3 Videos
Epidermolyse bulleuse / Epidermolysis bullosa
5 Videos
Maladie d'Huntington
26 Videos
Shorts Websérie "Couple et maladies rares" par EwenLife
6 Videos
Berthold - Maladie de Morbus Fabry - Morbus Fabry disease
12 Videos
Web série "Couple et maladies rares" par EwenLife
8 Videos
Témoignage sur la sarcoïdose - Tony
6 Videos
Maladie de Cushing / Cushing disease
37 Videos
Les nouveaux témoignages de nos Ewens/ Our Ewens' new stories
7 Videos
Dystonie musculaire / Muscular dystonia
4 Videos
Autisme et maladies rares
2 Videos
Lupus
1 Videos
Maladie de Charcot Marie Tooth / Charcot-Marie-Tooth disease
8 Videos
Leucinose / MSUD
3 Videos
Vivre avec le polyhandicap/Living with multiple disabilities
10 Videos
Syndrome de Bardet-Biedl / Bardet Biedl syndrome
8 Videos
Syndrome de Noonan / Noonan syndrome
7 Videos
Syndrome de Kleefstra / Kleefstra syndrome
8 Videos
Tétrasomie X / Tetrasomy X
14 Videos
Mucoviscidose / Cystic fibrosis
5 Videos
Syndrome de Minor / Minor Syndrome
12 Videos
🧬ElDécode
21 Videos
Syndrome de déficit en GLUT1 / GLUT1 deficiency syndrome
15 Videos
Syndrome de Rett / Rett syndrome
11 Videos
Syndrome de Meige / Meige's syndrome
11 Videos
Syndrome CHARGE / CHARGE syndrome
10 Videos
Maladie de Rendu Osler Weber/ Weber Osler Rendu disease
1 Videos
Ce qu'EwenLife m'a apporté
8 Videos
Cutis Laxa
10 Videos
Neurofibromatose / Neurofibromatosis
4 Videos
Les EwenLive : les professionnels nous expliquent
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About
Committed to the fight against isolation, the EwenLife Association helps caregivers and patients suffering from Rare Disease.
Based on the idea of mutual support, EwenLife provides a platform where people can share their experiences, tips, and tricks for people either directly or indirectly affected by rare disease.
Thus, it provides free videos accessible by anyone, at any time. This allows patients, caregivers, and families to regain confidence in themselves, their potential
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