Channel Avatar

Indo US Organization for Rare Diseases @UCoS_ocdah_q936KRP8-O39A@youtube.com

None subscribers - no pronouns set

IndoUSrare is a humanitarian non-profit 501(C)(3) tax-exempt


01:25:57
Framework for Ayurgenomics in Rare Diseases: Webinar by IndoUSrare
20:56
Trisomy Awareness Month: Insights from Dr. Kruti Varshney on Trisomy Tales
06:52
Trisomy Awareness Month: Insights from Dr. Kruti Varshney on Trisomy Tales
10:36
Exclusive Insights: Neil Kumar on Bridge Biopharma's Global Mission in Genetic Disease
58:03
IndoUSrare Webinar - Rare Disease Day 2024
03:37
In conversation with FDA’s Dr. Peter Marks: Cross Border Collaborations for Rare Diseases
04:56
Watch Dr. Harsha K Rajasimha's impactful TV interview with Global News - CFRE-TV
01:59
IndoUSrare - Celebrating 4th Year: Combating Rare Diseases
05:01
Congratulatory message from Abbey S. Meyers to the Awardees: Indo US Bridging RARE Summit 2023
01:07:34
IndoUSrare webinar - Genetic Counseling for Rare Diseases: A Global Perspective
17:39
Looking Head: Building Bridges for Rare Diseases- Indo US Bridging RARE Summit 2023.
04:39
Teresa Strong: Know about Prader-Willi Syndrome-Indo US Bridging RARE Summit 2023
18:26
Somasekar Seshagiri: Discoveries and Drug Development-Indo US Bridging RARE Summit 2023
27:02
Prof. Sheffali Gulati: Building Bridges for Rare Diseases-Indo US Bridging RARE Summit 2023
07:22
Dean Suhr: Know more about MLD Metachromatic Leukodystrophy-Indo US Bridging RARE Summit 2023
12:09
Mohua Chakraborty Choudhury: Indian Rare Diseases: Policy Interventions & Research
15:47
Avni Santani: Building Bridges for Rare Diseases - Indo US Bridging RARE Summit 2023
48:36
Global Launch Strategies - Indo US Bridging RARE Summit 2023
01:07:58
Orphan Drugs Clinical Trials -Indo US Bridging RARE Summit 2023.
10:12
Sumati Nambiar on "Global Product Development" at Indo US Bridging RARE Summit 2023.
13:25
Sukumar Nagendran: Gene Therapy for Rett Syndrome- Indo US Bridging RARE Summit 2023
14:33
Bhaskar Sonowal: Rare Disease India - Indo US Bridging RARE Summit 2023
21:28
Dr. Isaac Rodriguez-Chavez: Rare Disease Revolution-Indo US Bridging RARE Summit 2023
10:15
Dr. L Swasticharan: Rare Disease India - Indo US Bridging RARE Summit 2023
26:03
Peter Marks: Advancing Rare Disease Gene Therapy- Indo US Bridging RARE Summit 2023.
07:32
Frank Sasinowski : Regulatory Pathways for Orphan Drugs -Indo US Bridging RARE Summit
33:15
Digitization of Rare Diseases Real World Data, Registries, Emerging Markets Indo US RARE Summit 2023
12:56
Dr. Subha Madhavan Quantitative & Digital sciences in BioPharma at Indo US Bridging RARE Summit 2023
14:59
Dr. Paul Mehta: ALS Registry: A multi-faceted Research Platform-Indo US Bridging RARE Summit 2023
13:00
Sophia Zilber: Know more about Leigh Syndrome: Indo US Bridging RARE Summit 2023
19:20
Dr. Amlin Shukla -National Registry of RARE & Inherited Disorders: Indo US Bridging RARE Summit 2023
22:14
Care Pathways: Screening, Diagnosis, Treatment Options-Indo US RARE Summit 2023
09:54
Tamanna Roshan Lal: Landscape Rare Disease Clinical Trials-Indo US Bridging RARE Summit 2023
11:28
Tiina Urv: Rare Disease Clinical Research Network-Indo US Bridging RARE Summit 2023
15:05
Dr. Ashish Gupta - Care Pathways for Rare Disease in the US :Indo US Bridging RARE Summit 2023
17:31
Dr. Harsh Sheth - Genomic Revolution: Tackling Rare Diseases - Indo US Bridging RARE Summit 2023
22:28
Dr.Madhulika Kabra -Care Pathways Screening Diagnosis & Treatments Indo US RARE Summit 2023
43:32
DEIA - definitions and inadequacies and the way ahead :Indo US Bridging RARE Summit 2023
09:49
Teresa Ginger Davis- Real life rare disease Challenges: Indo US Bridging RARE Summit 2023
08:35
Maria G. Della Rocca -Shedding Light on DEIA - Indo US Bridging RARE Summit 2023
02:10
Bonnie Schneider- Real life Rare Disease Challenges: Indo US Bridging RARE Summit 2023
15:48
K Thangaraj - Population Genomics and Public Health India : Indo US Bridging RARE Summit 2023
07:52
Sarah Friedhoff - Defining DEIA in The USA : Indo US Bridging RARE Summit 2023
23:14
Patient and Caregiver Impact: Insights from Indo US Bridging RARE Summit 2023
05:01
Allison Bones- Tackling Tragedy-Grief into action: Indo US Bridging RARE Summit 2023
13:07
Suyog Sathe- Overview of LSD’s In India:Indo US Bridging RARE Summit 2023
23:22
Samir Sethi - RETT Syndrome- Patient Perspective : Indo US Bridging RARE Summit 2023
08:38
Sickle Cell Advocacy: Gautam Dongre's Impactful Speech at Indo US Bridging RARE Summit 2023
13:03
Naveen Baweja - Patient and Caregiver Impact: Indo US Bridging RARE Summit 2023
00:59
Special Message of Support and Recognition from Sen. Cindy Hyde-Smith
00:52
Indo US Bridging RARE Summit 2023 - October 29- 30th, 2023
57:26
IndoUSrare webinar - "Clinical Trials: The Hope to Cure Rare Diseases" by Mohamed Duklef.
02:39
What does IndoUSrare mean to you
06:11
Raising Awareness for Rare Diseases: Dr. Harsha Karur Inspiring Speech | IAICC 30th Anniversary
01:04:55
Covid 19 Vaccine Safety in Rare Disease Patients - Dr Madhulika Kabra and Dr. NK Arora
10:55
Understanding Different Perceptions about Rare Diseases in the Community | IndoUSrare
01:20:25
Rare Disease Day 2023 at IndoUSrare - Fireside Chat with Dr. Abbey S. Meyers
00:56
IndoUSrare | Understanding Perceptions about Rare Diseases in the Community
00:55
Art4Rare 2023 - Worldwide Art Contest | IndoUSrare
00:42
Science4Rare 2023 - Worldwide Science Contest | IndoUSrare