Welcoem to posts!!
in the future - u will be able to do some more stuff here,,,!! like pat catgirl- i mean um yeah... for now u can only see others's posts :c
Happy BWS awareness day 💫 Our annual video featuring the faces of BWS is waiting for you! Watch, share & start the conversation. Today & every day, we stand with the 300 million people around the world who battle rare diseases. #FindYourRARE #BWSawareness #WeareBWS #BWSAwarenessDay #2024BWSAD
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Welcome to RARE. - this is our movement. Our mission is to spread awareness and give a voice to the voiceless. RARE. is more than just rare diseases, it is about living your most RARE., authentic, and honest life where you are and who you are. Most of all, we want to give a voice to all those who are suffering, often in silence, and to let them know they are not alone.
This Channel is RAW. it is REAL. this channel is RARE.
While the mission and vision of RARE. are clear the fact remains is we are human and we are still trying to figure out this life. So here is what this channel will bring you the many sides of living with an invisible, chronic and rare condition.