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SJIAFoundation @UCEreh3ApKjKRethD4UOiYkA@youtube.com

625 subscribers - no pronouns :c

Our mission is to find a cure for Systemic Juvenile Idiopath


01:54:37
Working Session - Accelerate Study and Natural History Study
29:26
Final Working Session
01:10:35
SJIA Lung Disease Cytokine Plasticity Hypothesis - Peter Nigrovic & Bruce Binstadt
01:09:23
Searching for Historical Control for Refractory SJIA Trials
33:46
Patient Perspective for Lung Disease in SJIA
17:21
Summary of Challenges in Refractory SJIA Trials - Rashmi Sinha
15:40
Lung Ultrasound to track lung disease in SJIA LD Patients - Patricia Vega
38:47
The Role of External Controls in FDA Decision Making - Veronica Miller
44:46
Retrospective Natural History Study in SJIA & MAS
44:08
How to include refractory SJIA w/out arthritis in Clinical Trials?
58:07
How to overcome barriers to MAS Clinical Trials?
59:00
It is Time for IL18 Driven Clinical Trials
22:15
Real World Evidence for Rare Disease Clinical Trials - Isaac Kohane
49:37
The Elephant in the Room SJIA Diagnostic/Classification Criteria
20:30
Unmet Needs and Patients Stories
53:41
Working Session - SJIA Diagnostic Criteria and IL18 Trials
13:01
Distinct Clinical Phenotypes in Refractory SJIA & MAS - Alexei Grom
01:42:12
BMT in Refractory SJIA-Lung Disease
09:00
A Lifetime with SJIA - Nicole Dalton
20:16
The Many Faces of Refractory SJIA - Parent Panel
25:42
MAS: Old and New Treatments - Scott Canna
21:16
What is Stills Disease and Strategies for Treatment - Petros Efthimiou
18:58
What is SJIA and Strategies for Treatment: Alexei Grom
17:58
Some Interesting SJIA-LD Cases from around the world
21:25
SJIA-LD Research Updates: Vivan Saper
14:12
SJIA-LD Research Updates: Grant Schulert
18:41
SJIA LD Research Update - Adriana Almeida De Jesus
14:05
SJIA-LD Research Updates: Scott Canna
42:35
Global Perspecitves on Treating SJIA
29:46
Bridging the Gap Between SJIA and Still's
36:29
Treating Refractory SJIA and MAS
01:08:30
SJIA-LD Treatment Strategies QA
40:04
Panel Discussion: What do we know about SJIA-LD
41:41
COVID-19 in SJIA & Other Rheumatic Patients
02:15:42
Challenges in Drug Development for SJIA, Still’s & MAS
19:32
Patients with recurrent MAS & liver involvement - Kate & Jonathan Pierce & Zulayka Martinez
35:27
Understanding the patient experience of SJIA-LD
11:48
Pathology in MAS Liver patients - Alexei Grom & Fabrizio DeBenedetti
14:34
Is Emapalumab relevant for SJIA-LD patients - Fabrizio DeBenedetti
43:11
SJIA LD Panel - Rae Yeung, Raphaela Goldbach Masnky, Alexei Grom, Stewart Levine
24:50
Jak inhibitors Panel - Adriana de Jesus, Massimo Gadina & Fabrizio DeBenedetti
21:01
Alveolar Macrophage Dysfunction in Lung Disease - Stewart Levine
30:11
Review of biomarkers; IL18 as a biomarker and a target - Dr. Scott Canna
31:05
Report from Grom & Schulert labs about SJIA-LD - Dr. Alexei Grom
27:01
Learnings from Cincinnati SJIA-LD patient cohort - Grant Schulert
28:40
An overview of selective Jak inhibitors and relevance for SJIA-LD - Dr. Massimo Gadina
10:35
SJIA Foundation Mission - Rashmi Sinha
07:30
SJIA Foundation Community - Leah Bush
31:50
What we Know About Lung Disease in SJIA - Grant Schulert
06:01
How the SJIA Foundation Plans to Reach every SJIA Family - Phil Reardon
24:08
Treating Infections in the Context of Inflammation & Immunosuppression - Lara Danziger-Isakov
17:33
Research Powered by the Family Day Sample Collection - Alexei Grom
27:37
Expert Panel - Ask Anything about SJIA & MAS
21:43
Introduction to SJIA - Jennifer Huggins
24:15
Impaired Growth: Lessons from Crohns - Lee Denson
33:11
New Drugs for SJIA & MAS - Fabrizio DeBenedetti
03:43
Setting the Stage for Discussion of MAS & Lung Disease - Alexei Grom
21:14
Cell based therapies in sJIA - Nora Singer
08:48
IL6 Updates - Fabrizio DeBenedetti
38:09
Ella's Story - Perspectives on sJIA treatment - Frank Giamie