10:43

RARE REV-inar episode 012- Part 1 - Inherited metabolic disorders (IMD's)

30:18

RARE REV-inar episode 012- Part 2 - Barriers to diagnosis of neurometabolic disorders

22:10

RARE REV-inar episode 012- Part 3 - Increasing awareness of neurometabolic disorders

17:29

RARE Rev-inar Episode 013 Rare Caregivers Report Part 1 The role of the caregiver

19:28

RARE Rev-inar Episode 013 Rare Caregivers Report Part 2: The impact on the caregiver.

28:10

RARE Rev-inar Episode 013 Rare Caregivers Report Part 3: Support for the caregiver.

23:19

RARE REV-inar episode 010 - Burned out and Breaking? Part 1 - What is burnout?

25:02

RARE REV-inar episode 010 - Burned out and Breaking? Part 2: Charity leader burnout

22:45

RARE REV-inar episode 010 - Burned out and Breaking? Part 3: Industry burnout

20:18

RARE REV-inar episode 010 - Burned out and Breaking? Part 4: Solutions to burnout

20:13

RARE REV-inar episode 011 - Women in RARE part 1

15:24

RARE REV-inar episode 011 - part 2 - Women in RARE: driving change together

28:20

RARE REV-inar episode 011 - Part 3 - Women in RARE: interdependence in the RARE ecosystem

24:48

RARE REV-inar Episode 005 Understanding aTTP Part 3 -Support networks for aTTP.

21:34

RARE REV-inar Episode 005 Understanding aTTP Part 2 - Living with aTTP.

14:55

RARE REV-inar Episode 005 Understanding aTTP Part 1. What is aTTP?

27:43

RARE REV-inar Episode 009 Understanding cold agglutinin disease (CAD) Part 3 - Support networks CAD

21:07

RARE REV-inar Episode 009 Understanding cold agglutinin disease (cad) Part 2 - Living with CAD.

17:25

RARE REV-inar Episode 009 Understanding cold agglutinin disease (cad) Part 1 - What is CAD?

04:34

Allegra's Sing Me a Story Song

03:50

Maddie's Sing Me a Story Song

20:34

RARE REV-inar episode 008: Part 1 The power of the patient voice

23:02

RARE REV-inar episode 008: Part 2 The power of the patient voice

18:54

RARE REV-inar episode 008: Part 3 The power of the patient voice

16:49

RARE REV-inar Episode 007 Part 4 Mobile Research Nursing

12:47

RARE REV-inar Episode 007 Part 3 Mobile Research Nursing

18:57

RARE REV-inar Episode 007 Part 2 Mobile Research Nursing

07:48

RARE REV-inar Episode 007 Part 1 Mobile Research Nursing

06:10

RARE REV-inar episode 004 Part 4 Evolving treatments for Gaucher disease: Understanding gene therapy

07:53

RARE REV-inar episode 004 Part 3 Evolving treatments for Gaucher disease: Understanding gene therapy

18:32

RARE REV-inar episode 004 Part 2 Evolving treatments for Gaucher disease: Understanding gene therapy

19:45

RARE REV-inar episode 004 Part 1 Evolving treatments for Gaucher disease: Understanding gene therapy

33:49

RARE REV-inar Episode 006 Part 1: What are gene therapies?

15:18

RARE REV-inar Episode 006 Part 2: Access to and reimbursement of gene therapies.

18:38

RARE REV-inar Episode 006 Part 3: Evaluation and reimbursement of gene therapies for rare diseases.

22:25

RARE REV-inar Episode 006 Part 4: Looking to the future of gene therapies.

06:34

A Day in the Life with Stiff Person Syndrome (SPS) Advocate, Lea Jabre

22:08

RARE REV-inar Episode 003 Rare Patient Voice - Part 2

17:21

RARE REV-inar Episode 003 Rare Patient Voice - Part 1

19:45

RARE REV-inar Episode 003 Rare Patient Voice - Part 3

20:51

RARE REV-inar Episode 002 ANCA-associated vasculitis. Part 1 - The HCP perspective.

16:22

RARE REV-inar Episode 002 ANCA-associated vasculitis. Part 2 - Lived experience.

15:09

RARE REV-inar Episode 002 ANCA-associated vasculitis. Part 3 - Patient support groups.

17:15

RARE REV-inar Ep 001 Part 1 Early Access Programmes

15:18

RARE REV-inar Ep 001 Part 2 Early Access Programmes

17:18

RARE REV-inar Ep 001 Part 4 Early Access Programmes

25:28

RARE REV-inar Ep 001 Part 5 Early Access Programmes

17:49

RARE REV-inar Ep 001 Part 3 Early Access Programmes

00:23

RARE Revolution Magazine - RARE Bones Coming Soon...

01:40

RARE Revolution Sign Language Awareness

11:20

RARE Youth Revolution Myth Busters 2020/21

01:37

28 Days of RARE for Rare Disease Day 2021

01:20

RARE Revolution Magazine Highlights of 2020

00:45

Merry Christmas from the team at RARE Rev!

00:30

Eddison Explores...Ted's Time

09:10

Me, Myself and Eye—A Memoir: Dan Jeffries

05:03

RARE Employment Team Top Tips

00:33

Eddison Explores... RARE equipment (Aug 2020)

05:05

Living with hyperacusis—Tiffany's story

00:19

Eddison Explores...Since I`ve been gone (July 2020 - shielding)