13:37

2020 International VHL Medical/Research Symposium: Ruhee Dere, PhD

25:56

2020 International VHL Medical/Research Symposium: Ian Frew, PhD

23:59

2020 International VHL Medical/Research Symposium: Anna Matynia, PhD

18:29

2020 International VHL Medical/Research Symposium: Tien Hsu, PhD

29:28

2020 International VHL Medical/Research Symposium: Sven Glasker, MD, PhD

28:05

2020 International VHL Medical/Research Symposium: Eric Jonasch, MD

22:05

2020 International VHL Medical/Research Symposium: Henri Timmers, MD, PhD

19:19

2020 International VHL Medical/Research Symposium: Othon Iliopoulos, MD, PhD

17:09

Meet the Executive Director - Chandra Clark, MEd

35:23

The Updated VHL Surveillance Guidelines & What They Mean for You

38:46

The Difference Between Hemangioblastomas and Other Brain Tumors with Dr. Gautam Mehta

07:44

ASCO: A Novel Therapy for VHL Disease-Associated Renal Cell Carcinoma

03:56

Brayden King

30:12

VHL and HIF-2alpha Inhibitors: A Conversation with Dr Eric Jonasch

27:54

CCC Spotlight: Benjamin Maughan, MD, PharmD (Oncology)

15:15

CCC Spotlight: Randy Jensen, MD, PhD (Neurosurgery)

53:12

Coffee Against Cancer: a conversation about VHL

35:32

2nd Virtual Open Mic Night with Emily B from Season 6 of The Voice

24:17

Meet the Executive Director: Ilene Sussman, PhD

16:34

Reproductive Genetics and Family Planning – Wendy Chung, MD, PhD

21:29

Adrenal Considerations in VHL – James Lee, MD

21:59

Screening, Early Detection, and Kidney Sparing Surgery for VHL – James McKiernan, MD

27:07

Central Nervous System Tumors in von Hippel-Lindau Syndrome – Jeffrey Bruce, MD

13:02

Screening and Management of Pancreatic Cysts in VHL – John Chabot, MD

19:08

CCC Spotlight: Samantha Greenberg, MS, MPH, CGC (Genetic Counseling)

13:23

CCC Spotlight: Alejandro Sanchez, MD (Urology)

39:51

Meet the Researcher: Amit Tirosh, MD (Endocrinology)

57:05

Meet the Researcher: Barbara Mysona, PhD, MS

01:06:54

Meet the Researcher: Anna Matynia, PhD

44:48

Meet the Researcher: Betty Gardie, PhD

41:11

Meet the Researcher: Ramaprasad Srinivasan, MD, PhD

35:01

Meet the Researcher: Mark Ball, MD

58:28

Wine and Wisdom: Wine Tasting with Leona & Rod

15:30

Surviving, Thriving & Crafting: Get Hooked on Crochet with Alison Gaskell

48:26

Virtual Open Mic Night with Emily B from Season 6 of The Voice

30:02

Meet the Researcher: Jacques Izard, PhD

22:30

Turning Lemons Into Cocktails with @BakkeCooks

36:52

Meet the Researcher: Naris Nilubol, MD

16:53

CCC Spotlight: Philippe Spiess, MD, MS (Urology, Moffitt)

26:37

Meet the Researcher: Prashant Chittiboina, MD, MPH (Neurosurgery, NINDS/NIH)

35:12

CCC Spotlight: Ilana Chilton, MS, CGC (Genetic Counseling, NYP/Columbia)

30:53

CCC Spotlight: Russell Lonser, MD (Neurosurgery, OSU)

05:19

The Mighty Compilation Video

00:44

The Importance of MyVHL with Manuel Greco

01:24

MyVHL and Dr. Philippe Spiess - The VHL Alliance

01:05

MyVHL and Leona de Vinne - The VHL Alliance

01:21

MyVHL and Dr. Kim Rathmell - The VHL Alliance

00:34

MyVHL and Dr. Eric Jonasch - The VHL Alliance

01:16

MyVHL and Samantha Greenberg - The VHL Alliance

01:46

MyVHL and Dr. Amit Tirosh - The VHL Alliance

00:51

MyVHL and April Rorabaugh - The VHL Alliance

01:10

MyVHL and Dr. Nick Cost - The VHL Alliance

01:45

Team VHL at the 2016 Baltimore Marathon

01:10

Emily B Talks About VHL

01:55

The Cure for Cancer is in Our Genes

11:18

Rare Disease Day 2013 - Julie Tells Her Story

02:08

My Life with VHL - VHL Alliance

03:00

Meet VHL - Help us find a cure!

05:06

What is von Hippel-Lindau Disease? One Patient's VHL Story - The VHL Alliance