Welcoem to posts!!
in the future - u will be able to do some more stuff here,,,!! like pat catgirl- i mean um yeah... for now u can only see others's posts :c
It’s really important for decision-makers to consider the real-life experiences of people living with sickle cell disorder before making final decisions. As we await NICE’s decision on a new gene therapy for sickle cell, this video, featuring our Chief Executive John James, provides insight into how the @MHRAgovuk reached their decision on the treatment with valuable input from patients.
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The Sickle Cell Society’s mission is to enable and assist individuals with a sickle cell disorder to realise their full economic and social potential. This is achieved by improving opportunities for sickle cell affected individuals and families by raising public awareness through education, advocacy together with the provision of direct welfare services, assisting in research and lobbying.
The Sickle Cell Society was first set up as a registered charity in 1979. It was formed by a group of patients, parents and health professionals who were all concerned about the lack of understanding and inadequacy of treatment with sickle cell disorder.