53:30
Prof Chris Vorster | Introduction/approach to undiagnosed patients
12:54
Dr Ilse du Preez on Collaborative Metabolomics for Rare Diseases | Rare-X 2024
00:53
Dr Elne Conradie: The Role of the CHM Biobank
15:46
The Nngwe Project official launch at Rare-X 2024 - Prof Chris Vorster
01:12
Dr Ilse du Preez on how Nngwe is fostering collaboration in OMICS.
01:43
Prof Chris Vorster introduces Nngwe.
01:43
Patient Stories: SYNGAP1 Advocates Sydney and Sandy
16:39
To Give Her Wings - The Story of Birdie Rose
00:58
Preview: To Give Her Wings - The Story of Birdie Rose
15:16
The journey of one family affected by UNC80 deficiency.
01:04
Preview: The journey of one family affected by UNC80 deficiency.
01:07:56
The value of biobanking for undiagnosed patients, clinicians, and rare disease researchers.
58:49
The value of a collaborative clinical approach and rare disease education.
00:54
Patient Stories: Kerry Welsh's Journey
01:16
Dr Tim Newman introduces Nngwe.
01:48
NNGWE - Prof. Chris Vorster
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About
The Nngwe Project calls on South African clinicians and scientists to unite in the mission to end the diagnostic odyssey of rare undiagnosed patients by prioritising the interest of the rare disease patient and all other patients above all other interests.
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