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About
Hi, I’m Laura — and this is my daughter Mila 🤍
Mila was born with a very rare neurological disorder called STXBP1. It affects fewer than 300 children worldwide, and it impacts her ability to walk, sit, talk, and even hold her head up. For years, we didn’t know what her future would look like.
She’s now almost 5… and every single day she shows us what strength really looks like.
💪 She couldn’t hold her head until age 3
💫 She’s still working hard to sit and stand
💖 But she does it all with a smile
This page is to share her journey — the hard days, the beautiful wins, and everything in between. If you’ve ever felt alone in parenting a medically complex or low-tone child… you’re not. We’re walking this path too.
Joined 21 November 2023
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