Hello welcome to our page! We are glad you are here! We are here to share our journey - our new life navigating through my sons rare diagnosis of Cyclic Neutropenia. When he was first diagnosed I felt alone & overwhelmed & so many other big feels! I know all of us do - mothers & children combined. I searched for support I didn’t find much, so I decided to try to build my own community of mothers like me!
If your child has some kind of neutropenia, or other blood disease that makes them immunocompromised, if your child has neutropenia due to chemo, if your child has lupus , if your child has any other rare blood disease, or rare disease what so ever - you are welcome here! Here where you are understood ! Here where all we want to do is spread love & awareness!
I hope you decide to stick around because we would LOVE to have you! Right now I can commit to ONE video a week! Due to being a single mom but, I am hoping to be able to start working on shorts too! So much coming soon!