1 Videos
A Rare Disease Webinar
4 Videos
Invisible Interviews
7 Videos
Research & Clinical Trials
3 Videos
Niemann-Pick Disease
5 Videos
Living with Niemann-Pick disease type C (NP-C)
2 Videos
Living with ASMD Niemann-Pick Disease type B
5 Videos
My Story
3 Videos
Meet Our Team
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About
We are a charitable organisation dedicated to making a positive difference to the lives of those affected by Niemann-Pick diseases. At NPUK our goal is to raise much needed awareness, provide practical and emotional support, advice and information and facilitate research into potential therapies.
We are a small charity with less than five hundred members, the work we do is funded entirely through fundraising activities and successful grant applications. Our strength, therefore, comes from the dedication of our much valued families, members, benefactors and volunteers who work with tremendous effort and loyalty in support of the charity.
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