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Know Rare's help in connecting to research #SickleCellDisease #RareDiseaseAwareness #RareDisease
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Sickle Cell Disease vs Sickle Cell Trait #SickleCellDisease #RareDiseaseAwareness #RareDisease
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One size does not fit all in SCD #SickleCellDisease #RareDiseaseAwareness #RareDisease
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Learning how to live life with SCD #SickleCellDisease #RareDisease #RareDiseaseAwareness
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When doctors say 'I don't know' #SickleCellDisease #RareDisease #RareDiseaseAwareness
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What do you have to lose? #SickleCellDisease #RareDisease #RareDiseaseAwareness
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Growing Up Rare with Sickle Cell Disease #SickleCell #RareDiseease
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Exploring Sickle Cell Disease Treatment Options #RareDiseaseAwareness #SickleCell
01:02
RARE INSIGHTS: a new podcast series focusing on the future of potential rare disease treatments. π§¬
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Know Rare Connect: Specialists in Myositis #myositisawareness #myositis #raredisease #KnowRare
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Know Rare Connect: Living with Myositis featuring Lindsay Guentzel #Myositis #MyositisAwarenessMonth
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Observational vs. Interventional Studies | A Rare Disease Webinar | Know Rare Connect
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Taylor, Rare Influencer, talks about time to reset with #raredisease ππβ
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Supporting someone with a #raredisease with John, FSGS warrior ππ
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Johnathan Le Grande, Rare Kidney, Rare Influencer π #FSGS FocalSegmentalGlomerulosclerosis
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βGlass Childβ ππ by rare sibling, Gina Wagner #raredisease #rarediseaseawareness #rarediseases
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Experience with Palliative Care and Child Life Specialists with Samantha Deschenes, Rare Mom ππ
20:56
Know Rare Connect: Journaling Your Journey ππΒ #RareDiseaseΒ #RareDiseaseAwareness
01:32
A recap from our first Know Rare Connect LIVE Event! π²β¨ #RareDisease #RareDiseaseAwareness
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Journaling Your Journey with Laura Will, Rare Mom ππ
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Living with Refractory Seizures with Rare Mom, Samantha Deschenes ππβ
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Introducing Tali Wohlgelernter, Rare Mom, Know Rare Ally ππ
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