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ERNICA @UCh9TWUGK-OxG29sOBr3oEtg@youtube.com

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The European Reference Network for Rare Inherited Congenital


02:59:44
ERNICA-ESPGHAN Educational Session on Feeding, Nutrition and Growth in Esophageal Atresia Patients
01:05:17
ERNICA research collaboration webinar: Quality of Life in children with CDH
58:42
ERNICA research collaboration webinar: long-gap esophageal atresia
57:58
ERNICA Research collaboration webinar - patient-reported outcome measures
50:08
ERNICA Research Collaboration - Quality of Life
04:33
Transition of care - Parent-child interactions (Dutch subtitles)
04:14
Transition of care - Alcohol and Smoking (Dutch subtitles)
04:52
Transition of care - Sexuality (Dutch subtitles)
01:04:52
ERNICA Research Collaboration - Quality of Life (Webinar 2)
28:21
Transition of care - The development of transition of care programs for colorectal patients
21:49
Transition of Care - A general overview by Silja Kosolove
01:02:07
ERNICA Research Collaboration - Quality of Life (Webinar 1)
01:24:43
ERNICA Research Collaboration - Clinical Trials
20:31
Transition of Care - Patients' point of view
04:52
Transition of Care - Sexuality
04:14
Transition of Care - Alcohol and Smoking
04:33
Transition of Care - Parent-child interactions
18:03
Transition of care: Initial impressions from the Erasmus MC
02:19
The Clinical Patient Management System (CPMS)
04:47
What is small bowel atresia?: An ERNICA animation for parents and families
03:46
Surgical treatment for Hirschsprung’s Disease: An ERNICA animation for parents and families
03:00
LIFE - Lifelong Follow up for Esophageal atresia
03:43
Esophageal Dilation for children with Esophageal Atresia
03:47
Changing the central venous catheter dressing for children at home
04:21
GERD - (GastroEsophageal) REFLUX (Disease) in Esophageal Atresia Patients: An ERNICA animation
04:38
What is Esophageal Achalasia? An ERNICA animation for patients, parents and families
03:08
What is Gastroschisis? An ERNICA animation for parents and families
03:29
What is Omphalocele? An ERNICA animation for parents and families
03:34
Hirschsprung-associated enterocolitis in children: An ERNICA animation for parents and families
03:43
Disconnecting the parenteral nutrition infusion for children at home: An ERNICA animation
04:07
How is Hirschsprung's Disease diagnosed? An ERNICA animation for parents and families
04:59
What is Hirschsprung's Disease? An ERNICA animation for parents and families
03:24
What is Pediatric Intestinal Failure? An ERNICA animation for parents and families
03:24
What is Congenital Diaphragmatic Hernia (CDH)? An ERNICA animation for parents and families
06:45
Hirschsprung’s Disease (Transanal EndoRectal Pull Through)
06:49
Female anorectal malformation with perineal fistula: Posterior Sagittal AnoRectoPlasty
09:52
Male anorectal malformation with recto-urethral fistula: Posterior Sagittal AnoRectoPlasty
04:17
5th ERNICA annual network meeting, CHRU Lille, France
02:57
CAN EAT - Pleje og ernÌring til børn født med esophagusatresi (pü dansk)
02:57
CAN EAT - Soins et nutrition de l’atrésie de l’œsophage: Une animation
02:54
CAN EAT — Essen und Gedeihen mit Ösophagusatresie : Ein Film von ERNICA für Eltern und Familien
02:57
CAN EAT — Cuidadoy Nutriciónen Atresia Esofágica Una animación Ernica para padres y familias
02:57
CAN EAT - Zorg en voeding in Esofageal Atresia: Een ERNICA animatie voor ouders en overige naasten
01:51
Reliance on total parenteral nutrition (TPN) and travelling abroad
03:30
STEPS-EA trial: Esophageal Atresia
02:54
CAN EAT - Care and Nutrition in Esophageal Atresia: An ERNICA animation for parents and families
07:06
Rare diseases: how the European Reference Networks support health professionals
03:01
European Reference Networks (ERNs) for rare and complex diseases