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National Scleroderma Foundation @UCIHi1E5RDegr0WRVISgo9Fw@youtube.com

11K subscribers - no pronouns :c

A relentless force in finding a cure for #scleroderma & impr


54:54
Cosmetic Procedures in Systemic Sclerosis, Heidi Jacobe, MD, MSCS
52:11
Nutrition and the Microbiome in Systemic Sclerosis, Elizabeth Volkmann, MD, MS
53:59
Medication Side Effects and Vaccinations, Carrie Richardson, MD, MHS
53:08
Calcinosis in Scleroderma, Carrie Richardson, MD, MHS
38:10
The Pregnancy Journey in Scleroderma, Kimberly Lakin, MD
54:13
Scleroderma and Cancer: What are the Connections, Laura K. Hummers MD, ScM
56:45
TeleReach Using TeleRehab to improve Hand Function in Scleroderma, Susan Murphy, ScD, OTR
20:02
August 2024 Quarterly Stakeholder Update
35:33
2024 National Scleroderma Conference Opening Keynote
35:51
2024 National Scleroderma Conference - Patient Panel
01:08:56
2024 National Scleroderma Foundation Volunteer Awards Luncheon
03:35
Laryn - EveryJourneyMatters
01:04
Landry - EveryJourneyMatters
01:06
Falguni - EveryJourneyMatters
02:16
Donna - EveryJourneyMatters
03:17
Chanel - EveryJourneyMatters
01:53
Cindy - EveryJourneyMatters
01:56
Cheryl - EveryJourneyMatters
01:50
Barbara - EveryJourneyMatters
02:48
Amanda - EveryJourneyMatters
45:16
#TealTalk June 27, 2024: #TealTalk for Self-Care: A Toolkit
53:31
#TealTalk June 20, 2024: What's Exciting in Scleroderma Resesarch
55:05
#Teal Talk: Stem Cell Transplant Discussion - June 13, 2024
01:02:51
Teal Talk: Young Adult Panel - June 6 2024
10:30
Every Journey Matters - Tiffany Shank
50:38
Nutrition & Diet with Lon Ben Asher
09:49
Scleroderma Awareness Month 2024 - Every Journey Matters
14:14
Spring Stakeholder Call 2024
44:04
CDMRP Webinar on FY24 PRMRP Funding Opportunities – Learn About the Funding Process and How to Apply
12:01
2024 National Scleroderma Foundation Advocacy Training: A Mock Meeting with an Elected Official
57:55
Proclamations & Light it Teal 2024
01:00:08
CAR T-Cell therapy in Systemic Sclerosis, Dr. Dinesh Khanna, Dr. Monalisa Ghosh
20:16
January 2024 Stakeholder Update
12:38
How Your GivingTuesday Gift Will Help
01:31
¡Únete a nosotros en la lucha contra la esclerodermia!
01:30
GivingTuesday | Nov. 28 | One Day. One purpose. One mission.
14:12
Quarterly Stakeholder Update
37:30
Stem Cell Transplantation in Systemic sclerosis
03:35
Celebrating 25 years: Many Journeys, ONE Mission
08:03
"The Extraordinarily Excellent Trip to Bass Lake" - Julia's Story
49:09
Pulmonary Arterial Hypertension,: What does it mean for a scleroderma patient, Virginia Steen, MD,
01:04:40
Scleroderma & Pain: Recognition, Communication & Management, Lesley Ann Saketkoo, MD, MPH
01:01:56
Morphea Update, Heidi Jacobe, MD, MSCS
58:17
Laughing at Tigers: coping with Scleroderma, Carole Deyoe
28:34
Living with a Feeding Tube: The Patient Perspective, Chanel White
01:10:37
Navigating GI Issues in Scleroderma, Tracy Frech, MD, MS
01:03:12
Musculoskeletal Manifestations in Systemic Sclerosis, Soumya Chatterjee, MD, MS, FRCP, FACP, FACR
58:02
Traveling the Road to Hope (and Navigating Detours), Ron Sasso, M.S., L.P.C.
57:01
Scleroderma Research: Past, Present and FUTURE, Maureen Mayes, MD, MPH
54:09
Raynaud's, Ulcerations and Calcinosis in Systemic Sclerosis, Michael York, MD
47:42
2023 Scleroderma Closing Keynote: Many Journeys, One Mission, Carol Feghali-Bostwick, PhD
45:59
The Pregnancy Journey in Scleroderma from planning to Raising Children, Elizabeth Volkmann, MD, MS
55:48
Taking care of your hands and face: the importance of stretches, assistive devices, Dr. Janet Poole
13:36
Summer Stakeholder
09:32
Esclerodermia: Guia Para Paciente Recien Diagnosticado
20:37
Fenomeno de Raynaud en la Esclerodermia
21:01
Cuidados de Ulceras y Calcinosis
16:40
Hipertension Aterial Pulmonar en la Esclerodermia
06:36
Enfermedad Pulmonar Intersticial en Esclerodermia
16:33
Problemas Nutricionales Asociados a Esclerodermia