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Mission MSA @UCFnzNUKuK4mOCwVAPJsAJaw@youtube.com

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Leading the Charge to Cure Multiple System Atrophy. Mission


33:17
Clinical Trial Round Up
59:05
Neuroimaging in Multiple System Atrophy
07:49
How to Use ClinicalTrials.gov
02:45
MSA Connect: Register for the MSA Coalition's 2023 Annual Patient and Family Virtual Conference
02:30
MSA Connect: How to Create a Post in MSA Connect
02:44
MSA Connect: How to Receive Notifications from MSA Connect
02:04
MSA Connect: How to Join Groups in MSA Connect
01:25
MSA Connect: Edit your Profile in MSA Connect
03:47
MSA Connect: Welcome to MSA Connect!
02:32
MSA Connect: Activate Your Account - Step-by-Step Guide
01:06:49
Tips for Speech & Swallowing Challenges in Multiple System Atrophy
48:17
Multiple System Atrophy Clinical Trial Roundup
58:23
Why Do I Care About Multiple System Atrophy Research?
01:31:10
Ask the Experts: Medical Panel Discussion | Multiple System Atrophy Awareness Month March 2023
01:02:05
Multiple System Atrophy Patient Panel March 2023
01:01:38
What is Multiple System Atrophy (MSA) and How Does It Impact Me and My Family?
01:08:05
From Bench to Bedside: The Promise and Hope of MSA Research with Dr. Roy Freeman
23:15
Updates from Dr. Wolfgang Singer on Spinal Fluid Biomarkers and Mesenchymal Stem Cells as Disease...
18:20
Clinical Trial of Ubiquinol for Multiple System Atrophy with Shoji Tsuji
06:42
"Why I Volunteered with the MSA Coalition" with Board Members Adrienne Marioles and Neil Versel
09:08
2022 Research Seed Grant Announcements with Pam Bower, Vice Chair
29:25
2022 Conference Day 3 | Self Care and Mindfulness with Melissa Budahazy, APN-BC, MA, RN-BC
04:08
Announcing the 2022 Patient Advocate Award Recipient Austin Crawford
01:58
Conference 2022 Day 3 | Closing Remarks with Chair Cyndi Roemer
19:13
2022 Conference Day 3 | Living your Best Life with MSA with Sara Blass and Lisa Hale
01:00:48
2022 Conference Day 3 | Research Panel Q&A
19:59
2022 Conference Day 3 | Self Advocacy in Rare Disease Communities Q&A
28:44
2022 Conference | Self Advocacy in Rare Disease Communities with Jim Sliney Jr., Patients Rising
46:41
2022 Conference | Presentation from Dr. Wolfgang Singer and Applications of Genetics in MSA
50:25
2022 Conference | MRI markers of progression in MSA and How to Diagnose MSA - The New MDS criteria
28:06
2022 Conference Day 3 | Clinical Trial Ready Cohorts at MGB with Vik Khurana MD PhD
23:24
2022 Conference Day 3 | Q&A with Glenn Kantor, Founding Partner of Kantor & Kantor, LLP
19:41
2022 Conference Day 3 | Practical Planning: Insurance and Other Benefits Consideration
14:28
Physiotherapy in Patients with Multiple System Atrophy with Cecilia Raccagni
07:29
The MSA Coalition Support and Education Overview with Larry Kellerman, Lisa Hale, and Moriah Meeks
05:24
An Advocacy Update from Joe Lindahl, Executive Director, and Patricia Libby Thvedt, Secretary
03:10
2021 Financial Presentation with MSA Coalition Treasurer, Carol Langer
20:33
2022 Conference | Mobility and Rehabilitation Interventions to Maintain Quality of Life in MSA Q&A
50:25
2022 Conference Day 2 | Mobility and Rehabilitation Interventions to Maintain Quality of Life in MSA
52:40
2022 Conference | Palliative Medicine & Hospice with Dr. Tamara McGregor and Deanna Upchurch, MA
11:03
2022 Conference Day 2 | Palliative Medicine and Hospice Q&A
20:37
2022 Conference Day 2 | Managing MSA Q&A
21:12
2022 Conference Day 2 | Managing Multiple System Atrophy: Psychology and MSA with Dr. Paul Chafetz
25:35
2022 Conference Day 2 | Managing MSA Orthostatic Hypotension – Disease State, Mechanisms & Treatment
29:24
2022 Conference Day 2 | Managing Multiple System Atrophy: Sleep Disorders in MSA with Dr. Miglis
12:39
2022 Conference Day 2 | Managing Multiple System Atrophy: Bladder and MSA with Dr. Gary Lemack
32:14
2022 Conference Day 2 | Nutrition and Multiple System Atrophy with Alicia Gilmore
14:21
2022 Conference Day 2 | Q&A on Nutrition and Multiple System Atrophy with Alicia Gilmore
47:43
2022 Conference Day 2 | Presentation from Share the Care Author Sheila Warnock
11:31
2022 Conference Day 2 | Q&A with Share the Care Author Sheila Warnock
41:04
2022 Conference Day 1 | Q&A with The Multidisciplinary MSA Clinic
01:56
Volunteering with the Multiple System Atrophy Coalition with Board Member Elizabeth Dyas
22:04
Dr. David Finkelstein with Linda Williams on Targeting Brain Iron in Multiple System Atrophy
18:48
Dr. Wassilios Meissner on New Multiple System Atrophy Therapies in the Pipeline
10:58
An Exclusive Tour of UT Southwestern Multiple System Atrophy Clinic with Dr. Seven Vernino
13:09
2022 Conference Day 1 | Dr. McFarland on Creating an MSA Center of Excellence
20:40
2022 Conference Day 1| Dr. Coon on Components of an MSA Center of Excellence
15:42
2022 Conference Day 1| Dr. Vernino on Inception to Implementation of a Center of Excellence
31:18
Making Your Home Work for You: A Toolkit for Home Modifications with Laury McNair | 2022 Conference
05:38
2022 Patient & Family Conference Welcome Remarks from Cyndi Roemer, Chair, and Joe Lindahl, CAE