05:17
ME/CFS Personal Update 10-4-2024 *and introducing POTs
08:45
Cumulative Crashes (PENE/PEM) with ME/CFS
09:33
Getting a ME/CFS Diagnosis
08:35
Personal Update January 2024- Doing really well, bouncing back fast!
05:43
Mental Health with ME/CFS #1: Your Past Self
05:44
Aggressive Resting to prevent crashes with ME/CFS
05:04
Check In (continuing to improve with ME/CFS!)
07:25
How I Still Do Art with ME/CFS (pacing +)
26:33
My ME/CFS Journey Version 2 (this time more coherant)
06:45
What does the range from VERY severe ME/CFS to mild ME/CFS look like? *TW, mention of suicide
04:49
How do I travel with severe ME/CFS?
07:11
What I Keep By My Bed (if you have ME/CFS)
03:06
When You're Improving or Having a Good Day with ME/CFS (be careful!)
05:36
Setting up your house for ME/CFS (version 2)
05:33
Little Things Add Up (avoiding crashes)
04:32
Talking to Doctors about ME/CFS #3 (formerly #4) APPROACH
04:19
Talking to Doctors about ME # (when they get condescending)
05:31
Talking to Doctors about ME/CFS #2
03:02
Talking to doctors about ME/CFS #1
05:54
ME/CFS and mobility aids
04:40
ME/CFS Protecting your brain #3: Sensory Exposure
04:46
ME/CFS Protecting Your Brain: #2 Stress
05:00
ME/CFS and Protecting Your Brain: #1 media
12:57
What does ME/CFS feel like?
10:14
How to support someone with ME/CFS (A note to family/friends/doctors)
05:29
Getting People on Your Side #1: Explaining What ME/CFS Costs
05:49
Pacing With ME/CFS #2: Breaking things up
02:58
Pacing With ME/CFS #3: Avoiding Rolling Crashes (really avoiding cumulative crashes)
05:24
Pacing with ME/CFS #1: Why Pace?
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About
This channel is to use my own ME/CFS journey and research to help others with their journeys. Also to educate friends, family and doctors of ME/CFS patients.
I try to make the content as ME/CFS friendly as I can. To do this I intentionally avoid music, background noise and much movement. I try to stay mostly still with a neutral blank background. No text over images, no scribbles, nothing. I also do my best to keep video short where I can (around 5 minutes where possible) and mark chapters to make it easy to stop and start again.
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