDPR Overview
12:17
RARE-X October Science & Research Update
44:09
RARE-X Exchange - Collaborative Research Network Commission for Complex Copy Number Variants
41:38
RARE-X Exchange - Built to Accelerate - disease characterization, progression models, road mapping
29:16
RARE-X Exchange - RARE-X - Leveraging What’s ahead - RARE-X CEO Charlene Son Rigby
30:02
RARE-X Exchange - Open Science Data Challenge - Neuro + Case Study: ALS Kaggle Challenge
47:50
RARE-X Exchange - The Future is Now: Realizing the Possibilities of Patient Driven Research
53:37
RARE-X Exchange - N-of-1 Therapies - The Promise and Opportunity
29:30
RARE-X Exchange Panel - Can Big Data Supercharge Research for 10K Rare Diseases?
01:05:48
RARE-X Exchange - Opening Keynote: When Rare Disease Becomes a BIG Data Opportunity
06:42
2022 Exchange Wrap Up
11:57
RARE-X Science & Research Roundup - Aug2022
03:56
Privacy and Security for Patient Data Collection
02:56
Why participate in data collection?
05:50
Data Standards and RARE-X
02:05
RARE X wishes everyone a Happy New Year!
03:20
What is Data Governance? A RARE-X Definition Series Video
28:44
Megan O'Boyle - ORPHAN DRUGS & RARE DISEASES 2020 - 11-19-20
03:43
RARE-X Definition Series: Real World Data and Real World Evidence
01:22
What are the next steps for RARE-X? What can you do today?
02:37
What is RARE-X building? Where is RARE-X today?
01:27
Why is RARE-X so important?
03:02
What is RARE-X? An Introduction.
02:11
RARE-X - Federated Data for Patients and Researchers
07:20
Introduction to RARE-X
X
About
PATIENTS' DATA POWERING PROGRESS
RARE-X is building the largest data collection and federated analysis platform in rare diseases.
By enabling the gathering, structuring, and sharing of critical patient data at scale, we can accelerate diagnosis, disease understanding, and development of future treatment and cures.
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