04:12

VHL Awareness Walk Kick Off | May 18th, 2024

05:02

VHL Overview | What Is VHL?

59:41

PRMRP Funding Details Webinar 2024 | VHL Alliance

01:28:25

VHL Veterans Panel | November 2023

01:24:44

VHL 101 | Dr. Othon Iliopoulos, MD, PhD

04:38

Hemangioblastoma and Mosaic Von Hippel Lindau Disease | Elizabeth Sangiorgi

02:36

Meet Amit Tirosh, MD | VHL Researcher | Sheba Medical Center

03:13

Meet John C. Chappell, PhD | VHL Researcher | Virginia Tech Carilion

06:44

Meet Anna Matynia, PhD | VHL Researcher | UCLA

03:20

What Is The VHLA Tumor Board? | Tobias Else, MD, University Of Michigan

01:00:22

Navigating Tough Conversations with Leona de Vinne

30:28

Oncogenic Drivers for VHL Related Pancreatic Neuroendocrine Tumors | Amit Tirosh, MD

28:30

Investigating PIkfyve and Lysosomes as Target in VHL Diseases | Sandra Turcotte, PhD

31:09

Nontraditional Tumor Associated Antigens in ccRCC | William Y. Kim, MD

01:09:17

Keynote: VHL: Gene to Pathway to Precision Management to Therapy | W. Marston Linehan, MD

29:52

VHL and Other Emergent Pseudohypoxic Diseases | Fraser Ferens, PhD

11:58

Tumor Heterogeneity Analysis Using Single Cell Transcriptomics in VHL | Isaline Rowe, PhD

27:17

Natural History and Treatment of Hemangioblastomas in VHL | Othon Iliopoulos, MD, PhD

31:33

Psychosocial Impact of VHL | Rachel van Leeuwaarde, MD, PhD

14:54

Applying a Disease Specific Annotation Protocol for VHL Gene Curation | Sarah Ridd

29:08

FDA Approval of Belzutifan | Eric Jonasch, MD

29:12

Testing Treatments of Ocular Hemangioblastomas Associated with VHL | Emily Chew, MD

29:37

Management of CNS Manifestations of VHL | Prashant Chittiboina, MD

28:38

Hypoxia Inducible Factors Mediate Immune Evasion of Cancer Cells| Gregg L. Semenza, MD, PhD

32:40

Long Term Outcomes in Survivors of Hereditary Childhood Cancer | Paul Nathan, MD, MSc

14:07

Unique Characteristics of VHL Pancreatic Tumors by Diagnostic Criteria | Reut Halperin, MD, PhD

32:51

Management of VHL Associated Pheochromocytoma/Pancreatic Lesions | Electron Kebebew, MD, FACS

01:01:01

Update on Hereditary Pheochromocytoma | Karel Pacak, MD, PhD, DSc, FACE

26:39

Translational Trials for the Early Detection of Kidney Cancer | Christian Hoerner, PhD

13:18

VHL Drug Therapy | Sandy Srinivas, MD

19:28

New Perspectives in the Treatment of CNS VHL | Lawrence Recht, MD

41:39

Systemic Therapy for Von Hippel-Lindau Associated Tumors | Ramaprasad Srinivasan, MD, PhD

30:25

Role Of Renal Ablative Therapy and Minimally Invasive Surgery in VHL Treatment | Benjamin Chung, MD

33:53

Diagnosis & Management of Ocular Manifestations of VHL Disease | Darius Moshfeghi, MD

24:28

5 Life Lessons Gained From Overcoming VHL Adversities | Chris Jankulovski

30:09

Von Hippel-Lindau In Pediatric Patients | Laura Prolo, MD

14:31

Treatment of VHL | Neurological Manifestations In Adults | Steven D. Chang, MD

01:27:23

Genetic Overview & Subtyping of VHL | Nicki Chun, MS, CGC

30:46

Dating, Disclosure and VHL

03:46

Practice Update: Updated Results of Belzutifan for Advanced RCC

59:03

VHLA Town Hall on Welireg

01:39:01

Warrior Call 2022 honoring Dr. Othon Iliopoulos

09:34

Genetic Counseling for VHL

01:22:57

2022 MyVHL Day Celebration Event

06:27

Practice Update: Healthcare Resource Utilization and Costs Among Patients with VHL-Associated RCC

07:45

Practice Update: Belzutifan FDA Approval for VHL-Associated Cancers

01:12:11

Belzutifan: Tratamiento para EVHL

33:29

Welireg (Belzutifan) Q&A Session with Dr. Othon Iliopoulos

01:10

Curing Cancer Through VHL

01:05:17

VHLA Town Hall on Belzutifan (Welireg)

01:00:32

2021 MyVHL Day Celebration Event

05:32

Diversity, Equity, Inclusion, and VHL

03:43

Management of VHL Patients in the Era of COVID-19

14:49

Elysa Bond MS, CGC: Disclosure of Genetic Risk to Dating Partners Among Young Adults with VHL

30:28

CCC Spotlight: Kim Nichols, MD (Oncology, St Jude)

32:19

CCC Spotlight: Gina Nuccio, MS, CGC (Genetic Counseling, St Jude)

27:15

2020 International VHL Medical/Research Symposium: Koen van Overdam, MD

01:10:02

2020 International VHL Medical/Research Symposium Keynote Address: William G. Kaelin Jr., MD

17:17

2020 International VHL Medical/Research Symposium: Axel Bex, MD, PhD

25:16

2020 International VHL Medical/Research Symposium: Betty Gardie, PhD