https://dl.acm.org/doi/fullHtml/10.1145/3411764.3445413
Informal caregivers provide ongoing, unpaid care for another individual — typically family members or friends — with a chronic condition or disability [44, 46, 65].Their responsibilities vary greatly, from checking in on care recipients, to managing engagements with the healthcare system, to assisting with activities of daily living, such as bathing, eating, and online activities [24, 39, 53].

https://research.google/pubs/isolation-in-coordination-challenges-of-caregivers-in-the-usa/
These mediating factors include caregivers' relationships, access to a variety of resources including physical, social, and financial support, and physical and mental barriers. We discuss these challenges and mediating factors, and conclude with a discussion on how they can be considered in the design of future sociotechnical systems.

https://dl.acm.org/doi/abs/10.1145/3411764.3445413
Isolation in Coordination: Challenges of Caregivers in the USA. ... we report results of a large survey study with 2000 informal caregivers in the USA, highlighting the fundamental challenges that different types of caregivers face when coordinating care with others. ... Yunan Chen, Karen Cheng, Victor Ngo, and John E. Mattison. 2018. Awareness

https://research.google/pubs/pub49916/
In this paper, we report results of a large survey study with 2000 informal caregivers in the USA, highlighting the fundamental challenges that different types of caregivers face when coordinating care with others. Our findings support previous findings on caregivers' coordination challenges, while also offering insights into the situational

https://dl.acm.org/doi/epdf/10.1145/3411764.3445413
survey study with 2000 informal caregivers in the USA, highlighting the fundamental challenges that diferent types of caregivers face when coordinating care with others. Our fndings support previous fndings on caregivers' coordination challenges, while also ofering insights into the situational, mediating factors that infuence the

https://www.semanticscholar.org/paper/Isolation-in-Coordination%3A-Challenges-of-Caregivers-Schurgin-Schlager/97ee1dd64fc7c0eda8127e49b87d0ec673a49e96
The fundamental challenges that different types of caregivers face when coordinating care with others are highlighted, and mediating factors include caregivers' relationships, access to a variety of resources including physical, social, and financial support, and physical and mental barriers are discussed. As the global population ages and the prevalence of chronic conditions and acute

https://www.researchgate.net/publication/351422380_Isolation_in_Coordination_Challenges_of_Caregivers_in_the_USA
Primary caregivers not only bear the greatest burden of care work but also lead the articulation work (Tang et al., 2018). Typical challenges in this context include communication breakdowns, lack

https://programs.sigchi.org/chi/2021/program/content/47917
Isolation in coordination: challenges of informal caregivers in the USA - CHI '21 CHI 2021. The 2021 ACM CHI Conference on Human Factors in Computing Systems. For the full conference program, see https://acmchi.delegateconnect.co ... Isolation in coordination: challenges of informal caregivers in the USA. Details. Papers. 10 min Sessions. Wed

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8618455/
Some studies have examined loneliness or social isolation in informal caregivers (e.g., [12,13,14,15]), partly demonstrating a link between provision of informal care and increased loneliness. This is plausible given the fact that informal caregiving can reduce the time available for family and friends due to reasons of prioritizing [ 16

https://www.ncbi.nlm.nih.gov/books/NBK210048/
One is to describe the prevalence of informal caregiving in the United States by identifying who provides care and to whom that care is provided. ... The magnitude of care coordination challenges was recently demonstrated in a study to evaluate the ability of relatively well-educated adults with computer experience to use the Medicare.gov

https://pubmed.ncbi.nlm.nih.gov/33947734/
Informal caregiving for adults, loneliness and social isolation: a study protocol for a systematic review BMJ Open. 2021 May 4;11(5):e044902. doi: 10.1136/bmjopen-2020-044902. ... definition and measurement of informal caregiving, loneliness and social isolation, sample characteristics, statistical analysis and main results.

