02:35:42

EJP RD Intellectual Property Rights Webinar

07:40

EJP RD Funded Projects: Fabienne Dobbels & Silja Schenk (COCOS-IPF)

03:49

Apply to join ERDERA!

13:10

IMT Use Case: how to conduct a multicenter/multinational clinical trial in rare disease context

01:31

Teaser EJP RD MOOC - Health Data Ethics & Regulatory Frameworks in Rare Disease Research

01:00:13

Key Solutions to Model Longitudinal Natural History Data Application in Ataxia Disease

25:28

IMT Use Case: Using Zebrafish to Model Neurodevelopmental Disorders and Cancer

01:19:14

Interim Analysis, Adaptations and Master Protocols

02:35

EJP RD Funded Projects: Johan De Graaf (Patient Expert)

54:11

Early Phase Trial designs in Rare diseases

03:30

EJP RD Funded Projects: Alessandro Prigione (CureMILS)

01:00:10

Bayesian Methods in Clinical Research

02:32

IMT Use Case: A Toolbox to Support Rare Diseases Clinical Researchers - RD Clinical Trials Toolbox

50:08

Statistical Methodology for Very Small (and Very Large) Studies

06:21

EJP RD Funded Projects: Sarah Weckhuysen (TREATKCNQ)

10:13

The European Joint Programme on Rare Diseases: Transformative stories

10:40

IMT Use Case: How to pitch to Venture Capital

03:18

EJP RD Funded Projects: Veronica Popa (Patient Expert)

01:37:25

EJP RD advanced Webinar - Real World Data, Machine Learning & Deep analytics in Rare Diseases

01:12:07

Advanced Webinar: Item response models for analysing assessments in rare diseases - EJP RD

45:28

RD-Connect Genome-Phenome Analysis Platform (GPAP) Webinar

25:55

IMT Use Cases: Biobanks are at the cornerstone of translational research

46:55

Replicated N of 1 Randomized Controlled Trials for Rare Diseases

03:23

EJP RD Funded Projects: Pr. Pierre Emmanuel Gleizes (RIBOEUROPE)

05:08

IMT Use Case: Project Monitoring and KPIs

05:16

IMT Use Case: Grant Proposal Search.

06:39

IMT Use Case: How to navigate the Innovation Management Toolbox.

10:00

IMT Use Case: How to meaningfully engage with patients in your research.

11:27

IMT Use Case: When to move to clinical trials?

06:55

IMT Use Case: How to best use your animal model?

06:57

IMT Use Case: When to use which animal model?

07:40

IMT Use Case: Introduction to the regulatory framework of medicinal products.

01:01:49

EJP RD Webinar Statistical and Operational Challenges with Master Protocols

02:41

The National Mirror Groups (NMGs) - European Joint Programme on Rare Diseases

11:39

IMT Use Case - Mentoring 1 - Project Management

01:09:30

Advanced Webinar: The Statistical Evaluation of Surrogate Endpoints in Clinical Trials - EJP RD

10:09

IMT Use Case - Mentoring 1 - Innovation Management

10:25

IMT Use Case - Mentoring 1- Data management

07:17

The European Joint Programme on Rare Disease on ASHG TV

10:06

IMT Use Case: TK2 deficiency treatment development

27:20

IMT Use Case: How to apply and benefit from an ODD

11:52

IMT Use Case: EMA support for academic medicines developers - EJP RD

05:05

IMT Use Case: Drug development process - EJP RD

01:53:57

Finding RD Registry Data in VP – Joint EJP RD-ERICA Workshop (09 February 2022)

51:11

PROMs Workshop Part 2: FAIRifying the ERNs PROMs from the start – EJP RD Workshop (15 October 2021)

01:49:27

PROMs Workshop Part 1: Understanding the challenges – EJP RD Workshop (09 September 2021)

01:32:22

Data formats and mapping languages – EJP RD Workshop (29 April 2021)

35:32

CDE Semantic Model (Part 2) – EJP RD Workshop (15 April 2021)

34:02

EUPID implementation and API – EJP RD Workshop (18 March 2021)

35:32

CDE Semantic Model (Pre-workshop meeting) – EJP RD Workshop (25 February 2021)

23:29

Generic Informed Consent for ERN Registries – EJP RD Coffee Round (09 March 2021)

15:41

Introducing the EJP RD resource finder – EJP RD Coffee Round (02 March 2021)

31:40

Practical implementation of ERKReg – EJP RD Coffee Round (23 February 2021)

31:57

Practical requirements for Registry FAIRification – EJP RD Coffee Round (09 February 2021)

28:48

Implementation of the EUPID by ERN registries – EJP RD Coffee Round (02 February 2021)

36:24

Introducing the Orphanet nomenclature & RD Classification – EJP RD Coffee Round (26 January 2021)

37:39

INFRAFRONTIER (Bis) – EJP RD Webinar (15 December 2021)

27:49

MetaboLights – EJP RD Webinar (28 November 2021)

43:36

Orphanet – EJP RD Webinar (25 November 2021)

36:58

Sample Catalogue & BBMRI-ERIC Directory & Negotiator – EJP RD Webinar (27 October 2021)