Welcoem to posts!!
in the future - u will be able to do some more stuff here,,,!! like pat catgirl- i mean um yeah... for now u can only see others's posts :c
This video has been a long time coming and was my daily routine with a feeding tube when I had one 😛 (filmed 2022) the picture of me on the front here is a recent one though because I didn't have anything else to use. I hope you guys enjoy this and it is helpful for those who need it 🙂 Sorry it took such a long time to get up, these long-form videos take a lot of time and love 🙂
https://youtu.be/uNPO-HRTYTw
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Hey everyone, hope you're doing okay!
Here is the video that was posted last Saturday. In this video I talk about how a year ago we went through a really scary time where I stopped tolerating my formula and no one seemed to know why or how to help. We had to have some really hard conversations about how we were going to sustain me. I ended up getting some really great help at the right time that helped me improve (I talk about the main things in this video) my vlogs are behind in time however I will now be posting weekly vlogs from footage filmed over the last year, so you will see in real-time my progress and the things that have helped right up to where I am at now, which is a much better place 🙂 Thank you guys so much for supporting me and if you're going through it right now, please know I am thinking of you and cheering for you and as cliche as it is, you're not alone 🙂
https://youtu.be/1VyJS8ipAXc
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Hey everyone! I have just unlocked the community tab here on youtube and am very excited to be able to chat with you all. I hope you are all doing okay and hanging in there. I haven't been able to post for a while because the accessibility setup that helps me be able to use a computer and edit etc involves my wheelchair and my wheelchair is currently broken. I am in the process of getting temporary repairs until able to get a new one. I have actually been busy with some other things that have been taking my capacity but I have still been filing so you guys will see all the behind-the-scenes at some point :\ Anyway hoping you're all doing well
- Mel
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I'm Mel, an Aussie in my mid-twenties just trying to do the best I can, with what I have, exactly where I'm at.
Here I share my experience of life with chronic illness and disability, to encourage others, and raise awareness.
Even though the doctors told me I would spend my life in bed, I'm pursuing healing, trying to be as healthy as possible, and finding ways to improve & adapt to my condition in my day-to-day life functioning in my surroundings.
I'm learning to see God's grace in hard places and heal from trauma
I have been told I have a genetic connective tissue disorder called Ehlers-Danlos Syndrome (EDS). As connective tissue is everywhere in the body, EDS affects many systems in my body, some secondary conditions I also talk about are CCI & AAI, POTS, Scoliosis, MCAS, TMJ issues, MALS, and Endometriosis.
I used to have a feeding tube, but now I don't :D
Links: linktr.ee/purpose_in_this_journey