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Cure Sanfilippo Foundation @UCON-eQSD2AihwqNEDl0e07w@youtube.com

7.9K subscribers - no pronouns :c

Every parent dreams about their kid’s future and watching it


03:15
We need a miracle. Save Lydia.
10:51
Cara O'Neill | Qualifying Biomarkers to Support Rare Disease Regulatory Pathways | Closing Speech
31:32
Life with "Attenuated" Sanfilippo Syndrome | The Kohlmorgan Family
53:33
Durable Medical Equipment (DME) and Sanfilippo Syndrome
54:51
What is Assistive Technology and how can it help your child communicate?
03:16
First time parents watch video they hope will save their daughter
01:19:38
Update on Ultragenyx's Sanfilippo syndrome Type A Gene Therapy program (UX111) - March 26, 2024
02:58
Saving Veda from Sanfilippo syndrome
03:10
A Message to You on the 10-Year Anniversary of Cure Sanfilippo Foundation
11:07
Development of Global Consensus Clinical Care Guidelines for Sanfilippo Syndrome, WORLDSymposium2023
03:31
Parents' first watch of a video they hope will save their daughter Liv
03:15
This video can save our 3-year-old daughter's life: #SavingLiv
00:15
Saving Liv - Coming Saturday, Dec. 3
08:20
New Sanfilippo drug repurposing clinical trial; updates on other research + more
03:29:34
ADVANCE 22 Sanfilippo Conference - Day 1, Part 1
02:14:32
ADVANCE 22 Sanfilippo conference - Day 2, Part 3
02:05:55
ADVANCE 22 Sanfilippo conference - Day 2, Part 2
02:31:14
ADVANCE 22 Sanfilippo conference - Day 2, Part 1
02:35:41
ADVANCE 22 Sanfilippo conference - Day 1, Part 2
01:58:48
ADVANCE 22 Sanfilippo conference - Day 1, Part 3
01:01
TikTok For A Cure - Kickoff from @Love_Logan07
03:38
Alina's Story - One more miracle?
08:54
WORLD Symposium highlights Anakinra early results; upcoming gene therapy trial; + more
09:39
Kicking off 2022; upcoming key meeting with FDA; recent grants, WORLD conference, & more
10:37
Anakinra Trial update, Collaboration with UNC, other research updates, Help Simon, & more
06:42
How All Stripes can help Sanfilippo syndrome research
03:04
Help Simon fight to live and play basketball
12:49
BIG WEEK! World Sanfilippo Day & viral campaign, Trivia Gala, All Stripes & more
13:10
Sanfilippo & accelerated approval; newly-diagnosed guide; World Sanfilippo Awareness Day & more
01:05
2021 Step Up to Cure Sanfilippo | Wrap-Up Video
11:06
Why a podcast?; Photobiomodulation research; the costs of pioneering research; + more
10:34
Patient Needs & Culture of the Laboratory; Kickoff 2021 StepUp fundraiser; families milestone & more
11:39
Get-to-know your child worksheet for school; Sanfilippo on TikTok; Inclusion + more
12:02
Free Educator Guide; Dopamine & Reducing Autism Behaviors + more
10:00
In Memory of Reagan; New testing created; $1M granted for 5 new projects + more
10:49
Chan Zuckerberg, Sanfilippo biomarkers & FDA; Anakinra trial update; + more
02:23
Kids on a mission to save their best friend’s life
01:01
Save Connor | #shorts
03:48
Parents' first watch of a video they hope will save dying son
02:27
What Is Sanfilippo Syndrome?
09:54
Cure Sanfilippo - World Symposium 2021
05:02
Cure Sanfilippo Gala 2020 - Mission Moments 4
06:49
Cure Sanfilippo Gala 2020 - Mission Moments 3
07:34
Cure Sanfilippo Gala 2020 - Mission Moments 2
05:17
Cure Sanfilippo Gala 2020 - Mission Moments 1
01:36
Cure Sanfilippo Gala 2020 - Surprise Introduction!
02:58
We thought it was Autism. What we found out...unimaginable.
01:34
2020 "Step Up To Cure Sanfilippo" Highlights Video
01:09
Carson's parents have something to say to you
08:21
Sanfilippo Syndrome and the fight to find a cure | Cure Sanfilippo Foundation
16:14
The most important presentation on Sanfilippo Syndrome
50:48
Q&A Coronavirus and Sanfilippo Syndrome: Dr. Heather Lau
04:56
A Saving Eliza Update - November 2019
02:52
Saving Eliza
00:54
7 year old Beckham wants to save his little sister
02:42
A dog's devotion like you've never seen: Henry and Blair
01:21
7 year old girl wants to save her little brother's life
03:03
The Last Chance to Save My Son's Life, from Childhood Alzheimer's. #SavingCarter
00:19
Eliza working on her singing - May 8, 2017
02:09
Disney Employee makes Magic Memory for Sick Girls