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ERN RARE-LIVER @UCHTSmjQ0J9utcK6bZpI3Kqw@youtube.com

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The European Network on Hepatological Diseases (ERN RARE-LIV


08:34
Autoimmune Hepatitis since the age of three years old
01:00:13
ERN RARE LIVER roundtable discussion Second-line therapy after the EMA recommendation
03:55
Young people living with rare liver diseases - Introducing the ERN RARE-LIVER Young Panel: Sorcha
04:30
Patient video: How to use the ERN RARE-LIVER registry: R-LIVER
02:37
Young people living with rare liver diseases - Introducing the ERN RARE-LIVER Youth Panel: Magdalini
02:25
Young people living with rare liver diseases - Introducing the ERN RARE-LIVER Youth Panel: Silas
03:28
Update on the Acute Liver Failure Working Group of ERN RARE-LIVER on the Members Meeting 2023.
06:55
Update on the Biliary Atresia Working Group of ERN RARE-LIVER on the Members' Meeting 2023.
08:15
Update on the PSC Working Group of ERN RARE-LIVER on the Members' Meeting 2023 by Nora Cazzagon
08:06
Update on the Vascular Liver Disease Working Group of ERN RARE-LIVER on the Members' Meeting 2023.
26:36
Introducing EBAR - the European Biliary Atresia Registry of the ERN RARE-LIVER
06:56
2023 Covid Update
03:54
Young people living with rare liver diseases - Introducing the ERN RARE-LIVER Youth Panel: Malou
03:15
Young people living with rare liver diseases - Introducing the ERN RARE-LIVER Youth Panel: Lina.
19:50
"PSC - Aktuelle Therapiemöglichkeitenfür Leber und Darm" | Dr. Horst | APS 2023
19:50
"PBC - Leberwerte gut, alles gut?" | Dr. Hartl & Dr. Uhlenbusch | APS 2023
08:10
"Wie bereite ich mich auf meinen Arztbesuch richtig vor?" | Dr. Schregel | APS 2023
14:46
"Grundlagenforschung der Leber: warum spenden Sie Ihr Blut (...) ?" | Prof. Herkel | APS 2023
19:17
"Sport und Bewegung:der Schlüssel zur Gesundheit?" | Dr. Schillings | APS 2023
14:56
"Auch mit Leberzirrhose kann man 100 Jahre alt werden" | Dr. Sebode | APS 2023
12:16
Begrüßung und "Was wir durch und über Corona gelernt haben" | Prof. Lohse | APS 2023
25:27
"AIH - Alles rund um die Therapie" | Fr. Fellinghauer & Dr. Steinmann | APS 2023
02:25
CPMS - getting started
02:21
Clinical Patient Management System (CPMS) - enrolling and removing patients
05:39
ERN RARE-LIVER Members' Meeting 2022 in Hamburg
05:12
Latest Covid update on the general pandemic situation and the impact on rare liver disease patients
08:49
Workshop PSC | Primär Sklerosierende Cholangitis und Darmerkrankungen – F. Glaser Vortrag 2022
08:42
Workshop AIH | Wenn Tabletten mehr schaden als helfen? – J. Hartl Vortrag 2022
08:19
Workshop PBC | Symptome der PBC – C. Weiler-Normann Vortrag 2022
19:26
Workshop PBC | Klinische Studien: Was gibt es Neues – S. Steinmann Vortrag 2022
09:17
Workshop AIH | Klinische Studien: Was gibt es Neues? – M. Sebode/ J. Weltzsch Vortrag 2022
09:16
Workshop AIH | Impfungen bei immunsuppressiven Medikamenten – I. Schregel Vortrag 2022
11:41
Workshop PSC | Klinische Studien: Was gibt es Neues? – C. Schramm Vortrag 2022
12:25
Workshop PSC | Endoskopische Untersuchungen bei der PSC – G. Buescher Vortrag 2022
09:29
Plenum | Versorgungsstrukturen für seltene Erkrankungen am UKE – C. Schramm Vortrag 2022
13:10
Plenum | Ernährung bei Lebererkrankungen – V. Böker Vortrag 2022
16:09
Plenum | Psyche und Leber – N. Uhlenbusch Vortrag 2022
14:09
Workshop PBC | Fatigue – A. Toussaint Vortrag 2022
02:27
Wilson Disease - Training Video for Physicians and Patients
01:46
Porto-sinusoidal vascular disease (PSVD) - Training Video for Physicians
01:52
Primary Sclerosing Cholangitis (PSC) - Training Video for Physicians
02:16
Neonatal Cholestasis - Training Video for Physicians and Patients
03:09
MDR3 deficiency: Cholestatic Liver Diseases - Training Video for Physicians and Patients
01:53
Acute Liver Failure (ALF) - Training Video for Physicians
11:04
Primary Biliary Cholangitis - An ERN RARE-LIVER training video
09:37
Alpha-1-Antitrypsin Deficiency - An ERN RARE-LIVER training video
12:11
Transition from paediatric to adult care - An ERN RARE-LIVER training video
03:23
6 Management part 2
03:48
5 Management part 1
03:54
4 Complications
02:01
3 Symptoms
03:22
2 Genetics
03:39
1 Definition and Risk Factors
14:45
Vascular liver disease - An ERN RARE-LIVER training video
11:14
Polycystic liver disease - An ERN RARE-LIVER training video
14:54
Liver transplantation: An ERN RARE-LIVER patient video
13:12
Wilson disease - An ERN RARE-LIVER training video
11:13
Wilson disease: An ERN RARE-LIVER patient video
04:30
Covid 19 vaccine: update video message
13:06
Primary sclerosing cholangitis: An ERN RARE-LIVER patient video