18:44

Procedure day at the Childern’s Hospital

01:16

Quick update

14:33

Adventure with Dad

18:08

It was beautiful | How we camp with our disabled daughter

11:00

Ear infections and monster trucks

11:09

Not the news we were hoping for | GI update

09:17

Feeding therapy

12:44

Keeping my disabled daughter cool | Stem fair

12:03

5 years since discovering Freya’s Lucky Arm

10:20

Crossed off our summer bucket list | Lake Day

11:36

What is on our summer bucket list?

14:13

Slow summer nights

07:54

Another doctor visit | Hope we find some answers

13:07

Did she meet her IEP goals? Last week of preschool

15:49

Friday vlog

09:58

Vlog Dentist Greenhouse and a sleeping Freya

08:02

Birthday twins

13:28

I thought this would take years! Freya pushes her own wheelchair

15:34

Cornelia de Lange Syndrome Awareness bags

05:19

Field trip to the farm

08:10

Trying the outdoor pizza oven

12:52

First visit for our pediatric wheelchair

08:20

Freya helps assemble a pizza oven | Graduation day

08:59

The upside of Cornelia de Lange Syndrome

20:13

Tulips

20:52

Another mystery illness | How much does Freya weigh

15:13

Teeth problems and CdLS | Dentist with 4 kids

11:55

16 year anniversary what did we do without the kids?

10:31

Scary morning and a Doctor’s appointment

14:04

Carne asada and a girl that won’t keep her socks on

09:05

Hopefully this makes summer easier | polar products pediatric cooling vest

13:42

Limb difference awareness month | Swimming with the kids

10:49

Easter egg hunt

16:10

Freya would rather eat the dye | Baking soda and vinegar egg dyeing

29:28

Q&A with Freya’s Dad | Being a Dad to a disabled child

10:32

4 kids off to school | Morning routine

12:49

How did it go? Pediatric kidney ultrasound

12:50

Oral sensory seeking behavior explained

13:45

Sunshine and water tables

17:23

Freya favorite place on earth | CdLS clinic questions

14:22

Cornelia de Lange Syndrome clinic

24:14

Packing for my disabled child for a roadtrip

09:23

Finally Freya can go with us Family bike ride

11:54

Do medical parents of disabled children know more than doctors?

08:13

Sleepy Freya | First fire of the year

11:46

Windy day calls for updates

14:21

How much did we chop off? Haircut day

13:55

Frequently asked questions about my daughter with Cornelia de Lange Syndrome

12:21

Keeping Freya entertained Library, lunch, occupational therapy

15:33

What did we talk about? | Parent teacher conference for my disabled daughter

11:13

Does Freya like them? Baby chicks and sunset walks

16:57

Life updates | Freya making messes

10:47

Freya was a natural | Taking our disabled daughter bowling

21:56

Freya had a feeding tube! Our NG tube journey

12:18

I can’t believe she started doing this | More toddler proofing

17:11

Let’s Celebrate! Jesse’s Birthday

17:30

Ortho update | Unusual playtime

04:11

First sick day of the year

10:17

Another appointment! ENT

14:31

Has she gained weight? Weight gain and CdLS