59:56

From Referral to Care: Navigating Home Health for MSA

01:03:51

Patient & Family Conference (2023) - Planning Ahead

01:05:41

Patient & Family Conference (2023) - Handling MSA Symptoms

01:02:48

MSA Awareness Month: Patient Panel (2024)

46:46

Patient & Family Conference (2023) - MSA Research Update

45:00

Patient & Family Conference (2023) - Coping with Grief

09:31

Patient & Family Conference (2023) - Organization Update

05:35

Patient & Family Conference (2023) - Voices of the MSA Community

05:25

Patient & Family Conference (2023) - Welcome Remarks

01:01:43

Unleashing the Potential of Genomics to Unravel Multiple System Atrophy

33:17

Clinical Trial Round Up

59:05

Neuroimaging in Multiple System Atrophy

07:49

How to Use ClinicalTrials.gov

02:45

MSA Connect: Register for the MSA Coalition's 2023 Annual Patient and Family Virtual Conference

02:30

MSA Connect: How to Create a Post in MSA Connect

02:44

MSA Connect: How to Receive Notifications from MSA Connect

02:04

MSA Connect: How to Join Groups in MSA Connect

01:25

MSA Connect: Edit your Profile in MSA Connect

03:47

MSA Connect: Welcome to MSA Connect!

02:32

MSA Connect: Activate Your Account - Step-by-Step Guide

01:06:49

Tips for Speech & Swallowing Challenges in Multiple System Atrophy

48:17

Multiple System Atrophy Clinical Trial Roundup

58:23

Why Do I Care About Multiple System Atrophy Research?

01:31:10

Ask the Experts: Medical Panel Discussion | Multiple System Atrophy Awareness Month March 2023

01:02:05

Multiple System Atrophy Patient Panel March 2023

01:01:38

What is Multiple System Atrophy (MSA) and How Does It Impact Me and My Family?

01:08:05

From Bench to Bedside: The Promise and Hope of MSA Research with Dr. Roy Freeman

23:15

Updates from Dr. Wolfgang Singer on Spinal Fluid Biomarkers and Mesenchymal Stem Cells as Disease...

18:20

Clinical Trial of Ubiquinol for Multiple System Atrophy with Shoji Tsuji

06:42

"Why I Volunteered with the MSA Coalition" with Board Members Adrienne Marioles and Neil Versel

09:08

2022 Research Seed Grant Announcements with Pam Bower, Vice Chair

29:25

2022 Conference Day 3 | Self Care and Mindfulness with Melissa Budahazy, APN-BC, MA, RN-BC

04:08

Announcing the 2022 Patient Advocate Award Recipient Austin Crawford

01:58

Conference 2022 Day 3 | Closing Remarks with Chair Cyndi Roemer

19:13

2022 Conference Day 3 | Living your Best Life with MSA with Sara Blass and Lisa Hale

01:00:48

2022 Conference Day 3 | Research Panel Q&A

19:59

2022 Conference Day 3 | Self Advocacy in Rare Disease Communities Q&A

28:44

2022 Conference | Self Advocacy in Rare Disease Communities with Jim Sliney Jr., Patients Rising

46:41

2022 Conference | Presentation from Dr. Wolfgang Singer and Applications of Genetics in MSA

50:25

2022 Conference | MRI markers of progression in MSA and How to Diagnose MSA - The New MDS criteria

28:06

2022 Conference Day 3 | Clinical Trial Ready Cohorts at MGB with Vik Khurana MD PhD

23:24

2022 Conference Day 3 | Q&A with Glenn Kantor, Founding Partner of Kantor & Kantor, LLP

19:41

2022 Conference Day 3 | Practical Planning: Insurance and Other Benefits Consideration

14:28

Physiotherapy in Patients with Multiple System Atrophy with Cecilia Raccagni

07:29

The MSA Coalition Support and Education Overview with Larry Kellerman, Lisa Hale, and Moriah Meeks

05:24

An Advocacy Update from Joe Lindahl, Executive Director, and Patricia Libby Thvedt, Secretary

03:10

2021 Financial Presentation with MSA Coalition Treasurer, Carol Langer

20:33

2022 Conference | Mobility and Rehabilitation Interventions to Maintain Quality of Life in MSA Q&A

50:25

2022 Conference Day 2 | Mobility and Rehabilitation Interventions to Maintain Quality of Life in MSA

52:40

2022 Conference | Palliative Medicine & Hospice with Dr. Tamara McGregor and Deanna Upchurch, MA

11:03

2022 Conference Day 2 | Palliative Medicine and Hospice Q&A

20:37

2022 Conference Day 2 | Managing MSA Q&A

21:12

2022 Conference Day 2 | Managing Multiple System Atrophy: Psychology and MSA with Dr. Paul Chafetz

25:35

2022 Conference Day 2 | Managing MSA Orthostatic Hypotension – Disease State, Mechanisms & Treatment

29:24

2022 Conference Day 2 | Managing Multiple System Atrophy: Sleep Disorders in MSA with Dr. Miglis

12:39

2022 Conference Day 2 | Managing Multiple System Atrophy: Bladder and MSA with Dr. Gary Lemack

32:14

2022 Conference Day 2 | Nutrition and Multiple System Atrophy with Alicia Gilmore

14:21

2022 Conference Day 2 | Q&A on Nutrition and Multiple System Atrophy with Alicia Gilmore

47:43

2022 Conference Day 2 | Presentation from Share the Care Author Sheila Warnock

11:31

2022 Conference Day 2 | Q&A with Share the Care Author Sheila Warnock