Improving Europe-wide awareness, understanding, and access to diagnosis and treatment of inherited lipid conditions.
FH Europe Foundation (FHEF) represents the needs of people with familial hyperlipidaemias. Covering both the most common genetic and inherited conditions in the world and the rare conditions, the Foundation acts in the area of advocacy and patient support, drives public health policy improvements and collaborates progressively with leading European and the EU institutions – like the European Commission, the European Parliament and many other EU stakeholders.
FH Europe Foundation is the next stage in the evolution of FH Europe (fheurope.org), the European Network of FH patient organisations. It was initiated in 2015 by a group of leaders of HEART UK, FH Sweden, FH Portugal, FH Norway and FH Austria and supported by a volunteer Steering Group, with an administration centre set up at HEART UK.