02:17:58

ESTABLISH STANDARD OF CARE (SOC) FOR SPINAL MUSCULAR ATROPHY(SMA) | Recorded Video | ORDI

01:18

Newborn & High-Risk Pregnancy Screening | Karnataka Government | Hunting Disease

01:02

Stickler Syndrome Awareness Month | Organization for Rare Disease in India | ORDI

01:10

Infantile Systemic Hyalinosis | Rare Disease | Organization For Rare Disease in India | Karnataka

00:52

Goldenhar Syndrome | Rare Craniofacial Disease | ORDI | Organization for Rare Disease #ORDI

01:17

Understanding Fragile X Syndrome | ORDI | Rare Disease Organization in India #fragilex

01:34:56

Paediatric Neuromuscular Disorders S-23

01:26:30

Paediatric Neuromuscular Disorders Session -22

01:20

𝐖𝐨𝐫𝐥𝐝 𝐌𝐒 𝐃𝐚𝐲: 𝐌𝐲 𝐉𝐨𝐮𝐫𝐧𝐞𝐲 𝐰𝐢𝐭𝐡 𝐌𝐮𝐥𝐭𝐢𝐩𝐥𝐞 𝐒𝐜𝐥𝐞𝐫𝐨𝐬𝐢𝐬 - 𝐒𝐡𝐮𝐛𝐡𝐫𝐚 𝐑𝐚𝐣𝐩𝐮𝐭

01:03:46

Neuromuscular Disorders Session 19

01:10:11

Neuromuscular Disorders Session 18

01:12:36

Neuromuscular Disorders Session 20

01:05:08

