Hi everyone. I am a hemophilia patient.
😢From the moment I was born, I was destined to be different. It has been 31 years now—yes, I am 31 years old.
😊Perhaps you have not heard of hemophilia. It is a disease caused by a genetic defect, and its main symptoms are excessive bleeding and difficulty in stopping the bleeding.
😊In my 31 years, many things have happened. I have always wanted to share my experiences and hope to meet many friends.
😊Due to my health, I rarely go out, so I have few friends. Sometimes I feel lonely, and most of the time, it is painful and lonely.
😊After losing my job at 31, I started to spend more time reflecting on how people like me can live in this world on their own.
😊I began to think about what kind of work would suit me and my health. I am still searching, trying, and experiencing failures. I think I will keep failing, but maybe I will succeed.
😄I will share everything, hoping you will better understand the life of hemophilia patients. I wish you strength.