Welcoem to posts!!
in the future - u will be able to do some more stuff here,,,!! like pat catgirl- i mean um yeah... for now u can only see others's posts :c
🌟 Don’t forget! Daylight Saving Time ends tomorrow.
Set your clocks back one hour and enjoy that extra hour of sleep! 💤 Remember to check your devices too, as they may need a little reminder themselves. Stay cozy, everyone! 🍂
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Whether you're dressing up or staying in, we hope today brings a little light and fun into your journey. Just like facing cancer, Halloween reminds us that even in the face of fear, we can find strength, community, and moments of joy. 💪💜 🎃
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Are you ready?! Starting November 1st, we are sharing one story every day to help spread awareness and most importantly...HOPE!
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We’re proud to highlight Task Force member Sarah Jones and her powerful op-ed featured in the Arizona Daily Star. Sarah, who bravely lives with a rare disease, shared how a treatment for her condition was discovered through further research on an already FDA-approved drug for another disease. As Sarah explains, “some 30 million Americans with rare diseases are waiting... for medications that don't yet exist.”
However, Sarah also raises an urgent concern: the Medicare Drug Negotiation Program’s current Orphan Drug Exclusion is too narrow, threatening incentives for the research and development of vital treatments for rare diseases. Thankfully, there’s a bipartisan solution. The ORPHAN Cures Act (H.R. 5539/S.3131) seeks to correct this by ensuring incentives for rare disease research remain strong, giving hope to millions of Americans like Sarah who are waiting for new treatments and cures.
Read Sarah’s full op-ed here: tucson.com/sarah-jones-congress-must-fix-a-law-tha…
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Join us on Zoom TONIGHT!
If you or a loved one has been diagnosed with Stage IV stomach cancer or has experienced a recurrence, we invite you to attend our monthly support meetings. This is a unique opportunity to connect with others who understand what you’re going through, share experiences, and gain valuable insights into the latest treatments and resources available.
Whether you’re looking for information, support, or simply a safe space to share your feelings, this meeting is for you. Together, we can navigate this journey and empower one another through the challenges we face.
This meeting is free but reservation is required. Reserve your spot for tonight's meeting here:
us02web.zoom.us/meeting/register/tZUpd-6vqT8jHtPuY…
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Join Us for the Stomach Cancer Support Group tonight! 🌟
We’re excited to invite patients and caregivers diagnosed with stomach cancer or gastroesophageal junction (GEJ) cancer to our monthly support group meetings. This is a fantastic opportunity to learn about the latest treatments, share experiences, and support one another through this challenging journey.
RSVP here: us06web.zoom.us/meeting/register/tZwsduCorDMsHNStU…
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We’re excited to announce that registration is now open for our upcoming Patient Empowerment Summit and Advocacy Day! This is an incredible opportunity to connect with others affected by stomach cancer, learn from experts, and empower yourself with knowledge and resources.
Don’t forget to book your hotel room to ensure you have a comfortable place to stay during the event! To take part in our fundraising efforts, please email divine@stocan.org.
Let’s come together to support one another and advocate for change in the stomach cancer community. We can’t wait to see you there! ✨
Learn more and register at stomachcancerdc.org
#PatientEmpowerment #AdvocacyDay #StomachCancerSupport #TogetherWeFight
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Support the Stomach Cancer Prevention and Early Detection Act! Take action today at GastricCancerAdvocacy.org by emailing Congress now. Help us end stomach cancer!
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Hope for Stomach Cancer is a 501(c)(3) that provides resources to patients, caregivers and loved ones while promoting early detection and prevention to the general and medical communities. Hope creates and facilitates programs that enable those affected by stomach cancer to take actionable steps to live the best possible life through each phase of the disease. Our vision is to bridge the gap between research and patient care.
Support the Stomach Cancer Prevention and Early Detection Act! Take action today at GastricCancerAdvocacy.org by emailing Congress now. Help us end stomach cancer!