Neuromuscular Disorders Session 21

01:20:54

Neuromuscular Disorders Session 16

01:12:08

Neuromuscular Disorders Session 17

00:29

𝐓𝐞𝐚𝐦 𝐒𝐚𝐧𝐨𝐟𝐢 𝐇𝐨𝐧𝐨𝐫𝐞𝐝 𝐚𝐭 𝐓𝐡𝐞 𝐑𝐚𝐫𝐞 𝐒𝐭𝐚𝐫 𝐀𝐰𝐚𝐫𝐝𝐬

09:32

𝐔𝐧𝐝𝐞𝐫𝐬𝐭𝐚𝐧𝐝𝐢𝐧𝐠 𝐒𝐩𝐢𝐧𝐚𝐥 𝐌𝐮𝐬𝐜𝐮𝐥𝐚𝐫 𝐀𝐭𝐫𝐨𝐩𝐡𝐲: 𝐈𝐧𝐬𝐢𝐠𝐡𝐭𝐬 𝐟𝐫𝐨𝐦 𝐃𝐫. 𝐃𝐞𝐞𝐩𝐚 𝐁𝐡𝐚𝐭

00:29

𝐃𝐫. 𝐀𝐧𝐧 𝐀𝐠𝐧𝐞𝐬 𝐌𝐚𝐭𝐡𝐞𝐰 𝐇𝐨𝐧𝐨𝐫𝐞𝐝 𝐚𝐭 𝐓𝐡𝐞 𝐑𝐚𝐫𝐞 𝐒𝐭𝐚𝐫 𝐀𝐰𝐚𝐫𝐝𝐬

08:40

𝐀𝐝𝐯𝐚𝐧𝐜𝐢𝐧𝐠 𝐒𝐌𝐀 𝐀𝐰𝐚𝐫𝐞𝐧𝐞𝐬𝐬: 𝐃𝐫. 𝐕𝐲𝐤𝐮𝐧𝐭𝐚 𝐑𝐚𝐣𝐮 𝐄𝐦𝐛𝐫𝐚𝐜𝐞𝐬 𝐓𝐞𝐜𝐡 𝐌𝐞𝐝𝐢𝐜𝐢𝐧𝐞

03:19

𝐒𝐌𝐀 𝐀𝐰𝐚𝐫𝐞𝐧𝐞𝐬𝐬 & 𝐂𝐮𝐦𝐮𝐥𝐚𝐭𝐢𝐯𝐞 𝐎𝐫𝐚𝐥 𝐓𝐡𝐞𝐫𝐚𝐩𝐲: 𝐈𝐧𝐬𝐢𝐠𝐡𝐭𝐬 𝐟𝐫𝐨𝐦 𝐃𝐫. 𝐀𝐧𝐧 𝐀𝐠𝐧𝐞𝐬 𝐌𝐚𝐭𝐡𝐞𝐰

02:13

𝐁𝐫𝐞𝐚𝐤𝐢𝐧𝐠 𝐁𝐚𝐫𝐫𝐢𝐞𝐫𝐬: 𝐑𝐮𝐜𝐡𝐢𝐭𝐚 𝐒𝐚𝐡𝐮𝐤𝐚𝐫𝐢'𝐬 𝐉𝐨𝐮𝐫𝐧𝐞𝐲 𝐰𝐢𝐭𝐡 𝐎𝐬𝐭𝐞𝐨𝐠𝐞𝐧𝐞𝐬𝐢𝐬 𝐈𝐦𝐩𝐞𝐫𝐟𝐞𝐜𝐭𝐚

00:45

𝐁𝐫𝐢𝐭𝐭𝐥𝐞 𝐁𝐨𝐧𝐞𝐬, 𝐔𝐧𝐛𝐫𝐞𝐚𝐤𝐚𝐛𝐥𝐞 𝐒𝐩𝐢𝐫𝐢𝐭: 𝐃𝐡𝐚𝐧𝐲𝐚 𝐑𝐚𝐯𝐢 𝐂𝐡𝐚𝐦𝐩𝐢𝐨𝐧𝐬 𝐖𝐢𝐬𝐡𝐛𝐨𝐧𝐞 𝐃𝐚𝐲 𝐰𝐢𝐭𝐡 𝐂𝐚𝐥𝐥 𝐭𝐨 𝐀𝐜𝐭𝐢𝐨𝐧

00:40

𝐓𝐞𝐚𝐦 𝐨𝐟 𝐈𝐐𝐕𝐈𝐀 𝐇𝐨𝐧𝐨𝐫𝐞𝐝 𝐚𝐭 𝐓𝐡𝐞 𝐑𝐚𝐫𝐞 𝐒𝐭𝐚𝐫 𝐀𝐰𝐚𝐫𝐝𝐬

00:36

𝐃𝐫. 𝐌𝐞𝐞𝐧𝐚𝐤𝐬𝐡𝐢 𝐁𝐡𝐚𝐭 𝐇𝐨𝐧𝐨𝐫𝐞𝐝 𝐚𝐭 𝐓𝐡𝐞 𝐑𝐚𝐫𝐞 𝐒𝐭𝐚𝐫 𝐀𝐰𝐚𝐫𝐝𝐬

00:43

𝐃𝐫. 𝐒𝐚𝐧𝐣𝐞𝐞𝐯𝐚 𝐇𝐨𝐧𝐨𝐫𝐞𝐝 𝐚𝐭 𝐓𝐡𝐞 𝐑𝐚𝐫𝐞 𝐒𝐭𝐚𝐫 𝐀𝐰𝐚𝐫𝐝𝐬

00:39

𝐈𝐥𝐥𝐮𝐦𝐢𝐧𝐚𝐭𝐢𝐧𝐠 𝐇𝐨𝐩𝐞: 𝐓𝐡𝐞 𝐑𝐚𝐫𝐞 𝐒𝐭𝐚𝐫 𝐀𝐰𝐚𝐫𝐝𝐬 𝐂𝐞𝐥𝐞𝐛𝐫𝐚𝐭𝐞 𝐎𝐑𝐃𝐈'𝐬 𝟏𝟎𝐭𝐡 𝐀𝐧𝐧𝐢𝐯𝐞𝐫𝐬𝐚𝐫𝐲 & 𝐃𝐍𝐀 𝐃𝐚𝐲

