Hey, I'm Jess! Just over here navigating the journey of parenting a child with a rare disease. As a medical mama, I share real, raw, beautiful moments of raising my child with a rare genetic disorder - Prader Willi Syndrome, along with the challenges, triumphs, and everyday realities of special needs parenting.
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- Rare disease awareness & advocacy
- Medical parenting realities
- Christian parenting
- Therapies, growth hormone, and early interventions
- PWS diet & special needs nutrition
- Natural living, holistic wellness, and low-tox parenting
- Modern homesteading & non-toxic lifestyle choices
- Emotional support & encouragement for rare disease parents
Life as a special needs parent is full of uncertainty, resilience, and hope. Whether you're navigating a new diagnosis, searching for resources, hoping to learn more, or just need a community that understands, you're in the right place!
#rarediseases #specialneedsparents #praderwillisyndrome #nontoxicliving