Procedure day #medicalmom #corneliadelangesyndrome #primarychildrenshospital
Don’t worry she will be fine #medicalmom #corneliadelangesyndrome
A win is a win #pediatricoccupationaltherapy #medicalmom
It’s the simple things
Freya is living her best life in Barbecue season
2 years in feeding therapy and making amazing progress
A life with Cornelia de Lange Syndrome can be beautiful
A little preview of tomorrows video
#disabilityawareness #limbdifferenceawareness #medicalmom #corneliadelangesyndrome
#disabilityawareness #limbdifference #medicalmom #corneliadelangesyndrome
Thank you subscribers
Freya’s PT is the best#disabilityawareness #physicaltherapy #corneliadelangesyndrome #limbdifference
So glad she is mine #limbdifferenceawareness #disabilityawareness #corneliadelangesyndrome
February 20, 2024
Happy feeding tube awareness week #limbdifferenceawareness #corneliadelangesyndrome #feedingtube
Never been so proud to see mischief
I’m the lucky one #corneliadelangesyndrome #limbdifferenceawareness #medicalmom
✌️ 2023
December 31, 2023
December 31, 2023
Rubber syringes are the worst!
So sleepy
Making a life we like
Walking does not equal a life well lived. There are so many more important things.
Life worth living #corneliadelangesyndrome #raredisease #disabilityawareness
Non verbal communication
Using a sippy cup with Cornelia de Lange Syndrome
Freya’s growth journey with CdLS
@McDonalds is Freya’s new favorite place
May 6, 2023
Limb difference awareness month
Freya. Norse goddess of war, witchcraft, and love
March 29, 2023
Dads and daughters
Mr potato head OT
Fed is best. Even for toddlers
Rare disease day 2023
February 27, 2023
Ability does not equal worth
February 14, 2023
February 9, 2023
February 8, 2023
February 8, 2023
Stop believing what people tell you life will be like with a disabled child and start living
Freya just showing off
This was by far the best present Freya got for Christmas.
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Navigating a Rare Cornelia deLange Syndrome diagnosis for Freya while still being a Mom of 4
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