https://www.youtube.com/watch?v=s7Dk8fm8b5k
Isolation in coordination: challenges of informal caregivers in the USAMark Schurgin, Mark S. Schlager, Laura M Vardoulakis, Laura R. Pina, Lauren WilcoxCHI

https://www.researchgate.net/publication/356370022_Informal_Caregiving_Loneliness_and_Social_Isolation_A_Systematic_Review
A key part of home care is the provision of informal care. ... social isolation in informal caregivers (e.g., ... (2020) [38] United States spousal caregiver (yes/no) UCLA Loneliness Scale (three

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5395647/
Introduction. Loneliness and social isolation are increasingly recognized as important societal challenges. Approximately 15% of adults in the UK aged 16-79 years old report high levels of loneliness in their daily life with double this percentage in people aged over 80 (Thomas, 2015).Loneliness is defined as "the unpleasant experience that occurs when a person's network of social

https://unitedstatesofcare.org/listening-to-informal-caregivers-outstanding-challenges-and-needs/
In 2020, there were more than 53 million informal caregivers in the United States, each with varying challenges to their caregiving role. Those can include financial strain, mental health struggles, difficulty navigating the caregiving role, and lack of support to ease burden. Informal caregivers also have varying identities based on their

https://www.tandfonline.com/doi/full/10.1080/0144929X.2017.1405073
To answer these questions, we conducted a qualitative interview study with 15 individuals with caregiving experience. The findings of the study identified the main challenges faced by caregivers in maintaining awareness, coordinating handoffs among informal caregivers, and easing tensions among caregivers and patients.

https://pubmed.ncbi.nlm.nih.gov/34704870/
Caregivers reported "a world upside down" and change that contributed to uncertainty; the need for support; and how isolation, depressive symptoms, and threat contributed to negative psychological well-being. Managing and struggling in response to caregiving challenges and wishing for resolution were also reported.

https://aspe.hhs.gov/reports/informal-caregiving-older-americans-analysis-2011-national-study-caregiving
Informal caregiving is the foundation of long-term care for the older population in the United States. At least 90% of persons receiving help with daily activities receive some informal care, and about two-thirds receive only informal care (Freedman et al. 2013; Kaye, Harrington & LaPlante 2010; Spillman 2009; Spillman & Black 2005).

https://www.researchgate.net/publication/321323665_Awareness_and_handoffs_in_home_care_coordination_among_informal_caregivers
However, a significant gap in existing interventions is that most focus only on the primary caregiver, even though most people living with ADRD receive care from more than 1 caregiver-a care

https://dlnext.acm.org/doi/10.1145/3411764.3445413
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https://healersandpatients.web.unc.edu/2024/04/informal-caregiving/
Introduction. As the hidden support to our healthcare system, informal caregivers, specifically those who care for a spouse, parent, or other adult relative, make up an estimated 53 million adults in the United States.Informal caregivers assist those with chronic or long-term illness, cognitive impairments, functional limitations, and other disabilities by providing unpaid care, most often to

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9324775/
Results. Compared to pre‐pandemic levels, all caregivers experienced a significant increase in burden, loneliness, and isolation. Caregivers of people with both brain health and physical conditions were the most burdened and had the highest levels of loneliness and isolation compared to caregivers of people with either a brain health or physical condition only.

https://bmchealthservres.biomedcentral.com/articles/10.1186/s12913-024-11058-0
Background As the world population is aging, considerable efforts need to be put towards developing and maintaining evidenced-based care for older adults. Respite services are part of the selection of homecare offered to informal caregivers. Although current best practices around respite are rooted in person centeredness, there is no integrated synthesis of its flexible components. Such a

http://www.milwaukeeindependent.com/syndicated/quality-life-family-caregivers-can-navigate-challenges-isolation-financial-burdens/
As a result, they may face increased emotional burdens. And caregivers age 70 and above face particular challenges, since they may be navigating their own health issues at the same time. These individuals are less likely to receive informal support, which can lead to social isolation and burnout. Support for family caregivers

https://bmcprimcare.biomedcentral.com/articles/10.1186/s12875-024-02447-9
Background The caretaking process for older adults with depression and physical multimorbidity is complex. Older patients with both psychiatric and physical illnesses require an integrated and comprehensive approach to effectively manage their care. This approach should address common risk factors, acknowledge the bidirectional relationship between somatic and mental health conditions, and