The campaign for real healthcare for Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorder in Ireland.
๐ My name is Kitty Colbert, I live in Ireland, and I have Hypermobility type Ehlers-Danlos Syndrome - hEDS (as well as a few of the comormidites). Please sign our petition on the website www.eds4ire. Tell your story -use the hashtag #EDS4IRE on social media for a share/ RT.
Here you'll find videos relating to EDS/ HSD, disability issues, with a particular focus on the newly diagnosed and those living with these conditions in Ireland.
[Disclaimer: As always -I am not a medical professional and speak only from a patient perspective. As I note in all of my videos, only a trained rheumatologist can diagnose EDS and HSD, and give you advice on what tests and treatments are best suited to your unique case. My advice is simply on what treatments exist out there, and where to access care and support. For further information see www.eds4ire.ie]