01:10:54

Episode #29 | Growing up with CF, Hope and Help | Rare Info Series | ORDI

58:44

Episode #28 | Investigations, Surveillance and Monitoring in CF | Rare Info Series | ORDI

01:12:40

Episode #27 | Nutrition & Growth in Cystic Fibrosis (CF) | Rare Info Series

01:15:55

Episode #26 | Clinical Trials for Rare Diseases: Basics and Latest Developments | ORDI

01:17:42

Episode #25 | Airway Clearance: Breathing Easier with Chest Therapy | ORDI

01:09:25

Neuromuscular Club | Session 37 | Bone Health and Management in Neuromuscular Diseases | ORDI

01:07:38

Episode #24 | Respiratory Care: “Breathing Easier – Identifying and Preventing Lung Infection | ORDI

01:02:14

Episode #23| Understanding Cystic Fibrosis | A Parent’s Guide to the Basics | Rare Info Series

48:03

Episode #22 – Blueprint Breakdown: Intro to Genetic Testing | ORDI

52:08

Episode #21 | Clinical Manifestations and Management of Osteogenesis Imperfecta

01:22:02

Episode #20 – Inborn Errors of Metabolism in Newborns | ORDI | Organization for Rare Disease India

01:00:01

Episode #19 - Unravelling the Mystery of Immunodeficiency Diseases | Organization for Rare Disease

33:31

Episode #07: Unmasking PNH – Inside the World of Paroxysmal Nocturnal Hemoglobinuri | ORDI

01:01:40

Episode #18 Indian Genomics Landscape Where we are and what the future holds | ORDII

51:23

Episode #17 Rehabilitation management in Duchenne Muscular Dystrophy | ORDI | Rare Infor Series

01:38:01

Neuromuscular Session 35

01:25:12

Subacute Sclerosing Panencephalitis (SSPE)

57:38

Episode #16 Functional ability testing to Daily Care A Physiotherapy approach in DMD | ORDI

48:53

Episode #15 | Stevens Johnson Syndrome: A Painful Journey from Burn to BlindnessPart of the ORDI

48:00

Episode 14 | Small Genes, Big Impact: Understanding Inherited Metabolic Disorders in Children | ORDI

01:21:39

Hemoglobin in Crisis: Sickle Cell Disease in India | Dr. Deepa Bhat | ORDI Rare Info Series

48:41

Home Mechanical Ventilation: Basics & Best Practices | Dr. Neha Mohan Rao | ORDI Rare Info Series

42:13

Haemophilia and its care | Dr. Shwetha Kamath | ORDI | Organization for Rare Diseases India

01:20:01

Neuromuscular Club Session 34

01:01:42

Nutritional Management of Congenital Hyperinsulinemic Hypoglycemia | Mrs. Shobha | ORDI

01:05:00

Advances in Thalassemia Management: The Road Ahead for India | Prof. Dr. Prantar Chakrabarti | ORDI

01:08:57

Neuromuscular Club Session 33

01:12:53

RARE INFO SERIES–Episode #08 Genetics of Familial Hyperlipidemia& Unraveling the lipid biochemistry

01:06:39

RARE INFO SERIES – Episode #04 | Shattered Platelets & Struggling Kidneys | HUS | ORDI #HUS

57:38

RARE INFO SERIES – Episode #03 | Echoes from the Basement Membrane | Alport Syndrome | ORDI

01:07:02

🔬 RARE INFO SERIES – Episode #02 | Clinical Genomics Approach to Heart Failure | ORDI #rarediseases

55:57

RARE INFO SERIES | Episode : 01 | Bardet-Biedl Syndrome | ORDI | #bardetbiedlsyndrome

01:23

Mr. Prasanna Shirol Invites You to Join Racefor7 on February 23!