10:45

𝐃𝐞𝐞𝐤𝐬𝐡𝐚'𝐬 𝐒𝐭𝐨𝐫𝐲: 𝐎𝐯𝐞𝐫𝐜𝐨𝐦𝐢𝐧𝐠 𝐒𝐌𝐀 𝐓𝐲𝐩𝐞 𝟐 𝐰𝐢𝐭𝐡 𝐎𝐑𝐃𝐈 𝐒𝐮𝐩𝐩𝐨𝐫𝐭

06:28

𝐒𝐡𝐫𝐞𝐞𝐧𝐢𝐤𝐞𝐭𝐡𝐚𝐧 𝐍𝐞𝐞𝐝𝐬 𝐚 𝐌𝐢𝐫𝐚𝐜𝐥𝐞: 𝐇𝐨𝐩𝐞 𝐟𝐨𝐫 𝐚 𝐭𝐫𝐞𝐚𝐭𝐦𝐞𝐧𝐭 𝐰𝐢𝐭𝐡 𝐎𝐑𝐃𝐈 𝐒𝐮𝐩𝐩𝐨𝐫𝐭

01:12:36

Paediatric Neuromuscular Session - 20

02:12

Our fight against SMA: Jeevan's story & Hope with ORDI's Support

03:07:41

Duchenne Muscular Dystrophy Practical Standards of care

04:13:36

1st online Webinar on Congenital Hyperinsulinism by ORDI -CHI

01:50:40

1st Neuro Fibromatosis Day 17th May 2023 AIIMS New Delhi by ORDI - AOCN

55:10

ORDI -CHI - 1st Consortium Meeting -https://chi.ordindia.in/

02:19

Dr. Anil Kukreja from Astra Zenica supporting Racefor7

00:41

Mr Shaan Playback Singer appeal for ORDI Racefor7

14:37

Down The Rare Lane from ORDI

01:18

Rare Disease - 75th Independence Day Celebration With ORDI.

01:13

Rare Disease - Cystic Fibrosis Awareness by Indian Celebrity Actress Mamta Mohandas

01:38

Rare Disease - Cystic Fibrosis Awareness in Tamil by Indian Celebrity Singer Chinmayi Sripada

01:17

Rare Disease - Cystic Fibrosis Awareness in English by Indian Celebrity Singer Chinmayi Sripada

01:33

Rare Disease - Cystic Fibrosis Awareness in Telgu by Indian Celebrity Singer Chinmayi Sripada

01:31

Rare Disease - Cystic Fibrosis Awareness video by Indian Celebrity Actress Shilpa Shetty Kundra

00:40

Rare Disease - ORDI x AOCN Webinar Series on RARE Disease in Paediatric Neurology !!

01:18

Rare Disease - To commemorate the #international pompe day @NEWX

00:53

Rare To commemorate the #internationalpompe day, @NEWX and @ORDI bring to you an exclusive coverage

07:50

Rare Disease - Pompe Day 2021 Video by Pompe Foundation - India

01:59:40

Rare Disease - ORDI - Racefor7 2021 Event

03:15

Rare Disease - ORDI - VID 20210227 WA0073

04:18

Rare Disease - ORDI - Lalith suffering from pompe seeking treatment from Government

01:57

Rare Disease - ORDI - Lalith suffering from pompe seeking treatment from Government

01:15

Rare Disease - ORDI - Lalith suffering from pompe seeking treatment from government

00:47

Rare Disease - Serisha mother of child with Hemophilia feels awareness on rare disease is important

01:28

Meet Manish Gore, Alport Syndrome Warrior talk on why awareness and early intervention is important

01:40:56

Rare Disease - ORDI - Advocacy committee meeting 20210117 0536 1

01:40:56

Rare - Need of Disability Certificate for Rare Disease Community - By ORDI -PAG Advocacy Committee

09:45

Rare Disease - ORDI - Virtual Rare Disease Consultation

02:25:21

Rare Disease - ORDI - On Global Garrod's Day

05:07:12

Rare Disease - ORDI - 4th Pediatric Bioethics 29TH Nov 2020

46:56

Rare Disease-Lynch Syndrome Diagnostic Approach And Prevention with Aspirin in the Hereditary Cancer