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Perspectives from a Neurologist Living with MS - YouTube

https://www.youtube.com/watch?v=aCFGBrZEn0U
A neurologist living with MS discusses how the team approach works at his comprehensive MS Center and speaks about what the future looks like for someone new

Patient and Provider Insights into the Impact of Multiple Sclerosis on

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8056993/
Multiple sclerosis (MS) is a chronic disease in which the immune system attacks the central nervous system, causing inflammation and neurodegeneration. People living with MS may experience a variety of symptoms as a consequence of this process, including many "invisible" symptoms that are internally manifested and not seen by others.

Comprehensive Approach to Management of Multiple Sclerosis: Addressing

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8057008/
Introduction. Multiple sclerosis (MS) is a chronic autoimmune disease of the central nervous system (CNS) in which the immune system attacks myelin sheaths, the insulating layer that forms around the nerves of the CNS, leading to the accumulation of nerve damage over time [].This neurodegeneration can lead to a variety of clinical symptoms that can vary from patient to patient.

Individual, but Shared, Experiences with Multiple Sclerosis - Healthline

https://www.healthline.com/health/multiple-sclerosis/connected-by-ms
This neurological condition affects the central nervous system, causing fatigue, muscle stiffness, and other symptoms that can profoundly alter a person's quality of life. Although MS can strike

Multiple Sclerosis: Fixing the Patient-Neurologist Disconnect

https://www.medpagetoday.com/resource-centers/advances-in-multiple-sclerosis/multiple-sclerosis-fixing-patient-neurologist-disconnect/5207
The presence and burden of cognitive issues: discordance between the perception of neurologists and people living with multiple sclerosis. Eur J Neurol . Published online March 18, 2024. doi:10.

Have you struggled to find a neurologist who understands MS?

https://multiplesclerosisnewstoday.com/columns/2023/09/22/how-patients-can-benefit-seeing-multiple-sclerosis-specialists/
It certifies MS neurologists and nurses as specialists, which requires, among other things, a two-hour exam involving knowledge of MS fundamentals, multidisciplinary MS care, and patient empowerment.

Barriers to quality of life in patients with multiple sclerosis: a

https://bmcneurol.biomedcentral.com/articles/10.1186/s12883-022-02700-7
Multiple sclerosis (MS) is a chronic progressive disease of the central nervous system that affects the patients' quality of life. This research was conducted with the aim of identifying the barriers of quality of life in patients with MS. This qualitative study was conducted through a conventional content analysis approach. We used the purposeful sampling with maximum diversity in terms of

Then and Now: 20 Years Later, What Has Changed in MS?

https://journals.lww.com/neurotodayonline/Fulltext/2021/08190/Then_and_Now__20_Years_Later,_What_Has_Changed_in.2.aspx
20 Years: Then and Now. To mark Neurology Today's twentieth year of publication, we are publishing a series of stories that look back at the ways in which the practice and subspecialties of neurology have changed in 20 years. This article is the first in the series. doi: 10.1097/01.NT.0000790204.54971.52.

Neurologists' views on patient reported outcomes in multiple sclerosis

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9193910/
1. Introduction. Patient reported outcomes (PROs) are aimed at systematically capturing patients' perspectives [].PROs are information on the patient's health, quality of life, or functional status associated with health care or treatment directly reported by the patient without interpretation of the patient's response by a clinician or anyone else [].

10 Things Neurologists Want MS Patients to Know - HealthCentral

https://www.healthcentral.com/slideshow/things-neurologists-want-ms-patients-to-know
You Can Have a Pseudo-Relapse. A relapse—a sudden onset of neurological symptoms such as blurred vision, numbness, dizziness—is a hallmark of MS. It's possible to have symptoms but not truly

Patient perspectives on patient-reported outcomes in multiple sclerosis

https://www.sciencedirect.com/science/article/pii/S2211034821007410
A total of 28 aspects of living with MS were identified, reflecting a broad range of concerns and symptoms among the informants. The described characteristics have been grouped into five main categories (Table 2).The informants were asked to prioritize which aspects were of most importance to them when seeing a neurologist, with the majority reporting that prioritizing a few aspects was

6 lessons I've learned since being diagnosed with MS

https://www.novanthealth.org/healthy-headlines/6-lessons-ive-learned-since-being-diagnosed-with-ms
No. 4: Trust your gut, literally. No one knows your body like you do. Diet has a huge impact for me. I try to consume anti-inflammatory foods, though I struggle to stay on track sometimes. You can't always control what happens within, but you can control some aspects of living with this condition.