05:15

Join Keya Hathker | Racefor7 | ORDI | Organization for Rare Disease India | #marthon #raredisease

01:40

Kirtida Oza | Sjogren's India| ORDI | Racefor7 | Organization for Rare Disease in Inida #marthon

02:01:30

Paediatric Neuromuscular Disorders S-28

00:45

Crohn's and Colitis Awareness Week | ORDI | Organization for Rare Disease in India | Bangalore

01:31:58

Paediatric Neuromuscular Disorders S-26

01:08:27

Paediatric Neuromuscular Disorders S-27

01:31:58

Paediatric Neuromuscular Disorders S-25

01:37

ORDI Shines at PARICHAY 2024: Empowering Students to Fundraise for Rare Diseases

02:17:58

ESTABLISH STANDARD OF CARE (SOC) FOR SPINAL MUSCULAR ATROPHY(SMA) | Recorded Video | ORDI

01:18

Newborn & High-Risk Pregnancy Screening | Karnataka Government | Hunting Disease

01:02

Stickler Syndrome Awareness Month | Organization for Rare Disease in India | ORDI

01:10

Infantile Systemic Hyalinosis | Rare Disease | Organization For Rare Disease in India | Karnataka

00:52

Goldenhar Syndrome | Rare Craniofacial Disease | ORDI | Organization for Rare Disease #ORDI

01:17

Understanding Fragile X Syndrome | ORDI | Rare Disease Organization in India #fragilex

01:34:56

Paediatric Neuromuscular Disorders S-23

01:26:30

Paediatric Neuromuscular Disorders Session -22

01:20

𝐖𝐨𝐫𝐥𝐝 𝐌𝐒 𝐃𝐚𝐲: 𝐌𝐲 𝐉𝐨𝐮𝐫𝐧𝐞𝐲 𝐰𝐢𝐭𝐡 𝐌𝐮𝐥𝐭𝐢𝐩𝐥𝐞 𝐒𝐜𝐥𝐞𝐫𝐨𝐬𝐢𝐬 - 𝐒𝐡𝐮𝐛𝐡𝐫𝐚 𝐑𝐚𝐣𝐩𝐮𝐭

01:03:46

Neuromuscular Disorders Session 19

01:10:11

Neuromuscular Disorders Session 18

01:12:36

Neuromuscular Disorders Session 20

01:05:08

Neuromuscular Disorders Session 21

01:20:54

Neuromuscular Disorders Session 16

01:12:08

Neuromuscular Disorders Session 17

00:29

𝐓𝐞𝐚𝐦 𝐒𝐚𝐧𝐨𝐟𝐢 𝐇𝐨𝐧𝐨𝐫𝐞𝐝 𝐚𝐭 𝐓𝐡𝐞 𝐑𝐚𝐫𝐞 𝐒𝐭𝐚𝐫 𝐀𝐰𝐚𝐫𝐝𝐬

09:32

𝐔𝐧𝐝𝐞𝐫𝐬𝐭𝐚𝐧𝐝𝐢𝐧𝐠 𝐒𝐩𝐢𝐧𝐚𝐥 𝐌𝐮𝐬𝐜𝐮𝐥𝐚𝐫 𝐀𝐭𝐫𝐨𝐩𝐡𝐲: 𝐈𝐧𝐬𝐢𝐠𝐡𝐭𝐬 𝐟𝐫𝐨𝐦 𝐃𝐫. 𝐃𝐞𝐞𝐩𝐚 𝐁𝐡𝐚𝐭

00:29

𝐃𝐫. 𝐀𝐧𝐧 𝐀𝐠𝐧𝐞𝐬 𝐌𝐚𝐭𝐡𝐞𝐰 𝐇𝐨𝐧𝐨𝐫𝐞𝐝 𝐚𝐭 𝐓𝐡𝐞 𝐑𝐚𝐫𝐞 𝐒𝐭𝐚𝐫 𝐀𝐰𝐚𝐫𝐝𝐬

08:40

𝐀𝐝𝐯𝐚𝐧𝐜𝐢𝐧𝐠 𝐒𝐌𝐀 𝐀𝐰𝐚𝐫𝐞𝐧𝐞𝐬𝐬: 𝐃𝐫. 𝐕𝐲𝐤𝐮𝐧𝐭𝐚 𝐑𝐚𝐣𝐮 𝐄𝐦𝐛𝐫𝐚𝐜𝐞𝐬 𝐓𝐞𝐜𝐡 𝐌𝐞𝐝𝐢𝐜𝐢𝐧𝐞