CHAPTER 3 - LIVE IN 1 HOUR
youtube.com/live/ELsbmuUswoo?feature=shared
Part two of my story is live now, you can keep up to date by subscribing to @RenMakesStuff |
Link in the comments below
CHAPTER 2... GOES LIVE IN UNDER 60 MINUTES
youtube.com/live/hB-wkb_L90Q?feature=shared
For anyone who missed the live I will be uploading them all to @RenMakesStuff ! Be sure to go subscribe loads of extra bts content etc will start getting put on there soon too!
May is Millions missing month, or M.E. awareness month.
When I was first diagnosed with M.E. the amount of support and understanding of this illness was very low. I was left to suffer with no real explanation as to why. I wasn’t told at the time that this can be a by product of conditions like Lyme, POTS, MCAS, reactivating viruses. I had to figure that out by myself and it took years of trial and error, and treatments that often left me worse off until I was a functional human again. Over a decade later and the landscape still looks very much the same. Sufferers all over the world re left with debilitating, confusing symptoms and are left to drop off the face of the earth, unnoticed, because of the limited energy people have to advocate for themselves.
People go from living fully active lives to trapped in bed, sometimes for decades, with no reasons why.
M.E. a debilitating and cruel condition receives less than 6 times the amount of annual funding than Male Pattern Baldness.
Nancy Kilmas, a proffesor of microbiology and immunology once stated: ‘My H.I.V. patients for the most part are hale and hearty thanks to three decades of intense and excellent research and billions of dollars invested. Many of my ME/CFS patients, on the other hand, are terribly ill and unable to work or participate in the care of their families. I split my clinical time between the two illnesses, and I can tell you if I had to choose between the two illnesses (in 2009) I would rather have H.I.V.’
I first hand experienced the crushing defeat of having a condition that there is little to no support for, and it breaks my heart to know that every day people are dropping off the face of the earth, and in many instances will be left to suffer for years with no full explanation or support.
I am one of the fortunate ones who managed to manage symptoms enough to resume a mostly functional life. I therefore see it as a duty to speak on behalf of people who find themselves in a position where it’s difficult to speak for themselves. I wish I’d had more stories of hope at the time.
Now I’m in a position where I could actively make a dent, even if a small one. Ive spent the last month putting together a detailed account of my story in hopes that it helps the people suffering feel less alone, gives them hope, and also hopefully raises awareness and rattles enough cages to highlight the severity of this illness to the point where more is done for it.
The first instalment will debut on my YouTube and twitch channels tomorrow at 6:15 PM UK time, and will continue every day until the release of my next track ’Troubles’ on the 9th of may.
I hope for the sake of all of us still actively fighting their hardest to participate in life, that this offers some kind of help, because I know what it’s like to feel hopeless.
I love you
Ren
#millionsmissing #meawareness #mecfs #lymedisease
#renmakesmusic
Interview with @KnoxHill premiering in 30 mins on his channel! Go check it out !
This is a bit of a full circle moment because this is the first clip of me that went viral after my stem cell transplant which saved my life. This song will always have a special place in my heart because of that.
Troubles so hard by Vera hall has always been a song that spoke to me more deeply than most.
It’s hard to explain to anyone what I went through and have them understand the horrors of existing in a body constantly at war with itself, the crushing defeat of pinning your hopes on endless treatments only for them to not work, or in some instances make you worse. Missing what were meant to be pivotal years of my life in bed.
Vera hall was born the daughter of a slave, and had to navigate a hostile 1940s America, something I will sympathise with but will never relate to.
The line ‘don’t nobody know my troubles but god’ is so simple, but so powerful to me, every time I sung it I felt it with every fibre of my being.
I really wanted to create a song using the original sample, and we finally got clearance to do so. I decided it would be a fitting musical backing to tell my story for the first time in song.
"Troubles" will be released at 7pm (BST) on the 9th of May, you can pre-order it by clicking the link in the comments below.
Ren
x
Lots of new music cooking ;)
I have been thinking a lot about the position I am in, coupled with the fact I have lived most my life plagued by something most people are lucky enough to never experience. For most of my twenties I lived in a nightmarish purgatory. I have never told my story in full because of the PTSD it caused, and frankly a lot of it is so bizzare its hard to believe. Never the less, because of the position i'm in ive been feeling like it would be irresponsible not to tell it, especially with the precarious situation I'm constantly in with my health. I've spent alot of time latley writing down an account of the years I fell sick, from experiencing psychosis, to medical neglect, to smuggling treatments across borders and teaching myself how to give myself an IV to keep myself healthy. It is my goal to create a video account of my story to share with you in the upcoming weeks. Im in a unique position where my story could help, and can offer a companion and hope to the people who still exist in the cracks beneath the floorboards. I've decided to couple this story with my own take on a song that is very close to my heart. About 30,000 words later and I'm finally close.
Will reveal more as it takes shape
Ren
x
Big up Bandcamp! They have told us that every first Friday of the month they will wave their processing fees which cuts out the middle man, which means 100% of sales go direct to artist, meaning each Bandcamp Friday is the best way to support me and my music right now! In celebration of this I've added demos 1 and 2 and more of my catalogue up there for you to annoy your neighbour's with! Link to Bandcamp in the comments!!
Thankyou again everyone for the incredible support lately. Working very hard on new music which may-be with you soon.
The Official Ren YouTube Page
NEW ALBUM SICK BOI - OUT NOW: www.sickboialbum.com
www.sickboi.co.uk
Follow Ren:
PATREON: patreon.com/renmakesmusic
Website: www.renmakesmusic.co.uk/
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Ren Official Music Videos:
- "Hi Ren" - youtube.com/watch?v=s_nc1IVoMxc
- "Sick Boi" - youtube.com/watch?v=3Q6uCrpzbPY
- "Su!c!de" - youtu.be/n3JNtfi4Vb0
- "Murderer" - youtube.com/watch?v=hscHqw7CIFo
- "Animal Flow" - youtube.com/watch?v=F4mUnmFbVNg
- "Illest Of Our Time" - youtube.com/watch?v=tB-JGSdBerE
- "Jenny's Tale" - youtube.com/watch?v=ZT4PtvgakLU
- "Screech's Tale" - youtube.com/watch?v=HVsrl8zDXnU
- "Violet's Tale" - youtube.com/watch?v=a4R9Vk5_CbU