03:57

What do Zebrafish have to do with Sturge-Weber Syndrome?

08:21

Managing Grief: Coping with the Loss of a Loved one with a Rare Disease

02:37

The Sturge-Weber Foundation Pass the Torch Philadelphia

28:46

Neurology in Sturge-Weber Syndrome Patients

33:07

Glaucoma in Sturge-Weber Syndrome Patients

56:24

Epilepsy Treatment: When to Consider Brain Surgery

24:46

Why consider joining The Sturge-Weber research project: The BVMC

39:43

Dermatology in Sturge-Weber Syndrome Patients

03:57

How to Make a Fundraising Video for Sturge-Weber Awareness

00:47

2024 SWF Int'l Family Conference

06:18

Zebrafish Research with Aliece Goodman-Khan

03:56

Let's Talk About Sturge-Weber Syndrome with Marissa and Carley

08:25

Let's Talk About Sturge-Weber Syndrome with Sydney and Carley

03:49

SWF Talks: Newly Diagnosed with Sturge-Weber Syndrome

43:54

UC Irvine Mini Summit: SWS Port-Wine Birthmark Treatment

22:12

UC Irvine: Neurology in Sturge-Weber Syndrome

21:58

UC Irvine: What, How, and Why: Glaucoma & SWS

19:03

SWS Parent: Donna Tilley

52:21

"PSYCHOLOGY OF SWS: HOW WE CAN DO BETTER" with Luis R. Sandoval, PhD

34:42

"SWS SKELETAL AND SOFT TISSUE CHANGES" with Mimis Cohen, MD, FACS Professor of Surgery, UIC

27:45

SWS Dermatology with Esteban Fernandez

26:24

SWS and Epilepsy Surgery with Dr Michelle Chiu

40:07

"Modern, digital management of complex dentofacial issues" with Dr Neil Warshawsky

15:06

The Making of a Sturge-Weber Foundation

07:31

Sturge-Weber syndrome Parent Stories: Brewbaker Family

33:01

Cassie Frost Discusses Assistive Technology

30:58

Jill Sclease Discusses Driving with Impairment

00:23

2023 Reunion of Champions honoring Mathew M. Avram, MD, JD

00:49

2022 SWF Reunion of Champions

00:43

The Sturge-Weber Foundation Million Miles Walk - 2022

38:33

SWF Talks: Lauren Blieden, Pediatric Glaucoma 101

23:43

SWF Talks: Dave Shahani, Sturge-Weber syndrome and Surgery

21:22

SWF Talks: Denise Metry discusses The Port-Wine Birthmark in SWS Patients

21:07

SWF Talks: Jeff Loeb, Where we are and where are we going?

19:07

SWF Talks: Research Updates with Matt Shirley, PhD

30:41

SWF Talks: Craig Burkhart - Port-Wine Birthmarks

00:08

SWF Talks: with Sarat Thikkurissy, DDS, MS

17:45

SWF Talks - Elana Britain, Ophthalmology

37:52

SWF Talks: with Mitra Habibi, Pharmacy in Neurology

24:32

SWF Talks: Sturge-Weber Syndrome Neurological Manifestations and its Clinical Management

00:44

Join us for SWF Million Miles Walk - 2023

11:46

SWF Talks with Kaelin Ball

03:53

Happy Holidays from The Sturge-Weber Foundation

02:06

Journey to a Breakthrough: Sturge-Weber Syndrome

02:55

SWF Talks: Let's Talk About Seizures

03:11

2022 The Sturge-Weber Foundation International Family Conference | Grapevine

02:08:45

SWF Educational Mini Summit June 4 2022

03:07

2022 Reunion of Champions | Shimon Eckhouse Ph.D. Tribute

04:29

The Sturge-Weber Foundation Mission

32:48

The SWF Educational Virtual Mini-Summit with Karen Crider and Doug Jackson

37:41

The Impact of Research on Sturge-Weber syndrome

18:43

Dealing With Bullying When You Have Sturge-Weber syndrome or Other Facial Differences

19:14

Matthew Shirley Talks on Basic Science of SWS

20:01

Zebrafish Research with Dr. Lawson

25:44

Jeffrey Loeb Talks Clinical Science in SWS

26:57

Clinical Research in SWS with Csaba Juhasz, MD, Ph.D.

20:18

Going Back to School During a Pandemic

25:06

Sturge-Weber syndrome and the Eye

36:15

Preparing for Summer Vacation with Sturge-Weber syndrome

29:25

Living with SWS, COVID and the Summer of 2021 and beyond