Lessons From My Journey With Relapsing-Remitting MS - WebMD

https://www.webmd.com/multiple-sclerosis/features/rms-wish-id-known
By Darbi Haynes-Lawrence, PhD, as told to Evan Starkman. It's been 13 years since my neurologist diagnosed me with relapsing-remitting MS, and I still forget that I'm disabled a lot. I'm 47, but

The role of multidisciplinary MS care teams in supporting lifestyle

https://onlinelibrary.wiley.com/doi/full/10.1111/hex.14042
The number of people living with multiple sclerosis (MS) ... discussions alongside DMT's. 13 Limited studies that have explored clinician perspectives have only focussed on MS speciality neurologists and nurses across Australia, ... From a consumer perspective, acceptance of healthcare education was also influenced by external factors including

For Your Patients: What to Expect After a Multiple Sclerosis Diagnosis

https://www.medpagetoday.com/medical-journeys/ms/108547
Some of the common symptoms associated with MS are the following: Visual symptoms: pain when moving an eye, blurred vision, loss of vision in one eye, and poor contrast or color vision. Motor

Living With Multiple Sclerosis: Perspective

https://traffic.libsyn.com/secure/realtalkms/MS-Carers-Report-2018.pdf?dest-id=570472
Germany in Multiple Sclerosis Merck KGaA, Darmstadt, Germany has a long-standing legacy in neurology and immunology, with significant R&D and commercial experience in multiple sclerosis (MS). Merck KGaA, Darmstadt, Germany aims to improve the lives of those living with MS, by addressing areas of unmet medical needs.

Patient and Provider Insights into the Impact of Multiple Sclerosis on

https://pubmed.ncbi.nlm.nih.gov/33877584/
Multiple sclerosis (MS) is a chronic disease in which the immune system attacks the central nervous system, causing inflammation and neurodegeneration. People living with MS may experience a variety of symptoms as a consequence of this process, including many "invisible" symptoms that are internally manifested and not seen by others.

MS Is a Pain, and Doctors Should Know It - Multiple Sclerosis News

https://multiplesclerosisnewstoday.com/columns/2019/05/13/ms-is-a-pain-doctor-and-you-should-know-that/
The National Multiple Sclerosis Society says that pain is common for MS patients. It can rob us of sleep and make life in general miserable. The pain can include: Burning, prickling, stabbing, ice

Patient and Provider Insights into the Impact of Multiple Sclerosis on

https://link.springer.com/article/10.1007/s40120-021-00240-9
Multiple sclerosis (MS) is a chronic disease in which the immune system attacks the central nervous system, causing inflammation and neurodegeneration. People living with MS may experience a variety of symptoms as a consequence of this process, including many "invisible" symptoms that are internally manifested and not seen by others. Of the invisible symptoms of MS, which we have reviewed

Communication between persons with multiple sclerosis ... - ScienceDirect

https://www.sciencedirect.com/science/article/pii/S0738399122003366
1. Introduction. Multiple sclerosis (MS) is a chronic, unpredictable, immune-mediated, disabling disease [1], [2].The incidence and prevalence of MS have increased [1], with the current prevalence in the US at 309.2 per 100,000 or approximately one million people [3].MS has three major types: relapsing−remitting MS, primary progressive MS, and secondary progressive MS [1].

Is it worth it?: The experiences of persons with multiple sclerosis as

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7696118/
We choose to use a combined perspective, ... we recruited persons with MS living in rural communities in Northern Ontario (≥3 hours from tertiary care) through the Ontario Division of the MS Society of Canada. ... Hadden L, Frankel D, Robbins T, Perloff J. Access to and utilization of neurologists by people with multiple sclerosis. Neurology

Signs and Triggers of an MS Flare-Up - Cleveland Clinic Health Essentials

https://health.clevelandclinic.org/ms-flare-up
Most routine vaccines are safe for people living with multiple sclerosis — but be sure to talk with your care team about your needs July 26, 2022 / News & Innovation Botox Treatment for Spasticity

Treating MS Pain With Virtual Reality - WebMD

https://www.webmd.com/multiple-sclerosis/features/rms-virtual-reality
Charvet and Martin Malik co-presented the study "Virtual Reality as an Intervention for Chronic Pain in Multiple Sclerosis" at the American Academy of Neurology's 73rd Annual Meeting, April

What causes multiple sclerosis—and why are women more at risk?

https://www.nationalgeographic.com/science/article/multiple-sclerosis-ms-cause-treatment-ebv
Brain scans are one tool that doctors use to diagnose multiple sclerosis or MS, which impacts the body's central nervous system. This magnetic resonance imaging (MRI) scan shows the brain of a 53

Is It Safe To Get Vaccines if I Have MS? - Cleveland Clinic Health

https://health.clevelandclinic.org/ms-and-vaccines
"Staying up-to-date with vaccines is important when you're living with MS because your condition can make it harder to recover from infection," says neurologist and MS specialist Robert

Things to Know If You're Thinking About Leaving Your Neurologist

https://multiplesclerosisnewstoday.com/2019/03/22/leaving-ms-neurologist-tips/
Try to speak honestly, as if you're talking to someone with whom you have a personal relationship, because that's how doctors and patients should relate to each other. (I wrote a column about

MS, dogs and me | MS Society

https://www.mssociety.org.uk/support-and-community/community-blog/ms-dogs-and-me
Multiple Sclerosis Society (MS Society UK). Registered charity nos 1139257 / SC041990. Registered as a limited company in England and Wales 07451571. Registered office address: Carriage House, 8 City North Place, London N4 3FU

In San Francisco, Doctors Feud Over 'Do No Harm' When It Comes to War

https://www.nytimes.com/2024/06/24/us/israel-hamas-war-sf-doctors.html
In a written response, Dr. Marya said the statement by U.C.S.F. that addressed her post was "a disingenuous attempt to silence perspectives they don't like" and that she has never felt, in